Hey, Rheumatologists: Do BetterI’m in a somewhat unique position as an ankylosing spondylitis patient. Not only am I a patient, but I’m also a chronic illness advocate and a medical writer. These realities...Reactions0reactionsComments1 comments
Grieving The Self Of YesterdayOne of the hardest things about living with a chronic illness, particularly a degenerative one, is that you are always grieving for your older selves. As the years go by...Reactions0reactionsComments1 comments
Drug Denial: I Think I Need Meds AgainIt's funny how chronic illness works. It really forces you into the present moment, in a weird way. When you're good and pain-free (or at least having minimal pain) you...Reactions0reactionsComments3 comments
A Letter to my ASDear Steff’s AS, Hi, it’s me, Steff. I want to write you a letter to air out both my grievances and my thank you’s. Sometimes I think you were sent...Reactions0reactionsComments6 comments
Due to AS Symptoms, I Chose to Quit My JobI was diagnosed with AS while I was an English teacher. From 2009-2017, I had the great privilege of teaching high school students how to express themselves, how to appreciate...Reactions0reactionsComments5 comments
Fight Fatigue and Get Your Energy BackA chronic condition like AxSpA comes with many different challenges and symptoms. Fatigue is one of the most common ones across people’s journeys. It can have a big impact on...Reactions0reactionsComments5 comments
Stress, Trauma, and Autoimmune Conditions: What Research RevealsPainful life experiences can take a toll on your physical and mental health. We know that stress and trauma raise your risk of illnesses like drug and alcohol misuse, mental...Reactions0reactionsComments0 comments
Alternative Options for Managing Chronic PainWhile doctors may prescribe pain medications for AxSpA, like NSAIDS, not everyone wants to take these prescriptions long-term, and some people don’t like the side effects of pain medications. Fortunately...Reactions0reactionsComments2 comments
Small Daily Healthy Habits: Lifestyle MattersWe all are on a different path and stage on our journeys with AS. Some of us with more symptoms or a faster progression, some needing to take anti-inflammatory and/or...Reactions0reactionsComments3 comments
AS Was A Wake Up CallWhen I was in graduate school, my life was messy. I was working at a bookstore that undervalued and underpaid its employees, I was dealing with the toxicity of a...Reactions0reactionsComments1 comments
Meeting Our Members: An Interview with BiancaAnthony from AnkylosingSpondylitis.net recently had the pleasure of interviewing one of our talented community members, Bianca. Bianca submitted a poem in our community story section, titled 5AM: A Poem About...Reactions0reactionsComments10 comments
Ask the nr-AxSpA Advocates: Diagnosis and Progression WorriesEditor's note: You can read Part 1 of this series here. The spondyloarthritis community has changed a lot these past few years as clinical diagnoses change, too. The common diagnosis...Reactions0reactionsComments1 comments
Chronic Illness, Sharing Stories, and VulnerabilityA chronic illness community can be an essential wellness tool. It allows you to surround yourself with people who just get it. But it's not always easy to share your...Reactions0reactionsComments0 comments
Redefining the Balance of Rest and ProductivityWe live in an age where people glorify productivity at an unhealthy volume. The “hustle” can’t stop and if you do, well, according to those who lead this kind of...Reactions0reactionsComments2 comments
Tips for Parents with a NewbornI'm sitting on my bed as I begin this article. Next to me is Keegan (my husband with AS) and my 8-week-old son, Elijah. We welcomed him in November 2020...Reactions0reactionsComments5 comments
In Defense of Fun: Chronic Illness ManagementI've been in a dark hole lately. The pain has gotten pretty intense and incredibly constant. Just when I think I'm doing ok, I go take a walk and my...Reactions0reactionsComments4 comments
How I Knew Humira Wasn’t For MeI was on Humira for 6 and a half months. I knew I should give it around 6 months to be completely sure if it was working for me or...Reactions0reactionsComments9 comments
Moving Day with Axial SpondyloarthritisMy wife, Stacia, and I have moved around a bit in the past decade, moving from Massachusetts to Texas to New Mexico and now to Colorado. With all of the...Reactions0reactionsComments3 comments
Interstitial Cystitis and Ankylosing Spondylitis: Is There A Connection?Two weeks ago, I was diagnosed with interstitial cystitis. You know what they say about autoimmune conditions...you can't just have one, and I can attest to that. I already suffer...Reactions0reactionsComments12 comments
Understanding My Pain Helps Me Manage ItEven with a treatment that is effective and regular exercise, AxSpA reminds me that it is still here, and manifests itself through new pain. The condition is active, it changes...Reactions0reactionsComments4 comments