AxSpa and HysterectomyWhen it comes to diseases that include a lot of inflammation, we often see a lot of co-existing illnesses. My struggles started at 18 when my menstrual cycle suddenly took over...Reactions0reactionsComments3 comments
Building a Care TeamBeing chronically ill means that doctor’s appointments are routine and frequent. It also likely means you have several different types of doctors you see. Finding and building a care team...Reactions0reactionsComments2 comments
The All or Nothing Approach The all or nothing approach. This seems to be how I live my life. Even before I got sick. I seem to have always had an all or nothing approach...Reactions0reactionsComments1 comments
How a Proud Person Learned to Ask for HelpI’ve always tried to be someone you can count on when the chips are down. It brings me joy to offer help and support to others, whether it’s dropping off...Reactions0reactionsComments2 comments
Resetting After a Bad DayOn days where the emotional baggage that comes with living with a chronic illness pours down on us, sometimes it feels like there is no getting out of it. That...Reactions0reactionsComments5 comments
Switching Doctors When You Want Better CareI’d had the same family doctor for 12 years. She was great to me for a long time, but as I wrote about recently, she gaslit me about my fatigue...Reactions0reactionsComments3 comments
AS and ConfidenceI have always thought I was a confident person. I have insecurities about certain things, as most people do, but I feel lucky to have always believed in my self-worth...Reactions0reactionsComments2 comments
Tips on Surviving the HolidaysThe holidays are just around the corner. I can just feel it. The Christmas music already playing on the radio and the beautiful decorated lights, around the neighborhood, are already...Reactions0reactionsComments13 comments
Cultivating Self-Fulfillment in a Hyper-Productive WorldOne thing I’ve learned through coming out of remission and adopting other symptoms the last two years is this: people are obsessed with productivity. Many people hold such high standards...Reactions0reactionsComments2 comments
Going Back to the BasicsI think this pandemic has been useful in terms of revising what works and doesn’t work for me in terms of managing AxSpa. Being at home a lot, sitting too...Reactions0reactionsComments7 comments
How My Music Helps Me Relax: 5 SongsI’ve been thinking about some of the things I do to relax. Not just relaxing my bones or my body, but relaxing my mind – de-stressing my overactive brain. I...Reactions0reactionsComments2 comments
My AxSpA-To-Go StrategyWhen I first started taking biologics, first Humira and now Amgevita, multiple people encouraged me by telling me that many people “get back to living a normal life.” It was...Reactions0reactionsComments2 comments
Committing to a Team With an Unpredictable IllnessI’ve been figure skating for much longer than I’ve been chronically ill. To me, nothing is more freeing than gliding across the ice, carving grooves with my blades, and feeling...Reactions0reactionsComments3 comments
My Second Birthday With AxSpaMy second birthday being sick was thankfully a lot better than my first. I made a plan of what I wanted to do. I planned to rest in between so I could...Reactions0reactionsComments6 comments
How I Approach The Holiday SeasonThe Christmas holidays are approaching! For me, this means taking time off work, traveling back home to be with family, eating delicious food, and making more time for rest and...Reactions0reactionsComments3 comments
Switching Biologics With AxSpaSwitching meds. No big deal right?! This one in particular wasn’t successful but not to worry, there are so many biologics on the market to try. Something as simple as...Reactions0reactionsComments11 comments
Relationship Red Flags: Can They Really Accept Your Illness?There was a time in my life where I had been in a relationship for about four years. After this relationship fell apart I began to dissect it and realized...Reactions0reactionsComments3 comments
How Journaling Has Helped My Chronic Illness JourneyI’ve loved journaling since I was a kid. Whether it was a secret diary stored in that special hiding spot or a notepad filled with letters, quotes and scattered doodles...Reactions0reactionsComments0 comments
Accepting a Chronic Illness Takes TimeIt has taken me a long time to accept that this disease is here to stay with me and it’s not going anywhere, any time soon. A lot of the...Reactions0reactionsComments11 comments
Learning to Love My New, Disabled BodyMy whole life I’ve been skinny. With comments as a child like “you’re a twig!” and “you’re so bony”, I got used to that being a part of who I...Reactions0reactionsComments1 comments