Symptoms
I've recently been diagnosed with axial spondylitis after a few years of hip pain that has now progressed to other areas of my body. Last year I started having eye pain ,brain fog,off balance , weakness in legs, anxiety and suicidal ideation has anyone else experience these symptoms, for the longest while I was told there is nothing wrong and I should see a psychologist or psychiatrist as there is something mentally wrong with me.
The information I've read so far has been a great help. Thanks.
Take care
Hi There - just checking in to see how you are doing lately? Thinking of you. Rebecca (comm advc) Greetings, Thank you for your concern, I've been feeling better now that I know what's going on , it's been a long scary road especially when it messes with the mind. Pain not too bad here lately. It's good to know that I can talk about my illness to someone who completely understands what I've been going through.i don't take any meds because I fear the side effects more than the sickness, I have put my trust in a higher power and know I will get through this. Blessed Love. It's so great to hear that your pain is not too bad. It is a scary road to travel when it's all new and you don't know what to expect. It seems you are managing your disease burden well. We are always around should you need the comfort of an ear. Blessings ~ R
Hi
, I can relate to a lot of what you've said. I'm sorry you have been experiencing these as I know how frustrating and disheartening these feelings and symptoms can be.
Your symptoms are real and I'm sorry you've been invalidated. Change doctors as many times as needed until someone hears you out. It is very frustrating but hopefully, you will be able to get any treatments you might need.
Many chronic illnesses can also be accompanied by mental distress due to the symptoms and their invisibility to others. For my treatment of AxSpA, my doctor reiterated that I must see a mental health specialist to address the mental distress aspect of the disease. So, in my experience, it has been worthwhile to also get mental health treatment.
Wishing you well,
AnnaThanks,
this is like a flash back like I was reading my story. I am so sorry you had to go through that. Getting dismissed and not being listened to hurts a lot and makes the struggle even harder. I am so happy to hear you finally got the right answers. This disease can cause anxiety and depression. I was suffering for years and months. Doctors kept telling me it’s nothing and it’s all from depression and anxiety. It was very hard and it felt very lonely. I don’t have nothing against getting those diagnosis because just depression and anxiety is hard enough to deal with. But I knew there was more to it. It just didn’t make sense. I finally found a rheumy and doctor together that listened.
Follow your gut when it comes to your body and what is happening. You know best. I hope you find a treatment that will help you live the best life possible. Wishing you well and hope today is a good day for you.
Take care,
Nicky (community member)I know this feeling of knowing something is not right inside of you. I am glad you followed that feeling and you got your diagnosis. That must of been such a huge relief on knowing you where right on this all along. Stay strong and sending you my best wishes your way.
NickyMany Thanks, and I Pray you are coping with your Illness as well. Sending Healing Love n Light .
