How I Am Spending Christmas This YearChristmas has been one of my favorite holidays, as it is one holiday that brings joy to everyone. It is a holiday that also brings everyone closer together. All year-round... By Nicky Flikas3 min readBookmark for laterReactions 0 reactions Comments4 comments
Making Time To Help MeBefore I got sick, I would never make time for myself. I was always on the go. Working many hours while attending college, meeting my boyfriend and my friends. I... By Ali Long3 min readBookmark for laterReactions 0 reactions Comments1 comments
James and René: Chatting About Running, AS Diagnosis, and MoreOne thing I’ve noticed on my journey with chronic illness is that no two spoonies have the same story. The same condition can affect everyone differently, both mentally and physically... By James Hollens4 min readBookmark for laterReactions 0 reactions Comments3 comments
Returing To Work With Axial SpondyloarthritisIt’s been a long bumpy and extremely tiring ride. I been off work on sick leave, for the past 2 and a half years. To be honest I still feel... By Nicky Flikas3 min readBookmark for laterReactions 0 reactions Comments5 comments
If I Were on the Outside Looking InOne of the most frustrating things about having an invisible illness is knowing that other people can’t see the pain I’m in. Although I talk and write about it often... By Cassia Pelton2 min readBookmark for laterReactions 0 reactions Comments6 comments
How My Illness Woke Me Up to the Life I Wanted to LiveWe, as humans, are creatures of habit. Sometimes if we are not careful, we can get lost in the daily hustle and bustle of our lives and the schedules and... By Katie Saville3 min readBookmark for laterReactions 0 reactions Comments6 comments
Balancing Mental Health With AxSpALiving with the chronic pain of AxSpA can make you exhausted, sometimes to the point of depression. It can even make you anxious when you aren’t able to complete tasks... By Pamela White2 min readBookmark for laterReactions 0 reactions Comments7 comments
How Writing It Down Has Kept Me SaneI have always wanted to be a writer. Secretly. Secretly, because the world I grew up in didn’t have writers in it. Or writers didn’t come from, or inhabit, my... By Steve Tuffin5 min readBookmark for laterReactions 0 reactions Comments4 comments
Five Things I Learned About Dietary Change for ASGluten-free, paleo, dairy-free, nightshade-free, starch-free, GAPS...if there’s a diet recommended for AS, I’ve probably tried it. Soon after diagnosis I set off down the dietary modification track in search of... By Anne-Marie Raymond3 min readBookmark for laterReactions 0 reactions Comments3 comments
AxSpa and HysterectomyWhen it comes to diseases that include a lot of inflammation, we often see a lot of co-existing illnesses. My struggles started at 18 when my menstrual cycle suddenly took over... By Jes Hojsan2 min readBookmark for laterReactions 0 reactions Comments3 comments
Building a Care TeamBeing chronically ill means that doctor’s appointments are routine and frequent. It also likely means you have several different types of doctors you see. Finding and building a care team... By Pamela White2 min readBookmark for laterReactions 0 reactions Comments2 comments
The All or Nothing Approach The all or nothing approach. This seems to be how I live my life. Even before I got sick. I seem to have always had an all or nothing approach... By Ali Long2 min readBookmark for laterReactions 0 reactions Comments1 comments
How a Proud Person Learned to Ask for HelpI’ve always tried to be someone you can count on when the chips are down. It brings me joy to offer help and support to others, whether it’s dropping off... By Anne-Marie Raymond2 min readBookmark for laterReactions 0 reactions Comments2 comments
Resetting After a Bad DayOn days where the emotional baggage that comes with living with a chronic illness pours down on us, sometimes it feels like there is no getting out of it. That... By Sarah Lee2 min readBookmark for laterReactions 0 reactions Comments5 comments
Switching Doctors When You Want Better CareI’d had the same family doctor for 12 years. She was great to me for a long time, but as I wrote about recently, she gaslit me about my fatigue... By Steff Di Pardo3 min readBookmark for laterReactions 0 reactions Comments3 comments
AS and ConfidenceI have always thought I was a confident person. I have insecurities about certain things, as most people do, but I feel lucky to have always believed in my self-worth... By Fiona Olegasegarem3 min readBookmark for laterReactions 0 reactions Comments2 comments
Tips on Surviving the HolidaysThe holidays are just around the corner. I can just feel it. The Christmas music already playing on the radio and the beautiful decorated lights, around the neighborhood, are already... By Nicky Flikas3 min readBookmark for laterReactions 0 reactions Comments13 comments
Cultivating Self-Fulfillment in a Hyper-Productive WorldOne thing I’ve learned through coming out of remission and adopting other symptoms the last two years is this: people are obsessed with productivity. Many people hold such high standards... By Sarah Lee2 min readBookmark for laterReactions 0 reactions Comments2 comments
Going Back to the BasicsI think this pandemic has been useful in terms of revising what works and doesn’t work for me in terms of managing AxSpa. Being at home a lot, sitting too... By Julie Vallortigara3 min readBookmark for laterReactions 0 reactions Comments7 comments
How My Music Helps Me Relax: 5 SongsI’ve been thinking about some of the things I do to relax. Not just relaxing my bones or my body, but relaxing my mind – de-stressing my overactive brain. I... By Steve Tuffin5 min readBookmark for laterReactions 0 reactions Comments2 comments