Always Being "On" With Chronic IllnessLiving with chronic illness means constantly feeling like you are tending to something, whether that be your physical body and its very...reactions3comments
Deciding Whether to Go Back to Work or NotIf you’ve read my other articles, you will know that before I got sick, I was a remarkably busy person. I used to work a lot...reactions11comments
Streaking For The Over 60s Might Be Just What's NeededAs I’ve got older, I’ve become less inhibited about certain things. I’d always believed (naively perhaps) a person got more inhibited as...reactions5comments
My Husband and I Stopped Sharing a Bed Because of ASIf you are anything like me, sleep is vital to your existence and it is non-negotiable for my pain management. And while...reactions6comments
3 Ways to (Gently) Work Out With AS on Flare DaysEveryone is at a different stage in their AS, which is why I'm recommending these three below ways to move with one...reactions7comments
My AxSpa JourneyI have lived with this condition for 30 years now. And I can say it has been a true rollercoaster ride for...reactions1comment
The Importance of Sunlight With ASI've lived in New York City for nearly 20 years — and for most of it, nature was just not a priority...reactions12comments
How To Be Heard With AxSpa: Doctor EditionHave you had a doctor make you feel like your pain wasn’t real? Or maybe they simplified your treatment by saying something...reactionscomments
My 5 Things For a Better DayI’ve changed so much during my 20 years with spondyloarthritis that my 24-year-old self probably wouldn’t know me. She lived a life...reactions2comments
I'm So Sick of Brain FogDo you know what brain fog is? Maybe you have it, you just don’t know the term. Brain fog is characterized by...reactions3comments
Hiking and DiscoveringLiving on a tropical island can surely be of great benefit during summer time. All the heat and high temperature makes you...reactions4comments
Dealing With FOMOKeeping up with the boundaries and limitations can often be challenging. When everyone we know is out with friends and family, or...reactions4comments
The Hidden Costs of AxSpACost (noun): something that is given, needed or lost in order to get a particular thing. Living with AxSpA comes at a...reactions3comments
Advocates Sharing With Advocates: René Interviews JamesOne thing that became extremely clear to me since I have joined the community is the difference in how everybody experiences AS...reactions4comments
Take the Managing Treatment and Medication SurveyThe Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a...reactionscomments
Dogs With PurposeAs I have been walking this summer, I have encountered two great new friends, and while neither of them has arthritis (at...reactions9comments
Am I Really Disabled?I am in my early twenties and people are often skeptical when I tell them that I am disabled. In their eyes...reactions6comments
Managing Everyday Tasks with AxSpaAs many of you already know, AS makes our lives a lot more difficult. Simple everyday tasks, that we once took for granted, become...reactions11comments
An Ode To Chronic FatigueYou know about that soul-crushing, relentless, haunting fatigue — the kind of fatigue that makes the walk to the kitchen feel like...reactions11comments
I've Hit Caregiver Burnout...Now What?I'm sitting here at lunch on a Friday thinking about how I'm going to get through the next 12 hours. I know...reactions2comments
