Uveitis - does it become less frequent over time?
I've just read an interesting article from another member, about their experiences with uveitis. They mentioned that the attacks are less frequent these days.
It got me wondering about AS and uveitis because my bouts are less now. Is that the case for most of us? Does the uveitis flare in the early years but then fall away?
From the age of 17 to late 50s I had many bouts of this to the extent the ophthalmologist gave me an open script for the steroid drops! This was AS but at the time I was clueless. Now my knees are effected. This disease tends to move around, but I’m praying it does not move to my spine.
- hope you have this disease well managed, and that you get support in easing the knee pain. So sorry to hear you've been suffering so when it comes to uveitis but glad to hear you have been treated; it's truly painful and aggravating as it worsens. Are you on a biologic for this chronic disease? Rebecca (community moderator) Mine had gotten to the point that I considered giving up driving. Since starting treatment though, which has only been three weeks ago, I have not had a issue. Will see.
Hi! I've actually wondered about this. My first uveitis flare up was about 2 years ago (it was also the first presenting symptom of nr-AxSPA. I'm wondering how you and others have managed chronic uveitis other than a biologic? I have been on one pred forte eye drop per day to manage the inflammation, but it has caused my eye pressure to increase which can lead to glaucoma. Trying to navigate the middle ground and looking for any advice anyone has. Thanks! Hey there Erind, I wanted to jump on and leave a message seeing that Steve hasn't responded. Hoping your uveitis is better controlled with the Pred Forte. I do understand you are having issues with the eye pressure it is causing. Have you changed meds since posting or tried something different? Uveitis was one of the symptoms included in my SpA diagnosis. As Steve stated above, as in the article he read, currently with biologics for me it has eased and I rarely have a flare in my eyes. My experience is that I have had less and less uveitis since treatment. I am not certain of other ways individuals with this disease treat their uveitis but hoping they jump in and provide some words of wisdom, and help you manage this. Wishing you the best in the New Year. Rebecca (comm advc)
Hi Steve - thanks for the forum question. It's definitely a good one! I think with medication uveitis could occur less frequently (since the inflammation is controlled), according to science journals. For me, it sort of happened a bunch for a few years then (knock on wood!) altogether sort of stopped. I do not miss it and would never want to experience it again. So, yeah, it was the reason I was diagnosed with AS to begin with and started happening early in my AS days then went away. So bizarre. This makes a lot of sense now that I think about it. Since starting my biologic, my eye symptoms don't get as bad but every time I have a flare-up they are more irritated. I never put this together before, thanks.
