What symptoms of AS do you experience?
Chronic, long-term back pain is one of the most commonly reported health problems in the United States. Not surprisingly, back pain is also the most reported symptom by people living with axial spondyloarthritis (axSpA).
Other symptoms may also occur with axSpA, such as uveitis, fatigue, psoriasis, heel, shoulder, foot, and other joint pain.
Pain all over
AxSpa pain can be so relentless sometimes. When the pain is everywhere, it can make even simple things feel overwhelming. Are there certain days where the pain is more manageable, or is it pretty constant for you? -Latoya (Team Member)
I have the typical issues but my biggest pain is when i have to sit on a chair or much worse a car seat. I wonder if someone else have this problem? the next thing is, i need to get up alot because of the pain but on the other hand i can't be up longer then 2 hours or sometimes 3 because then the pain get also worse. So i can't stand up a long time but i also can not sit to rest a little bit. I'm kinda homebound because of that. I never hear someone talk about this Kind of problems and i wonder if i'm mostly alone with this symptoms?
(I'm from germany so i apologize if my english is not correct)
I understand everything you are saying. I can only sleep on my stomach because when I lay on my back or either side the pain is unbearable.. Don’t ever get more then 2 hours if that in a row. It sucks the pain. What works for me doctors won’t give unless I take depression medication. I am not depressed. Them medications make me out of my mind. Volume helps the muscle spasms I get all the time. Pain medication keeps me up for days. Medical marijuana works awesome for me. Keeps the information down..I do not blame you at all for not wanting to take medications that make you feel mentally worse just because doctors want you to try them first. It’s hard when you feel like you have to choose between physical relief and feeling like yourself mentally. But I’m glad you’ve at least found something that helps with the spasms and inflammation a bit. -Latoya (Team Member)
Pain, pain more pain and stiffness throughout my entire body - base of neck through to foot pain and every body part in between! Mild incontinence, dry eyes, insomnia, fatigue, loss of independence, night sweats, chest infections, dizziness
etc. A real bundle of laughs!Trying to function through all of that takes a different kind of strength because it’s not just one symptom, it’s a constant stack of things that wear you down little by little. You never really get a full break, you just learn how to manage around it the best you can. Continue to hang in there! -Latoya (Team Member)
Back ache fatigue
Those two together can really drain you. How are you handling it? -Latoya (Team Member)
