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Tips for a Better Sleep

Sleep is a crucial aspect of managing AS/AxSpa, yet many of us face sleep troubles due to pain and discomfort. Let's discuss how AS/AxSpa affects your sleep patterns and share tips and strategies that have helped you achieve a better night's rest. What works for you in managing pain-related sleep disturbances, and do you have any sleep hygiene practices or products that have made a difference? Share your experiences and insights on improving sleep quality, and let's help each other get the rest we need to thrive with AS/AxSpa.

  1. I’m relieved to hear that I am not alone in these pain dreams. Mine are so vivid that I awake in a fit of painful terror and my screaming actually wakes me! It takes me hours to calm down and my pain levels are greatly increased the following day.

    1. I can only imagine how draining it must be to wake up like that, especially when it leaves you in more pain. It’s hard enough dealing with the pain during the day, but then to have it affect your sleep like that too... that's rough. Have you tried anything to help with the dreams or ease the pain when you wake up? I know it’s not easy, but I’m hoping you find something that helps! -Latoya (Team Member)

  2. I have pain mostly back, neck, and hips. I alternate between recliner and bed. Sit on pillows use compression stockings, my copper fit back support. Also, I put lidocaine on hips back, the place saran wrap over for max absorbtion and clothes barrier. (Use old clothes and towel). I get terrible nightmares at times. Others if I can't sleep for days, pain gets uncontrollable and then hospital visit so no OD. Bathes sometimes help. I shake my feet, or hang of bed. I put a thicker pillow at end to hold calves up and that's way more comfortable. Seriously, this disease is awful! 💔 Hang in there and THANK YOU FOR BEING HERE SHARING. 🌟

    1. ,
      It sounds like you have a wealth of tricks up your sleeve.
      It's unfortunate that you've had to try so many different ways to find comfort and relief.
      Thanks for taking the time to share with us.
      My best, Doreen (Team Member)

  3. Get your bedroom the right temperature, find pillows that are comfortable, take medications if needed.

    1. Hi I'm a side sleeper always have been. More my left then right. I get a lot of pain in my legs from the knee down. My feet are always cold and feel numb I toss and turn all night. I have found that if I put on calf compression socks or sleeves on it really helps me sleep. Just a thought for you all and give it a try 😉

      1. Do you put a pillow between your knees? It separates hips. I soak my feet in tub or heating pad in between sheet and blanket to hold it if socks don't work. 🙂

      2. hi not a pillow but I do the quilt between my legs as it does help. And I have a small hot water bottle for my feet 😆 🤣 but it works and helps.

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