What symptoms of AS do you experience?
Chronic, long-term back pain is one of the most commonly reported health problems in the United States. Not surprisingly, back pain is also the most reported symptom by people living with axial spondyloarthritis (axSpA).
Other symptoms may also occur with axSpA, such as uveitis, fatigue, psoriasis, heel, shoulder, foot, and other joint pain.
I’ve had a flare for almost a month. My lower back aches, Sciatica’s running wild shooting Electricity out my toes, both knees hurt so bad hard to stand, ankles severe pain, vision getting worse, ribs hurting, neck hurts so bad hard to turn.
Every joint in my body hurts seems to be getting worse. I have prednisone will
start taking in morning. I only sleep 2-3 hours so don’t need something else to
Keep me awake. Don’t like taking them but I’m at a point I have to take them.
I have opioids but they really don’t help anymore. Just can’t wait for Winter since it’s in the 90’s now and I hurt, guessing it will be horrible.
I bought a Drive Nitro Rollator which has 4 wheels, 2 brake handles, seat w backrest, bag under sear to hold what I want to take. If I didn’t have this I wouldn’t be able to walk to kitchen or bathroom, it’s getting that bad. I have
episodes of getting very hot then very cold. It’s just wonderful. NOT. lol- I stopped drinking Coffee since it will make me hotter and it upsets y stomach. For some reason I can be inside with AC blowing cold all at once I get very Hot and I mean hot. The back of my hair gets wet and I have to go sit with the fan blowing directly on me for 10 minutes. I’ve never heard or seen anyone say they get hot with AS! - I can’t really tell if Embrel helps or not. What you may not know is Biologics doesn’t really help with pain their job is to ensure that you don’t get worse. I learned this from my very smart Rheumatologist who got his Masters Degree in Biology, graduated with a Medical Degree then went back for an Internal Medicine Degree that takes another 8 years ro complete after you get an MD degree. When he tells me something I really listen because he knows what he’s talking about.
Ron
Entheses on bilateral meal knees
Wow, both knees at the same time? I can see how that would be a pretty big red flag. Did it take a while for your doctors to figure out it was related to AS? - Latoya (Team Member)
Pain
Where did the pain start for you? -Latoya (Team Member)
Enthesitis of almost all my joints; especially my T-spine, shoulders, wrists, knees, and feet.
Wow! That’s really widespread. Did it start in one area first and then spread over time, or did it come on all at once in different joints? -Latoya (Team Member) I am so sorry you are going through all this. Pain (enthesitis) is often the hallmark symptom of AxSpa, and having it throughout your body is not uncommon. How are you treating your pain? Warmly, Kathy (Team member)
