Switching Doctors When You Want Better CareI’d had the same family doctor for 12 years. She was great to me for a long time, but as I wrote about recently, she gaslit me about my fatigue...Reactions0reactionsComments3 comments
AS and ConfidenceI have always thought I was a confident person. I have insecurities about certain things, as most people do, but I feel lucky to have always believed in my self-worth...Reactions0reactionsComments2 comments
Tips on Surviving the HolidaysThe holidays are just around the corner. I can just feel it. The Christmas music already playing on the radio and the beautiful decorated lights, around the neighborhood, are already...Reactions0reactionsComments13 comments
Cultivating Self-Fulfillment in a Hyper-Productive WorldOne thing I’ve learned through coming out of remission and adopting other symptoms the last two years is this: people are obsessed with productivity. Many people hold such high standards...Reactions0reactionsComments2 comments
Going Back to the BasicsI think this pandemic has been useful in terms of revising what works and doesn’t work for me in terms of managing AxSpa. Being at home a lot, sitting too...Reactions0reactionsComments7 comments
How My Music Helps Me Relax: 5 SongsI’ve been thinking about some of the things I do to relax. Not just relaxing my bones or my body, but relaxing my mind – de-stressing my overactive brain. I...Reactions0reactionsComments2 comments
My AxSpA-To-Go StrategyWhen I first started taking biologics, first Humira and now Amgevita, multiple people encouraged me by telling me that many people “get back to living a normal life.” It was...Reactions0reactionsComments2 comments
Committing to a Team With an Unpredictable IllnessI’ve been figure skating for much longer than I’ve been chronically ill. To me, nothing is more freeing than gliding across the ice, carving grooves with my blades, and feeling...Reactions0reactionsComments3 comments
My Second Birthday With AxSpaMy second birthday being sick was thankfully a lot better than my first. I made a plan of what I wanted to do. I planned to rest in between so I could...Reactions0reactionsComments6 comments
How I Approach The Holiday SeasonThe Christmas holidays are approaching! For me, this means taking time off work, traveling back home to be with family, eating delicious food, and making more time for rest and...Reactions0reactionsComments3 comments
Switching Biologics With AxSpaSwitching meds. No big deal right?! This one in particular wasn’t successful but not to worry, there are so many biologics on the market to try. Something as simple as...Reactions0reactionsComments11 comments
Relationship Red Flags: Can They Really Accept Your Illness?There was a time in my life where I had been in a relationship for about four years. After this relationship fell apart I began to dissect it and realized...Reactions0reactionsComments3 comments
How Journaling Has Helped My Chronic Illness JourneyI’ve loved journaling since I was a kid. Whether it was a secret diary stored in that special hiding spot or a notepad filled with letters, quotes and scattered doodles...Reactions0reactionsComments0 comments
Learning to Love My New, Disabled BodyMy whole life I’ve been skinny. With comments as a child like “you’re a twig!” and “you’re so bony”, I got used to that being a part of who I...Reactions0reactionsComments1 comments
Setting Goals for a New YearSince I received my diagnosis, I kind of let go on making goals that I really want to achieve. I would like to change that, as a New year is...Reactions0reactionsComments0 comments
Having a Good Rheumatologist AppointmentAs sad as it is, having a good doctors’ appointment is harder than it seems to achieve. Far too often, I’ve had a not-so-great experience with a doctor, and I’m...Reactions0reactionsComments1 comments
Hands Off My Crutches!Mobility aids should be seen as a blessing for people like us with conditions that can affect our mobility. Surely it’s a no-brainer to leave the house on crutches or...Reactions0reactionsComments8 comments
Don't Let a Smile Fool YouBehind that smile of mine, hides many things, that I decide who to open up to and tell. Would you be able to tell that I have an invisible illness?...Reactions0reactionsComments0 comments
Major Surgery With AxSpAAfter a diagnosis of a chronic condition that degrades your joints over time, it isn’t surprising you may eventually need surgery. But grappling with surgery and recovery with a condition...Reactions0reactionsComments8 comments
Pain and SleeplessnessI’ll be honest, I’ve always had some trouble sleeping. As a kid it would take me several hours to fall asleep, but once I was asleep I’d be out like...Reactions0reactionsComments2 comments