How are everyone’s treatments going?

Hi Kory,

I just turned 57 yrs young, affected by AS at 30 yrs of age. Took almost a decade to discover that I had AS and Fibromyalgia. Then the process of treatment took almost a year to introduce Humira. This biologic has fortunately worked for me considerably. Along with good support team of doctors and a chronic pain support group. I am doing much better than years ago when I was in horrible chronic pain. I now have severe Osteoporosis but do not let anything interfere with enjoying life. Mostly I had an attitude adjustment to the positive and eliminated all negative people and influences. Eliminated most drugs as well. Has made a wondrous difference in my life. I hope you find what works for you dear.

Hi Kory!

I'm glad to see you are still here on the site, I am fairly new here as well! That sounds like such a frustrating and scary situation. It's like, how do we choose when both conditions effect us so immensely?

It sounds like you have an amazing doctor who completely has your health and best interest at heart. I have two conditions as well (AS and Fibromyalgia) but they more or less feed off one another, so when one is bad, the other is as well. Please keep us updated on your treatment and we are glad you are here. You are not alone in this!

Sending hugs and good thoughts your way!!

-Katie

Hi☺️Sorry I stopped coming on this cos it seemed to not be an active site. But now see it’s back on... so sorry about ur diagnosis. It sucks. I hope you’re finding ways to deal with it nlt just physically but mentally. Mentally this can be rough. I responded to a reply above basically told my story. Or at least my diseases, my treatments. Except I left out that I’m on plaqualin and methotrexate and prednisone for my treatments. My doc isn’t comfortable treating my AS even tho it’s progressing fast cos of lupus. And my organs that are affected with lupus. Cos biologic meds make lupus worse😢...
how are you? What’s your treatments? What’s your story?

Hi☺️I kinda lost interest in the site cos there wasn’t any response for long time. But I will be back on now that I see there are ppl active. How are you? How’s things going with your treatments? Pain management?
I’ve kinda come to a head with AS treatments. I have lupus, and AS. They’re contradicting diseases in treatment. Biologics meds help stop Progression of AS. But make lupus flare. And i have SLE, systemic organ lupus. Affecting my heart and lungs. My doc said he took oath “do no harm” so to treat AS would be putting my organs in danger. In the last month I went thru a deep depression. Cos to me the way it sounded was my options are life threatening organ lupus issues or disability in wheelchair cos my AS is progressing fast. And affecting most my joints. I have spurs all over. Even my small joints are affected. And this was very hard for me to accept cos I have an aunt who ended up in a wheelchair before the age of 40. Has a metal spine, metal all over. What I was told. I don’t ask her, but I do see her. So mentally I took this news of not treating AS very hard. But my doc yesterday told me he’s gonna aggressively treat lupus first. And once he feels comfortable hes suppressed all the symptoms. My cardiologist and lung specialists give it a go. He’ll again try biologics. So that gave me bit of hope mentally.

So what’s your story?