Rest and Back PainGetting a good night's rest is something many of us in this community struggle with. I too have had and still have my problems with that. Due to the lower...Reactions0reactionsComments2 comments
The Question that Keeps Me Up at NightThere's a question that keeps me up at night. Could my husband, Keegan, be suffering from more than just AS? What if his fatigue is chronic fatigue syndrome? What if...Reactions0reactionsComments5 comments
Coming Back Home to MyselfI am making more space for things that are good for me. I am temporarily separating myself from the ideology of productivity so that I can redefine what it means...Reactions0reactionsComments1 comments
I Miss Having a ChoiceEvery morning I wake up immediately feeling the fire behind my eyes and think to myself, “Time to do the same thing as yesterday…” The only motivation for getting out...Reactions0reactionsComments3 comments
7 Items That Help with my AxSpAWith a chronic illness that is largely out of my control, I rely on certain items to give me a sense of control and to be as comfortable as possible...Reactions0reactionsComments1 comments
My One Year PainiversaryAs my one-year painiversary is coming up, I thought writing an article about this topic was important. My last pain-free day was the 13th of April 2020. I did not...Reactions0reactionsComments1 comments
The Therapeutic Effects of Sharing Your AxSpA StoryWhen I was first diagnosed with ankylosing spondylitis, a form of axial spondyloarthritis, I wasn’t sure how to talk about my experience. Honestly, I didn’t want to think about what...Reactions0reactionsComments1 comments
My Symptoms May Be Invisible, But I am NotA lot of my symptoms are very much invisible. When I was first diagnosed, I felt like I was invisible. Within the past year and a half, I’ve made it...Reactions0reactionsComments0 comments
Q and A About My Disease, Ankylosing SpondylitisA: Haha, it's pronounced: AN-KUH-LOH-SING SPON-DILL-EYE-TIS. It's a degenerative inflammatory disease that is mediated by the immune system and primarily affects my spine, which means the disease is inflammatory in...Reactions0reactionsComments2 comments
What Fatigue Really Feels LikeThe concept of a "rest day" never really crossed my mind until I found myself experiencing serious ankylosing spondylitis fatigue. About a year before my diagnosis is when I started...Reactions0reactionsComments1 comments
Enthesitis and Ankylosing Spondylitis: Part 2"Centipede to the physician: Doc, when my feet hurt, I hurt all over." In Part 1 of this discussion, I talked about how foot pain can be linked to ankylosing...Reactions0reactionsComments7 comments
How To Keep Your Head Up Through The Diagnosis ProcessWe all have different experiences with our diagnoses. Some of us have to wait several years, see countless doctors, and do numerous different tests before getting some answers. Others are...Reactions0reactionsComments0 comments
I Developed Peripheral Spondyloarthritis; Here's What That MeansThere are two main categories of spondyloarthritis: axial spondyloarthritis and peripheral spondyloarthritis. Chances are, if you are reading this, you or someone you know falls under the axial spondyloarthritis category...Reactions0reactionsComments21 comments
Eye Irritation: My Journey With IritisHave you ever felt like you had a piece of dirt stuck in your eye, and no matter how many times you rinsed it, or how many drops you used...Reactions0reactionsComments13 comments
Heat Therapy for Joint PainSpending an hour soaking in a nice hot bubble bath with a good book is one of my favorite ways to relax and destress, especially on a blustery winter or...Reactions0reactionsComments2 comments
I Get Less Flares, and I Am Ready for Them: Building an AxSpA Flare ToolkitI can happily say that since I started to take biologics for my AxSpA, I get less flares. These were debilitating, creating swelling in my feet and knee, making each...Reactions0reactionsComments0 comments
Imagining the Perfect World for People with Chronic IllnessLiving with a chronic illness often feels like managing a war between my body and the world around me — a world that was simply not built for the chronically...Reactions0reactionsComments1 comments
I've Got COVID: Here's My StoryI had a pretty terrible March 2021. My father went into emergency overnight surgery after a routine operation that went badly. He thought he was going to die, and I...Reactions0reactionsComments2 comments
Struggling at WorkIt’s 4am and my alarm clock goes off. It’s done this 3 days in a row now. I drag myself out of bed, pour a cup of coffee and drink...Reactions0reactionsComments1 comments
My Chrome PartsI wish to share a bit about my journey with hip replacements. Not to scare people that this will happen when you have AS, but to take away the fear...Reactions0reactionsComments6 comments