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What does a flare look like for you?

Hello. I am going through the process of testing for a possible diagnosis. I had previously been diagnosed with RA due to blood test results but have never really had small joint problems. For the past 3 years or so I have been having events that pretty much disable me from doing most activities. I will start to get a little pain and stiffness in my lower back and then suddenly, overnight, I will wake up and barely be able to move. It sometimes takes 10 minutes to get out of bed. I can't put on socks or wear anything but shoes that slip on. Getting up and sitting down are very difficult. The last "event" I had lasted a little over a week and I was unable to stand up straight without support and/or walk standing up straight. It was the worst. I had been attributing these back events to other reasons, since I was told 10 years ago that based on my blood test results that I didn't have ankylosing spondylitis, but am now wondering if they might be a flare. Anyone else have similar experiences?

  1. This is exactly how I've felt the last 4-5 weeks. I couldn't figure out what was happening
    This is amazingly helpful!

    1. Waking and the dread of moving. Just pul covers over my head and let the day proceed without me. Tomorrow will be better.

      1. Yeah, this describes it very well. The crankiness and intolerance of even very minor problems are most telling.

        1. This makes so much sense. I also have epilepsy and I supposedly get real cranky before a seizure, but if I am cranky for a few days this may be indicator for AS flare. I also get incredibly tired and don't want to move. Thank you

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