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What symptoms of AS do you experience?

anthony.carrone

Chronic, long-term back pain is one of the most commonly reported health problems in the United States. Not surprisingly, back pain is also the most reported symptom by people living with axial spondyloarthritis (axSpA).

Other symptoms may also occur with axSpA, such as uveitis, fatigue, psoriasis, heel, shoulder, foot, and other joint pain.

DaniMcK Member
Constant pain, headaches, dizziness, brain fog, exhaustion that never is relieved with sleep and rest, blurred vision to name a few. I refer to myself as a wack a mole, just when one symptom seems to get better something else pops up. Beyond frustrating!
1. Rebecca C Moderator & Contributor
  It is quite difficult to deal with all those symptoms constantly. The way you describe it as a game of whack-a-mole truly paints a vivid picture of the constant struggle undertaken. It's understandable to feel frustrated when it seems like there's always something new cropping up despite your efforts to manage it. I hope you are finding ways to manage it and come out on the other side. Self-care is essential to well-being. Sending thoughts of peace and tranquility - Warmly Rebecca (team member)
Motherprednisone Member
Pain, fatigue, stiffness, worsened IBS & anxiety, decreased mobility and balance.
1. Rebecca C Moderator & Contributor
  Hello - thanks for sharing a glimpse into your daily life. Living with the symptoms of ankylosing spondylitis can be incredibly challenging, both physically and emotionally. The pain, fatigue, and stiffness can make everyday tasks feel like monumental obstacles, while the exacerbation of IBS and anxiety adds an extra layer of complexity to managing your health. As well, decreased mobility and balance can further impact your quality of life and sense of independence. It's important to acknowledge the toll these symptoms take on you. How are you prioritizing self-care? We are here to support you. Please offer yourself grace as you navigate this complex journey. Rebecca (team member)
2. Doreen H Community Admin
  ,
  I just wanted to check in and see how things are going.
  I hope you've been able to find a bit of relief and today is a better day.
  Thinking of you,
  Doreen (Team Member)
Sancho Member
I have serious skin issues, also debilitating fatigue
1. val9 Member
  I am on Rinvoq which has been great for skin rash issues still fatigued but it is helping
2. Doreen H Community Admin
  ,
  Thanks so much for sharing.
  We're glad to hear it is making a difference for you.
  My best, Doreen (Team Member)
LeeLouise Member
Thank you for making this available to us. No one ever asks - how are you doing? Thanks for asking and to all of us who care and have to care by ourselves.
1. Rebecca C Moderator & Contributor
  your feelings are valid. Living with a chronic illness can often feel isolating, and it's disheartening when others don't take the time to check in and ask how you're doing.
  
  It's truly paramount to acknowledge the emotional toll that comes with managing a chronic illness, as well as the physical challenges being faced daily. Remember that it's okay to express your emotions and to seek support from those around you. Whether it's friends, family, support groups, or healthcare professionals, having a support network can make a significant difference in coping with your condition. Sending you warmth and healing. Hope you can be gentle with yourself today. Thoughtfully, Rebecca (team member)
2. Doreen H Community Admin
  ,
  We're glad you found this community.
  Always know we're here for you. Reach out anytime!
  ~Doreen (Team Member)