How to Define Your Own Vision of Success in LifeRecently, I was asked a very interesting question as part of my work as a life coach: Do you think that success is determined by external factors or internally through...Reactions0reactionsComments0 comments
Time Slowed Down When I Became Chronically IllMy birthday was a couple of days ago and it got me thinking about the passage of time. Specifically, how it has slowed down for me ever since I got...Reactions0reactionsComments0 comments
How I “Celebrated” My 4 Year PainiversaryFebruary 11, 2017, was the first day my AS pain started. It was the day that started an entirely new chapter of my life that changed everything. I was only...Reactions0reactionsComments2 comments
A Huge Positive ChangeI realize that what I’m about to share won’t resonate with everybody. But if there are only a few people with whom my story resonates, my mission is a success...Reactions0reactionsComments9 comments
Did My Covid Vaccine Put Me Into A Flare?If you read my article How I Felt After My First Covid Vaccine, you'll know that I was very sick afterwards. I was sick for about 5 days. This is ok...Reactions0reactionsComments9 comments
6 Things That Make Fatigue The WorstIn my opinion, fatigue is the worst symptom of spondyloarthritis. Don’t get me wrong, the others deserve respect fitting the ruthless wrecking balls that they are. Pain excels at agony...Reactions0reactionsComments2 comments
Take the Person Before Patient SurveyThe Person Before Patient Survey is now closed. Thank you for your interest! What makes us the people we are? Living with a serious health condition like axial spondyloarthritis can...Reactions0reactionsComments0 comments
What Are Biosimilars?Biosimilars are highly similar to an already-approved biologic medication. Biologic medications (including biosimilars) are typically made from living organisms. Biologic medications may be generated from various sources, including human, animal...Reactions0reactionsComments0 comments
"Trapped" – A Poem by Sarah LeeOur advocate Sarah Lee lives with ankylosing spondylitis and used her experience with a chronic invisible illness as inspiration for her poem, "Trapped." Listen to her spoken word performance in...Reactions0reactionsComments1 comments
An Open Letter to My BodyI don’t think either of us remembers what it’s like not to be in pain. The days of waking up feeling rested, refreshed, full of energy, with infinite possibilities in...Reactions0reactionsComments3 comments
How To Manage The "Fat" TalkIf your BMI is 25+ you know all about The "Fat" Talk. Obesity heroes and villains morph over time, but the sentiment is relatively consistent. People gain weight by indulging...Reactions0reactionsComments2 comments
My Traveling Survival Guide: What I'm Packing and WhyThis month, I will be going on my first long-distance road trip since I was diagnosed with AS. While I am completely overjoyed at the prospect of getting a much-needed...Reactions0reactionsComments1 comments
Don't Compare Your Disease Experience to Celebs'When a celebrity is diagnosed with a chronic illness, there are usually articles splashed across every magazine and tabloid. Often, their diagnosis is used as clickbait, a cheap and careless...Reactions0reactionsComments2 comments
Effects of Heteronormativity in Healthcare on LGBTQ+ PatientsFrom the start, I want to be clear that I do not intend to paint with a broad brush here. There are many wonderful, empathetic practitioners out there in the...Reactions0reactionsComments1 comments
Driving Difficulties With Ankylosing SpondylitisEver since I was a teenager, I had one goal, which was to learn how to drive and get my license as soon as possible. I’m sure you can relate...Reactions0reactionsComments6 comments
Grief, Ankylosing Spondylitis, and a Tragedy in IndianapolisEditor's note: this article has a mention of gun violence. As I write this, in Indianapolis, about 15 miles south of me, a mass shooting has occurred at a FedEx...Reactions0reactionsComments2 comments
A Letter to My Past SelfDear past Ali, You will never believe how much you have grown. You are so strong. You’ve been through a lot. This past year has been a tough one for you. You were bed...Reactions0reactionsComments1 comments
To Biologic or Not to Biologic?"I'd recommend starting a biologic," Keegan's rheumatologist suggested at our first appointment. Keegan, my husband, and I were still wrapping our heads around the diagnosis he received only 6 months...Reactions0reactionsComments3 comments
My Mobility AidsDuring my thirty years so far of living with ankylosing spondylitis I had to make use of multiple aids. Glad that I could make use of them, though at the...Reactions0reactionsComments9 comments
Coming Out of Remission After 8 YearsIt wasn’t very often, if I even did at all, that I thought about what it would be like if I came out of remission. Transitioning into this new way...Reactions0reactionsComments1 comments