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What symptoms of AS do you experience?

Chronic, long-term back pain is one of the most commonly reported health problems in the United States. Not surprisingly, back pain is also the most reported symptom by people living with axial spondyloarthritis (axSpA).

Other symptoms may also occur with axSpA, such as uveitis, fatigue, psoriasis, heel, shoulder, foot, and other joint pain.

  1. Pain, pain more pain and stiffness throughout my entire body - base of neck through to foot pain and every body part in between! Mild incontinence, dry eyes, insomnia, fatigue, loss of independence, night sweats, chest infections, dizziness
    etc. A real bundle of laughs!

    1. Trying to function through all of that takes a different kind of strength because it’s not just one symptom, it’s a constant stack of things that wear you down little by little. You never really get a full break, you just learn how to manage around it the best you can. Continue to hang in there! -Latoya (Team Member)

  2. Back ache fatigue

    1. Those two together can really drain you. How are you handling it? -Latoya (Team Member)

  3. I’ve recently found out that I have cysts in my bones from my AS has anyone else have this happen?

    1. we just found the cyst but I don’t have osteoporosis. I just assume this is from the spondylitis. I just recently moved so I have all new doctors we are just getting started.

    2. Please let us know what your doctor says. Warmly, Kathy (Team member)

  4. Besides the typical pains from nose to toes, I have receding gums. I see the dentist 3 times a year just to see the deterioration get worse. I've also got gut issues and have lost my desire to eat.

    1. Thank you for sharing your experience. I am sorry you are having dental problems related to your AS. You aren't alone, as the comments on a forum on our community relate. Does your dentist have any suggestions for what you are facing? Warmly, Kathy (Team member)

    2. come in more times for cleanings and check ups during the year (out of my pocket) to try and put a finger in the holes in the dam

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