Were any symptoms on Axial Spondyloarthritis surprising?
Did you experience any unexpected symptoms when you were diagnosed with AxSpa?
Are you wondering if anyone else experienced these symptoms?
Are you unsure if these symptoms are connected with AxSpa?
Share with the community below!
Thanks everyone for posting your AS Surprises. My biggest surprise was the Rib Pain on both sides , my eyes are now so sensitive that I have to wear by Wayfarer Sunglasses , hips that feel like they are in a Vise and my neck that started popping inevery direction - yes it’s very irritating.
I get back and rib pain, the first biological I took seemed to ease things off, the second one, seems like either I have picked up a virus or my back is on another flare up, I can work out, questioning of I can also do gymnastics today with the forward rolls on my back, let's see, I have t11&t12 fusion due to repeated attacks, si joint is fused, and previous enthesitis too. Just finished my workout and mobility. 
It sounds like you are continuing your exercise routine even with that pain. Kudos! I was up last night with horrible back pain. I more than likely not overdid things cleaning and moving about. What have you found to help with everything related to your pain and enthesitis - spondyloarthritis? Here's a link to an informative article that may help you if you haven't discovered the right treatment plan. https://axialspondyloarthritis.net/treatment Wishing you the best as you travel this challenging road. Rebecca (team member)
The eye irritation was what surprised me. I'm very sensitive to light and have dry eyes so my eyes tear in the morning.
I hope you find some relief soon. It can be difficult starting off your day and having to manage these symptoms. We appreciate you sharing. Sending thoughts of healing. Rebecca (team member)
What surprised me were my GI symptoms and eye pain and light sensitivity.
Hi
,
Getting diagnosed with AS has brought on symptoms that I had to learn from the groups and other AS members. Getting diagnosed was the all of a sudden increased low back pains I was having, weakness in the legs and the extreme fatigue. I keep getting unexplained eye pains, seeing floaters and also sore eyes. I have read it can come with AS, but have seen numerous opthomologist and all keep telling me it's from chronic fatigue. Wondering if it actually is the disease. When I got diagnosed, I thought it was only about pain in the back. Months after I realized how it was not just pain in the back. I get peripheral pains with it also. Pains in every part of my body, wrists, back, chest, eyes, finger toes, ankles, legs. You name it. Sometimes I do think there must be more going on. Every time a I get periods of long term flares, I do wonder if I am the only one. But when I come into the groups, I see I am not the only one feeling these symptoms. It's hard, but one day at a time. Hope you are doing well. I want to wish you happy holidays. Would love to see what other member feel and what they have to say.
Wishing you well,
Nicky (community member)I'm right there with you. I just got over a flare. Smh... Now it seems I'm going to have another one. And I had gotten a steroid shot last week in my hip to help with my sciatica. Ugh...winters are painful.
