The Downside of Covering Up How I FeelI don’t like looking sick. On days when I’m battling the pain or fatigue of AS it makes me feel better to...reactions6comments
I Learned to Let Go of My Expectations in OthersFor a very long time, I brooded and sulked over the idea that many people around me either didn’t care about my...reactions4comments
Nerve Block Injections for ASI have been getting biologic infusions every month for almost 2 years. While it reduces inflammation and slows down fusion, it doesn't...reactions9comments
Going Out for a Day and the ResultAbout a month ago now, I went downtown for a day trip with one of my close friends. I knew immediately when...reactions2comments
Irritable Bowel Syndrome and Axial SpondyloarthritisAfter my diagnosis of AxSpa, and once I was already taking Humira (one of the biologics), I experienced some gastrointestinal (GI) issues...reactions2comments
I Tried Alternative Therapies Before Medication And I Regret It Unlike some of my peers with ankylosing spondylitis, my first scan showed undeniable evidence of the disease. Bilateral inflammation and erosion in...reactions25comments
Living With Axial Spondyloarthritis & FibromyalgiaWhen you live with axial spondyloarthritis, the pain is constant. Not to mention the brain fog, extreme fatigue, stiffness, trouble sleeping, and...reactionscomments
The Humira HangoverSince Keegan, my husband with AS, began taking Humira over 2 years ago, he's always talked about a "Humira hangover." He'd describe...reactions28comments
Finding a New Biologic After the First FailsJust when things felt like they were getting steady with Keegan’s treatment plan, that all went out the window. We’ve been through...reactions1comment
Living Well With AxSpa: My Best TipsI've been living with this chronic illness now for many years. I believe it started when I was young. Going through high...reactions1comment
My Mystery Skin IssuesSometimes I think my immune system thinks it’s a Pokemon trainer – when it comes to health conditions it feels like it’s...reactions2comments
Balancing Understanding and Boundaries With Friends and FamilyLiving with an autoimmune condition like axial spondyloarthritis (axSpA) can be a challenging journey, filled with physical and emotional hurdles. Sometimes, the...reactions5comments
Being Whole With Ankylosing SpondylitisI have to admit that I rarely feel whole. I know my body is physically whole; in fact, I am in better health...reactionscomments
Making Time To Help MeBefore I got sick, I would never make time for myself. I was always on the go. Working many hours while attending...reactions1comment
Advice For My Younger SelfI knew — in some intuitive way — that I had ankylosing spondylitis (or something similar) about a decade before I got...reactions7comments
Ask the nr-AxSpA Advocates: Diagnosis and Progression WorriesEditor's note: You can read Part 1 of this series here. The spondyloarthritis community has changed a lot these past few years...reactions1comment
Non-Radiographic AxSpa and Spinal InjuriesOne of the hardest things to deal with when living with axial spondyloarthritis is determining the source of pain and whether to...reactions7comments
Making a Difference After Someone's New DiagnosisThis summer, my dad introduced me to an acquaintance he made while playing "pétanque," the famous French boules game. He asked me...reactions2comments
The Four Minute Mile: Setting AxSpa GoalsThe four minute mile--many people know how the story goes. No one was able to run a sub 4-minute mile and it...reactions2comments
Old Boots and Ankylosing Spondylitis I threw away my old boots today. These were not just any old boots. These were boots I bought in August 1973...reactions8comments
