The 3 Biggest Shocks of Becoming a CaregiverSome days, I don't really feel much like a caregiver to my husband, Keegan, who's suffered from AS for more than 10 years. The routine of getting up at 5:30...Reactions0reactionsComments4 comments
My Journey to Yoga for ASGrowing up as a competitive skateboarder, the pain I experienced from the age of 15 in my “hips” (actually SI joints) was considered some sort of injury. This pain fluctuated...Reactions0reactionsComments11 comments
Writing An Article For the Spondylitis AssociationEditor's note: This article discusses weight and dieting. Have you ever heard of the Spondylitis Association of America (SAA)? I have been a passive member for about three years, and...Reactions0reactionsComments4 comments
Combating Chronic Fatigue: 3 Different Types of RestAs we all know, chronic fatigue is without a doubt one of the most challenging symptoms. It will outright stop you in your tracks and cause whatever balance you have...Reactions0reactionsComments6 comments
My Gradual Biologic JourneyI started on biologics about a year and a half ago. I was prescribed Humira on a bi-weekly cycle, meaning one injection every 14 days. I was told at the...Reactions0reactionsComments3 comments
Trying to Move When You Don’t Want ToMovement. Something we all know helps us with AS. Movement is medicine. Have you heard that before? I know I have. But what if we don’t want to move? I...Reactions0reactionsComments2 comments
It's Beginning to Look a Lot Like ChristmasAs the days get shorter, darker and much colder, my body can tell that it's winter. The cold aches my body and intensifies my pain and oh how it makes my spasms angry! Christmas is my favorite time of...Reactions0reactionsComments2 comments
How I Am Spending Christmas This YearChristmas has been one of my favorite holidays, as it is one holiday that brings joy to everyone. It is a holiday that also brings everyone closer together. All year-round...Reactions0reactionsComments4 comments
Making Time To Help MeBefore I got sick, I would never make time for myself. I was always on the go. Working many hours while attending college, meeting my boyfriend and my friends. I...Reactions0reactionsComments1 comments
James and René: Chatting About Running, AS Diagnosis, and MoreOne thing I’ve noticed on my journey with chronic illness is that no two spoonies have the same story. The same condition can affect everyone differently, both mentally and physically...Reactions0reactionsComments3 comments
Returing To Work With Axial SpondyloarthritisIt’s been a long bumpy and extremely tiring ride. I been off work on sick leave, for the past 2 and a half years. To be honest I still feel...Reactions0reactionsComments5 comments
If I Were on the Outside Looking InOne of the most frustrating things about having an invisible illness is knowing that other people can’t see the pain I’m in. Although I talk and write about it often...Reactions0reactionsComments6 comments
How My Illness Woke Me Up to the Life I Wanted to LiveWe, as humans, are creatures of habit. Sometimes if we are not careful, we can get lost in the daily hustle and bustle of our lives and the schedules and...Reactions0reactionsComments6 comments
Balancing Mental Health With AxSpALiving with the chronic pain of AxSpA can make you exhausted, sometimes to the point of depression. It can even make you anxious when you aren’t able to complete tasks...Reactions0reactionsComments7 comments
How Writing It Down Has Kept Me SaneI have always wanted to be a writer. Secretly. Secretly, because the world I grew up in didn’t have writers in it. Or writers didn’t come from, or inhabit, my...Reactions0reactionsComments4 comments
Five Things I Learned About Dietary Change for ASGluten-free, paleo, dairy-free, nightshade-free, starch-free, GAPS...if there’s a diet recommended for AS, I’ve probably tried it. Soon after diagnosis I set off down the dietary modification track in search of...Reactions0reactionsComments3 comments
AxSpa and HysterectomyWhen it comes to diseases that include a lot of inflammation, we often see a lot of co-existing illnesses. My struggles started at 18 when my menstrual cycle suddenly took over...Reactions0reactionsComments3 comments
Building a Care TeamBeing chronically ill means that doctor’s appointments are routine and frequent. It also likely means you have several different types of doctors you see. Finding and building a care team...Reactions0reactionsComments2 comments
The All or Nothing Approach The all or nothing approach. This seems to be how I live my life. Even before I got sick. I seem to have always had an all or nothing approach...Reactions0reactionsComments1 comments
How a Proud Person Learned to Ask for HelpI’ve always tried to be someone you can count on when the chips are down. It brings me joy to offer help and support to others, whether it’s dropping off...Reactions0reactionsComments2 comments