Degenerative Disc Disease and ASAnkylosing spondylitis (AS) and degenerative disc disease are both illnesses of the spine that share many of the same painful symptoms. Sometimes it is even hard for doctors to tell...Reactions0reactionsComments12 comments
I Get Less Flares, and I Am Ready for Them: Building an AxSpA Flare ToolkitI can happily say that since I started to take biologics for my AxSpA, I get less flares. These were debilitating, creating swelling in my feet and knee, making each...Reactions0reactionsComments0 comments
Imagining the Perfect World for People with Chronic IllnessLiving with a chronic illness often feels like managing a war between my body and the world around me — a world that was simply not built for the chronically...Reactions0reactionsComments1 comments
I've Got COVID: Here's My StoryI had a pretty terrible March 2021. My father went into emergency overnight surgery after a routine operation that went badly. He thought he was going to die, and I...Reactions0reactionsComments2 comments
Struggling at WorkIt’s 4am and my alarm clock goes off. It’s done this 3 days in a row now. I drag myself out of bed, pour a cup of coffee and drink...Reactions0reactionsComments1 comments
My Chrome PartsI wish to share a bit about my journey with hip replacements. Not to scare people that this will happen when you have AS, but to take away the fear...Reactions0reactionsComments6 comments
Living With AxSpA, Deciding to Have Children, and Genetic CounselingHaving children was never my top priority in life. Being a teenager, talking with my girlfriends about life plans, we had different views. Most of them wanted kids for sure...Reactions0reactionsComments0 comments
Foam Roller Basics and StretchingEditor's note: Please speak with your doctor before starting any new exercise program. A foam roller is a wonderful piece of exercise equipment that can be used in multiple ways...Reactions0reactionsComments1 comments
A Letter to my AS It’s one of those days, one of those days where the pain and fatigue to take over. Standing is too difficult. The fatigue makes me dizzy and the pain, well it’s...Reactions0reactionsComments1 comments
Understanding Over-the-Counter Pain ManagementThere are times when life with arthritis feels more like a trip to a shabby little haunted house than I'd like to admit. You know the kind I mean. They...Reactions0reactionsComments5 comments
Curmudgeonly JournalingAre you something of a curmudgeon? A chipper person hopes you'll say something like, "Dawn, how can you even ask that? I'm an eternal optimist shooting hearts from my eyes...Reactions0reactionsComments1 comments
Spondyloarthritis: Will and Motivation Toward WellnessThe 2020 holidays really affected me negatively, worse than years prior. Family at the house (albeit only 5 of us), over-spending, cooking larger meals, and ingesting sugar, salt, and alcohol...Reactions0reactionsComments2 comments
Watching a Loved One Go Through a Flare-UpBefore we knew they were called "flare-ups," I knew my husband, Keegan, was experiencing something like I'd never seen before. Except for maybe seeing a Youtube clip of a woman...Reactions0reactionsComments4 comments
I Tried Alternative Therapies Before Medication And I Regret It Unlike some of my peers with ankylosing spondylitis, my first scan showed undeniable evidence of the disease. Bilateral inflammation and erosion in my sacroiliac joints were found, and a positive...Reactions0reactionsComments25 comments
Tips for a Restful Night SleepFinding a restful night sleep with axial spondyloarthritis can be so hard. Between painsomnia, finding a comfortable position, and worrying about your next flare, drifting into dreamland can feel downright...Reactions0reactionsComments3 comments
What Can Axial Spondyloarthritis Give Back to You?Axial spondyloarthritis has taken a lot from all of us who have it. The life we thought we were going to have, the hobbies or passions we have had to...Reactions0reactionsComments2 comments
Hey, Rheumatologists: Do BetterI’m in a somewhat unique position as an ankylosing spondylitis patient. Not only am I a patient, but I’m also a chronic illness advocate and a medical writer. These realities...Reactions0reactionsComments1 comments
Grieving The Self Of YesterdayOne of the hardest things about living with a chronic illness, particularly a degenerative one, is that you are always grieving for your older selves. As the years go by...Reactions0reactionsComments1 comments
Drug Denial: I Think I Need Meds AgainIt's funny how chronic illness works. It really forces you into the present moment, in a weird way. When you're good and pain-free (or at least having minimal pain) you...Reactions0reactionsComments3 comments
A Letter to my ASDear Steff’s AS, Hi, it’s me, Steff. I want to write you a letter to air out both my grievances and my thank you’s. Sometimes I think you were sent...Reactions0reactionsComments6 comments