I have AS , Neuropathy, Chronic Pain & RLS
RLS = Restless Leg Syndrome. Yesterday afternoon My leg started kicking which is an odd time, usually at night. I took all my Meds and wouldn’t Stop ,so took everything I had including THC which usually relaxes after 3 times. I’m still wide awake and not feeling sleepy.
Has anyone else encountered something similar?
Thanks!
Ron
Hi Ron -
it sounds awful. I had restless legs a while back. Quite difficult to manage. As Lisa, I too have been on a muscle relaxer. Have you been to your treating physician to seek help with this? I do hope you finally got some rest. I know how irritating and disruptive RLS legs can be. How are you doing this week? A little FYI - I've heard pickle juice or electrolytes help restless legs. Rebecca (team member) Oh Ron, I'm sorry to hear what you are dealing with. I am glad you have such a caring physician. Having someone who understands your pain can make a significant difference. And I do hope that you find a warm and cozy place. I'm in Arizona and it's been cold the past few days, putting me in more pain than I care to deal with as well. I understand some of the neuropathy you describe - injured my neck and having surgery next week for fusion. The symptoms you describe sound incredibly debilitating, especially the nerve pain and issues with sleep. I hope this week treats you a bit kinder and that you find some moments of ease and relief, whether it's in your recliner or dreaming of being seaside. Rebecca (team member) Exactly - Find a way to get nutrients and electrolytes to help. Rebecca (Team member)
hi kizmazz, I have MS and AS. The AS is worse than the MS by far. I also have part ial neuropathy and chronic pain. When my legs start kicking, it is directly related to my SI joint. the jerking makes it impossible to sleep. What has helped me the most is going to a pain doctor. I know that taking notes about the pain and how it effected me, how long it lasted and if I was able get it to stop. I now have a pain pump, altho I am only using a muscle relaxer, baclofen. It has helped incredibly. Occasionally I have to take an oxycodoneto completely stop the legs. I hope you get answers from your doctors.
