If I Were on the Outside Looking InOne of the most frustrating things about having an invisible illness is knowing that other people can’t see the pain I’m in. Although I talk and write about it often...reactions6comments
How My Illness Woke Me Up to the Life I Wanted to LiveWe, as humans, are creatures of habit. Sometimes if we are not careful, we can get lost in the daily hustle and bustle of our lives and the schedules and...reactions6comments
Balancing Mental Health With AxSpALiving with the chronic pain of AxSpA can make you exhausted, sometimes to the point of depression. It can even make you anxious when you aren’t able to complete tasks...reactions7comments
How Writing It Down Has Kept Me SaneI have always wanted to be a writer. Secretly. Secretly, because the world I grew up in didn’t have writers in it. Or writers didn’t come from, or inhabit, my...reactions4comments
Five Things I Learned About Dietary Change for ASGluten-free, paleo, dairy-free, nightshade-free, starch-free, GAPS...if there’s a diet recommended for AS, I’ve probably tried it. Soon after diagnosis I set off down the dietary modification track in search of...reactions3comments
AxSpa and HysterectomyWhen it comes to diseases that include a lot of inflammation, we often see a lot of co-existing illnesses. My struggles started at 18 when my menstrual cycle suddenly took over...reactions3comments
Building a Care TeamBeing chronically ill means that doctor’s appointments are routine and frequent. It also likely means you have several different types of doctors you see. Finding and building a care team...reactions2comments
The All or Nothing Approach The all or nothing approach. This seems to be how I live my life. Even before I got sick. I seem to have always had an all or nothing approach...reactions1comment
How a Proud Person Learned to Ask for HelpI’ve always tried to be someone you can count on when the chips are down. It brings me joy to offer help and support to others, whether it’s dropping off...reactions2comments
Resetting After a Bad DayOn days where the emotional baggage that comes with living with a chronic illness pours down on us, sometimes it feels like there is no getting out of it. That...reactions5comments
Switching Doctors When You Want Better CareI’d had the same family doctor for 12 years. She was great to me for a long time, but as I wrote about recently, she gaslit me about my fatigue...reactions3comments
AS and ConfidenceI have always thought I was a confident person. I have insecurities about certain things, as most people do, but I feel lucky to have always believed in my self-worth...reactions2comments
Tips on Surviving the HolidaysThe holidays are just around the corner. I can just feel it. The Christmas music already playing on the radio and the beautiful decorated lights, around the neighborhood, are already...reactions13comments
Cultivating Self-Fulfillment in a Hyper-Productive WorldOne thing I’ve learned through coming out of remission and adopting other symptoms the last two years is this: people are obsessed with productivity. Many people hold such high standards...reactions2comments
Going Back to the BasicsI think this pandemic has been useful in terms of revising what works and doesn’t work for me in terms of managing AxSpa. Being at home a lot, sitting too...reactions7comments
How My Music Helps Me Relax: 5 SongsI’ve been thinking about some of the things I do to relax. Not just relaxing my bones or my body, but relaxing my mind – de-stressing my overactive brain. I...reactions2comments
My AxSpA-To-Go StrategyWhen I first started taking biologics, first Humira and now Amgevita, multiple people encouraged me by telling me that many people “get back to living a normal life.” It was...reactions2comments
Committing to a Team With an Unpredictable IllnessI’ve been figure skating for much longer than I’ve been chronically ill. To me, nothing is more freeing than gliding across the ice, carving grooves with my blades, and feeling...reactions3comments
My Second Birthday With AxSpaMy second birthday being sick was thankfully a lot better than my first. I made a plan of what I wanted to do. I planned to rest in between so I could...reactions6comments
How I Approach The Holiday SeasonThe Christmas holidays are approaching! For me, this means taking time off work, traveling back home to be with family, eating delicious food, and making more time for rest and...reactions3comments