An Open Letter of Explanation to My FriendsOne of the most frustrating aspects of living with a chronic condition like AS is that often our friends and family don’t fully understand our situation. I can’t say I...Reactions0reactionsComments0 comments
Flare Up Emotional Support ToolkitWhen I'm in a major flare-up, I already know what I need to do in terms of physical pain management. I need to make sure I’m taking my medication, I...Reactions0reactionsComments6 comments
Early Signs of AS That I Didn't Pick Up OnI am often asked if there were early warning signs prior to my AS diagnosis. I used to believe that there weren’t any and it all happened suddenly. I’ve spoken...Reactions0reactionsComments0 comments
Trying To Find Some Positivity Out of My Rheumatology AppointmentToday was my 3 month follow up appointment with my rheumatologist. I am trying keep a smile on my face and find some positivity out of today's appointment. I don't...Reactions0reactionsComments1 comments
My Meal Prep HeroesMy paternal grandmother was Team Meal Prep before it was cool. She had no choice, working full-time while raising 4 kids on her own, taking in sewing and commissions, and dealing...Reactions0reactionsComments4 comments
Having Depression and Ankylosing SpondylitisI feel like it’s almost impossible to have AS and not have mental health issues, too. It just affects every part of our lives. Having depression and AS feels like...Reactions0reactionsComments4 comments
The Easing of COVID Restrictions and My Fourth VaccineAs Covid restrictions ease here in Ireland, my anxiety levels are doing the opposite. I understand that we can’t live forever in a lockdown, we as a world need to...Reactions0reactionsComments3 comments
Signs Someone is Struggling With Their IllnessThere’s a lot of weight that comes with living with a chronic illness. We often don’t show it, because if we did surrender to that struggle, it would be difficult...Reactions0reactionsComments0 comments
Breaking the Vicious CycleI’ve returned to that point again, one I’m sure you’ll recognize. The dreaded flare. Bit by bit the pain has crept back in, interrupting my sleep and turning me into...Reactions0reactionsComments3 comments
Spiritual Health, Caregiving, and ASWhile not a topic that pops up often, it’s one that’s close to my heart. The journey I’ve taken with Keegan, my husband with AS, shifted my perspective on spirituality...Reactions0reactionsComments2 comments
A Realistic Outlook on ExerciseIf you read my articles "An Unrealistic Outlook on Exercise" and the "All or Nothing Approach" you'll know that I haven't been successful with finding an exercise program that works for me...Reactions0reactionsComments14 comments
3 Tips for Caregivers When They’re Not NeededSometimes Keegan, my husband with AxSpa, doesn’t need me. Sometimes, Keegan is back at 80% or 90% or 99%, and I am not needed. It’s a strange place to be...Reactions0reactionsComments4 comments
A Piece of My HeartI woke this morning around 4:30 a.m. thinking of my father. When I was a child, he was up at the crack of dawn watching the sunrise, drinking his instant...Reactions0reactionsComments3 comments
March Is the Worst Month (and the Best Month)I’m sitting here after a long day of work along with Keegan, my husband with AS, talking about how the weather wrecks his body every spring. For Keegan, while the...Reactions0reactionsComments1 comments
There Is No Universal AS ExperienceOne of the things that really helped me understand and move through some of the grief and confusion of my AS diagnosis was the realization that not everyone with ankylosing...Reactions0reactionsComments4 comments
Self-Care For Spoonies: More Than A BuzzwordThe National Institute on Mental Health says that self-care “means taking the time to do things that help you live well and improve both your physical health and mental health.”...Reactions0reactionsComments4 comments
In Sickness, and in Health“In sickness and in health” is a pretty common wedding vow, I don’t know who wrote it, but their script is a best seller. Brides and grooms say this vow...Reactions0reactionsComments1 comments
Take the Health and Media Habits Survey!The Media Habits Survey is now closed. Thank you for your interest! Managing a chronic condition is not easy and can be physically and mentally exhausting. What types of media...Reactions0reactionsComments0 comments
Lifting COVID Restrictions Makes Me NervousIn 2022, everyone is extremely sick of the COVID-19 pandemic. Trust me, so am I. I’m just not so eager to completely get back to normal, and here’s why. I...Reactions0reactionsComments1 comments
Creating Routines With Unpredictable SymptomsCultivating and sticking to a strict routine when your symptoms can change, worsen or arise quite suddenly can be challenging to say the least. I have always been someone who...Reactions0reactionsComments3 comments