Why I Had to Switch BiologicsAfter a long journey to get a diagnosis (see my series entitled "7 Years in No Diagnosis Land") and a bad experience...reactions12comments
Muscle Spasms and Axial SpondyloarthritisWhen you google AS there is a specific number of symptoms and a definition of what you should feel like. This is incorrect; it is different...reactions38comments
Ankylosing Spondylitis: Navigating Fear and ResilienceI've been on a weighty journey—a journey characterized by declining health and disability. It is undeniably cumbersome. Chronic illness has disrupted the...reactions6comments
Is My Axial Spondyloarthritis My Fault? No!I recently got asked by someone I met through coaching and lifestyle self-management how I got AxSpa? That is a very good...reactions12comments
Acceptance and Transition After an AxSpa DiagnosisI am facilitating a course on lifestyle management for people living with long term conditions, with difficult life circumstances, and in need...reactions5comments
Finding Acceptance, Belonging, and Embracing Your JourneyLiving with a chronic inflammatory condition like axial spondyloarthritis (AxSpA) can often make us feel like outsiders in a world that doesn't...reactions6comments
The 2024 Social Health Awards ProgramEditorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards...reactionscomments
Comparison and Ankylosing SpondylitisWe’ve probably all heard the phrase "comparison is the thief of joy." People usually say this to mean that you should stop...reactions2comments
Coming Out at the Doctor's OfficeI have seen countless physicians in four different states in the U.S. and my experience with heteronormativity is generally the same. Often...reactions1comment
Chronic Illness: What Have You Done for Yourself?I am tired frequently, meandering through the days, dragging my impaired body from room to room, the fatigue so overwhelming. Forget exercise...reactions3comments
Mindfulness and ASWe all know that stress is the worst thing for an individual with AS. I know this, and for me having AS...reactions1comment
My Most Valuable AxSpa Strategy Is PacingAfter my diagnosis with AxSpa one doctor told me that I needed to pace myself to manage chronic pain and chronic fatigue...reactions8comments
Diet Changes That Helped My ASLiving with condition like AS is not as simple as taking medicine and getting on with it. Medication can only do so...reactions28comments
Taking Risks as a Chronically Ill PersonAs a sick and disabled person, it isn’t very often that I actually get to take risks or even have the choice...reactions3comments
Ask This to Your Loved One With AxSpa"How are you feeling today?" "How are you really feeling today?" The question I wish someone would reach out and ask me...reactions1comment
Battling the Thoughts in My HeadHave you ever had thoughts you just don’t want to have, and wish they would leave you alone? Have you ever had...reactions4comments
Axial SpA and IBD: A Huge ReminderI recently had a hell of a week; it was painful and laborious. I've been side-tracked with symptoms of inflammatory bowel disease...reactions6comments
What You Don’t See: Living With an Invisible IllnessLiving with an invisible illness has taught me a couple of things: (1) people make assumptions about my condition based on what...reactions9comments
Reminders For Days When I Haven’t SleptTyped into the notes section of my phone are a collection of messages that no one sees but me. I think of...reactions5comments
New Year's AS-olutionsIt’s that time of year again when something as minor as a number at the end of the date changing makes us...reactions6comments
