Getting Support Is NOT Giving UpI’m a support group guy! Some advocates are good at policy, others are good at knowing the latest medical trends, but I love leading support groups! That is where my...Reactions0reactionsComments8 comments
Botox Injections for Muscle SpasmsI’ve had two pain management procedures. First being steroid injections into my muscle spasms, a very painful experience that did not work. My second pain management procedure was Botox injections...Reactions0reactionsComments4 comments
Why I Had to Switch BiologicsAfter a long journey to get a diagnosis (see my series entitled "7 Years in No Diagnosis Land") and a bad experience with one of the DMARDS, I was finally...Reactions0reactionsComments12 comments
COVID-19 Pandemic and Ankylosing Spondylitis: Patient StoriesSince the beginning of the COVID-19 pandemic, so many people have been affected by stress, the unknown, and the changing landscape. However, our ankylosing spondylitis community has been particularly affected...Reactions0reactionsComments0 comments
How I Finally Improved My Sleeping PatternIf you read my previous article "Trouble Falling AS-sleep," you will know just how abysmal my sleep pattern had become. After writing the article I arranged a phone appointment with...Reactions0reactionsComments17 comments
How I Balance My Social Life With AxSpAIt’s no secret that AS has changed my life forever. Five years ago I was a completely different human. I was able to work, go out places, and see people...Reactions0reactionsComments6 comments
Arthritic Hands and Talk To Text for Ankylosing SpondylitisOver the past year, I have started experiencing more and more remarkably noticeable finger joint pain. I’ve always had a little bit of wrist pain, too, as I am a...Reactions0reactionsComments5 comments
Real Life Self-Care TipsI’m not a fan of mainstream self-care culture because it tends to crowd the space for essential health and wellness practices with luxury spa nonsense. This pampering version of self-care is...Reactions0reactionsComments4 comments
Chronic Illness Burnout: Taking a Step BackI've been part of the Health Union community for two years! And I'm so proud of that fact. I pride myself on connecting with so many of you here and...Reactions0reactionsComments6 comments
Interview With Writer and Artist Bára HladíkEditor's note: I truly love sharing stories from people who live with ankylosing spondylitis; from the newly diagnosed, to the young, old, people of all genders, with all different experiences...Reactions0reactionsComments4 comments
My Life in Ankylosing Spondylitis RemissionI was skimming the notes from my recent rheumatology appointment when I saw the word. “Remission.” A word I’d heard used most often to describe cancer patients, but also to...Reactions0reactionsComments12 comments
An Unnerving Complication of AxSpa: CostochondritisAxial spondyloarthritis is a systemic disease, so I know it has the potential to affect any organ system (and therefore any area) of the body. But when a new symptom...Reactions0reactionsComments14 comments
Food for Thought: Why Diet Change Didn’t Work for MeBeing told that you will have to take medication for the rest of your life is scary. What if it stops working? What if you have a weird reaction to...Reactions0reactionsComments14 comments
Nerve Block Injections for ASI have been getting biologic infusions every month for almost 2 years. While it reduces inflammation and slows down fusion, it doesn't help much with pain and fatigue. I still...Reactions0reactionsComments9 comments
My Experience Living With Chronic PainI have been living with chronic pain for 4 years now. It began in 2017 when I was working as an account manager for a luxury car service, and I...Reactions0reactionsComments11 comments
Having a Productive Day With Less Usable HoursI saw a post on Instagram not too long ago discussing how many chronically ill individuals have less usable hours in a day than those who are able-bodied and healthy...Reactions0reactionsComments4 comments
SpA Awareness Month 2022May is Spondyloarthritis Awareness Month, and we're asking you to help us bring attention to what life is like living with ankylosing spondylitis. Take part in our awareness month activities...Reactions0reactionsComments0 comments
Spondyloarthritis Awareness Month 2022May is Spondyloarthritis Awareness Month! Being diagnosed with axial spondyloarthritis (AxSpa) can bring huge lifestyle changes for many. This can look like going out less, changing diets, visiting the doctor...Reactions0reactionsComments0 comments
Misdiagnosed As a PlayerAs someone with multiple chronic illnesses, I am no stranger to being misdiagnosed. This is usually by doctors attempting to find the latest reason for my misbehaving immune system. I...Reactions0reactionsComments14 comments
Spondyloarthritis Awareness Month 2022 GiveawayThe Spondyloarthritis Awareness Month Giveaway is now closed. Thank you for your interest! We are celebrating Spondyloarthritis Awareness Month with the theme "A New Normal" and an extra special giveaway...Reactions0reactionsComments0 comments