What symptoms of AS do you experience?
Chronic, long-term back pain is one of the most commonly reported health problems in the United States. Not surprisingly, back pain is also the most reported symptom by people living with axial spondyloarthritis (axSpA).
Other symptoms may also occur with axSpA, such as uveitis, fatigue, psoriasis, heel, shoulder, foot, and other joint pain.
I'm 65, I was diagnosed at 20. I remember it was pretty bad the first couple years but then magically went into remission most of my adult life until the last couple years. I'm going on my fourth month on generic Humira at a huge out-of-pocket expense but my lower back pain has become almost debilitating. I don't think it's doing any good. I have a MyChart message into my rheumatologist but I'm sure any effective drugs will be hard to get approved by Insurance Company too. I'm feeling rather scared and hopeless at this point. My knees are also quite affected and I'm finding the right one locking up and giving out occasionally. Scary stuff.
Thank you for sharing your experience. I am sorry the Humira isn't working well for you. You aren't alone in having to switch a biologic. You may be interested in this article by one of our health leaders about their experience switching biologics. Let us know what options your doctor suggests for you. All the best, Kathy (Team member)
Fatigue, body aches, SI joint pain, lower back pain. I have flare ups around every 2 weeks. Some a flare ups are worse than others. Sometimes the fatigue is almost debilitating, hard to get out of bed after a night of tossing and turning.
Having flares come around every couple of weeks has to be exhausting, especially when you don’t know if it’s going to be a mild one or a flare that takes everything out of you. It’s like your body doesn’t always give you much of a break. Do you feel like you’ve noticed any patterns with those every-two-week flares, like certain activities, stress, or changes that seem to bring them on? -Latoya (Team Member)
No I haven't but I do think the heat and humidity has a big influence. I can no longer tolerate heat.
Pain in my eyes, hips and scalp it feels like someone hit me with a nail
That sounds so painful. Are you on any treatment plan that can give you some relief? Warmly, Kathy (Team member)
Pain in my “sit bones”, pain anywhere in my back, pain in my right hip, brain fog, stiffness and pain when I wake up.
Thank you for sharing. Which symptom gets in your way the most? All the best, Kathy (Team member)
