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Tips for a Better Sleep

Sleep is a crucial aspect of managing AS/AxSpa, yet many of us face sleep troubles due to pain and discomfort. Let's discuss how AS/AxSpa affects your sleep patterns and share tips and strategies that have helped you achieve a better night's rest. What works for you in managing pain-related sleep disturbances, and do you have any sleep hygiene practices or products that have made a difference? Share your experiences and insights on improving sleep quality, and let's help each other get the rest we need to thrive with AS/AxSpa.

  1. I have pain mostly back, neck, and hips. I alternate between recliner and bed. Sit on pillows use compression stockings, my copper fit back support. Also, I put lidocaine on hips back, the place saran wrap over for max absorbtion and clothes barrier. (Use old clothes and towel). I get terrible nightmares at times. Others if I can't sleep for days, pain gets uncontrollable and then hospital visit so no OD. Bathes sometimes help. I shake my feet, or hang of bed. I put a thicker pillow at end to hold calves up and that's way more comfortable. Seriously, this disease is awful! 💔 Hang in there and THANK YOU FOR BEING HERE SHARING. 🌟

    1. ,
      It sounds like you have a wealth of tricks up your sleeve.
      It's unfortunate that you've had to try so many different ways to find comfort and relief.
      Thanks for taking the time to share with us.
      My best, Doreen (Team Member)

  2. Get your bedroom the right temperature, find pillows that are comfortable, take medications if needed.

    1. Hi I'm a side sleeper always have been. More my left then right. I get a lot of pain in my legs from the knee down. My feet are always cold and feel numb I toss and turn all night. I have found that if I put on calf compression socks or sleeves on it really helps me sleep. Just a thought for you all and give it a try 😉

      1. ,
        I hope they help.
        Please update us when you get a chance.
        ~Doreen (Team Member)

      2. Do you put a pillow between your knees? It separates hips. I soak my feet in tub or heating pad in between sheet and blanket to hold it if socks don't work. 🙂

    2. I have an update. I've had a horrible year with the forest fires so my asthma was worse. I have developed pain in my neck that interferes with my sleep. Waiting to get into an MRI, but taking so long, I was referred to get a sleep study. Moderate sleep apnea, which I didn't expect. so I'm waiting to go back for a second time to calibrate the correct pressure. He showed me how a brain reacts when having sleep apnea. I am hoping this helps with some of my nighttime wakefulness. Fingers crossed.
      Lisa

      1. Sending thoughts of healing your way, Lisa. Smoke and forest fires are huge asthma triggers. I can relate. Thankfully I'm faring well in the SW currently. I hope the MRI happens quickly so you can find the cause of your neck pain and that treatment is implemented. I know this pain, just had another extended fusion surgery. Hoping it's not that bad for you. Many times PT exercises can ease it and strengthen up those upper body muscles. Sorry to hear about your sleep apnea diagnosis. But it's fantastic you are taking steps to improve your sleep and nighttime breathing. These have such a profound effect on a person. Do keep us in the loop. So very interested to hear how you've improved. With care - Rebecca (team member)

      2. ,
        We appreciate the update.
        Sleep apnea is no fun.
        When you mentioned calibrating the correct pressure is that for a CPAP machine?
        Here's hoping you'll find many restful nights of sleep ahead.
        ~Doreen (Team Member).

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