What symptoms of AS do you experience?
Chronic, long-term back pain is one of the most commonly reported health problems in the United States. Not surprisingly, back pain is also the most reported symptom by people living with axial spondyloarthritis (axSpA).
Other symptoms may also occur with axSpA, such as uveitis, fatigue, psoriasis, heel, shoulder, foot, and other joint pain.
I’ve had a flare for almost a month. My lower back aches, Sciatica’s running wild shooting Electricity out my toes, both knees hurt so bad hard to stand, ankles severe pain, vision getting worse, ribs hurting, neck hurts so bad hard to turn.
Every joint in my body hurts seems to be getting worse. I have prednisone will
start taking in morning. I only sleep 2-3 hours so don’t need something else to
Keep me awake. Don’t like taking them but I’m at a point I have to take them.
I have opioids but they really don’t help anymore. Just can’t wait for Winter since it’s in the 90’s now and I hurt, guessing it will be horrible.
I bought a Drive Nitro Rollator which has 4 wheels, 2 brake handles, seat w backrest, bag under sear to hold what I want to take. If I didn’t have this I wouldn’t be able to walk to kitchen or bathroom, it’s getting that bad. I have
episodes of getting very hot then very cold. It’s just wonderful. NOT. lolI go through some of the exact same symptoms as you do. I was just recently diagnosed but already had a healthy knee get attacked to the point of stage 4 failure & had to have a total knee replacement. I’ve just started a biologic three weeks ago and unfortunately, I’m allergic to it. I will have to try something different. I’m curious are you on biologics. I was hoping that all of the symptoms that you and I are dealing with would begin to go away with the biologics. Are you just dealing with this severe pain in a flair or is it almost all the time like what I have now even though you are taking biologics?
Kind regards,
Ingrid- I have chronic pain all the time and Biologics will NOT make pains go away. They only help from stopping more deterioration of what you’re going through. I went through almost all of Biologics and ended up with Embrel.it comes in a pen looking thing , use sanitizer wipe, take off white cap, pinch your skin as tight as possible close to belly button. Move pen until you see the Guage click the Cap Button watch gage until you hear a click, you’re done.
Entheses on bilateral meal knees
Wow, both knees at the same time? I can see how that would be a pretty big red flag. Did it take a while for your doctors to figure out it was related to AS? - Latoya (Team Member)
Pain
Where did the pain start for you? -Latoya (Team Member)
Enthesitis of almost all my joints; especially my T-spine, shoulders, wrists, knees, and feet.
Wow! That’s really widespread. Did it start in one area first and then spread over time, or did it come on all at once in different joints? -Latoya (Team Member) I am so sorry you are going through all this. Pain (enthesitis) is often the hallmark symptom of AxSpa, and having it throughout your body is not uncommon. How are you treating your pain? Warmly, Kathy (Team member)
