Fibromyalgia, the Unannounced Passenger…Once my axial spondyloarthritis was under control with a prescription of biologics and physiotherapy, on paper I was sorted. Yet, pain and fatigue were there. At that time, I was...Reactions0reactionsComments2 comments
My Top 5 Comfort Must-Haves For ASWhen I started experiencing symptoms of AS, comfort suddenly became the forefront of my life. If you suffer from AS, then you probably know the struggle of always trying to...Reactions0reactionsComments15 comments
Getting Hygge On Flare-Up DaysI've taken a very intentional approach to how I use my space when I'm in a flare-up. If I'm going to be sleepy or in pain, I may as well...Reactions0reactionsComments1 comments
Letting Go of What You Can't ControlThe easiest and most logical thing in theory, and for me, incredibly difficult to put in practice. I found the concept a bit tricky before I had AS. I found...Reactions0reactionsComments1 comments
Yoga is a Safe and Cheerful Companion to my AxSpAI came across yoga a few years back now. I think I was looking for something a little spiritual and slow pace, which would help me to reconnect with my...Reactions0reactionsComments5 comments
Physical Therapy FAQ: Part TwoEditor's note: This is Part 2 of Katie's article. Please read Part 1 of Physical Therapy FAQs first!Physical therapists (PTs) are highly trained movement specialists who have a breadth of...Reactions0reactionsComments0 comments
My Life is Not SadI’ve noticed through talking with a few friends, and meeting new people, that I get a lot of pity when I mention that I’m sick. If there’s one thing I...Reactions0reactionsComments0 comments
No, You Didn't Give Yourself AxSpa or ASI hear a lot of people saying that they feel they're in some way responsible for their chronic illness (like this MultipleSclerosis.net writer), as if they did something wrong —...Reactions0reactionsComments2 comments
My Experience With Humira And LDNBefore being diagnosed with AS (and fibromyalgia), I was the type of person who would only take medication if I felt it was absolutely, undoubtedly necessary. The idea of popping...Reactions0reactionsComments1 comments
Cultivating Resilience In Hard Times 101: SuppliesI'm writing to you in September, the 50th month of 2020, in the year of our Despotic Overlord COVID-19. By now, we've all faced the juggernaut that is running errands...Reactions0reactionsComments1 comments
Getting Through the Day: A Vlog With Auldyn & KeeganOur AS advocates, Auldyn and Keegan, are married with a toddler...and Keegan lives every day as a stay-at-home dad with ankylosing spondylitis. In this video, they talk about getting through...Reactions0reactionsComments0 comments
Living With Axial Spondyloarthritis & FibromyalgiaWhen you live with axial spondyloarthritis, the pain is constant. Not to mention the brain fog, extreme fatigue, stiffness, trouble sleeping, and more. Many people who live with AxSpA also...Reactions0reactionsComments0 comments
Three Months Of CBD For Chronic PainI decided to start using CBD (cannabidiol, not to be confused with marijuana!) to manage my anxiety and mental health issues, which can be exacerbated by axial spondyloarthritis, and my...Reactions0reactionsComments5 comments
Specialist Access in Medically Underserved CommunitiesLooking back, I now know how fortunate I’ve been when it comes to healthcare access. When I was younger, I didn’t spend one minute worrying about access to healthcare -...Reactions0reactionsComments1 comments
Medication FrustrationIt’s a hurry up and wait process. From the first doctor’s visit through to now, it has been a journey of constant waiting. It starts with a doctor’s visit, then...Reactions0reactionsComments2 comments
What Happened to my Heat Tolerance?I used to absolutely love summer. I would tan, go out for day trips a lot, and spend days on the beach. Summer is still my favorite season, but I’ve...Reactions0reactionsComments19 comments
Anti-Inflammatory Banana Bread for SpondyloarthritisI have a habit of buying bananas at the grocery store thinking I'll eat them up by midweek. As the days whisk by, they turn from slightly green to bright...Reactions0reactionsComments5 comments
Does Ankylosing Spondylitis Cause Nausea?There are many unwelcomed symptoms of ankylosing spondylitis (AS). The fatigue, brain fog, and pain are enough to cope with. But many people living with AS also live with digestive...Reactions0reactionsComments5 comments
What Do You Know About Rheumatic Diseases?What is a rheumatic disease? A rheumatic disease is an autoimmune and inflammatory condition that causes the body’s immune system to attack a person’s joints, muscles, bones, and organs. There...Reactions0reactionsComments0 comments
How I Eased Myself Back Into Fitness After My AS DiagnosisFor the past few weeks, I have been working my way back into my fitness routine. Before the onset of my AS, I loved pushing my body to its limits...Reactions0reactionsComments8 comments