Ask the Non-Radiographic AxSpA Advocates: Self-Advocacy and Finding CommunityAs we learn more and more about axial spondyloarthritis (AxSpA) and ankylosing spondylitis (AS), we also learn that many people live with...reactions3comments
Using Instagram & Social Media to Find CommunitySocial media plays so many roles in people's lives. It can be a way to connect with others, it can be a...reactions2comments
How AS Helped Me Rebuild My Relationship with MyselfMy 25th birthday just passed this month. Due to the pandemic and the state of my health, there wasn’t much to celebrate...reactions3comments
Highs and Lows of PrednisoneIf there has been one thing I’ve learned along the way of my AxSpA journey, it's is that there generally are no...reactions1comment
Enthesitis, Heel Pain, and Ankylosing SpondylitisDid you know that foot pain may be associated with having ankylosing spondylitis (AS)? Yeah, no kidding. Most of us know that AS...reactions30comments
I Feel Like I'm Waiting Not to be SickI often feel like I am going to wake up some morning and this was all a bad dream, a nightmare. Although...reactions1comment
My Post-Diagnosis Mixed Bag of EmotionsI’ve recently hit the five year anniversary of my axial spondyloarthritis diagnosis. For some reason, this otherwise random milestone has me reflecting...reactions1comment
When "Just Be Positive" Goes Too FarIf you haven’t heard of the concept of toxic positivity or chronic positivity, maybe you’ve picked up on what it is without...reactions3comments
Busting AxSpA Myths: Part 2This is part 2 to my Axial Spondyloarthritis Myths, Part 1 post. If you can think of other myths and misunderstandings, I'd...reactionscomments
How Strong is the Mind?My journey with AS has taken me from an all-time low to an all-time high. From receiving two hip replacements and not...reactions4comments
Why Community MattersWhen it comes to finding community, the ankylosing spondylitis warriors online have it on lock. From Instagram hashtags to Facebook support groups...reactionscomments
Busting Axial Spondyloarthritis Myths: Part 1As a community moderator for Health Union (and as an AxSpA patient myself), I read dozens of posts from people living with...reactionscomments
What Does Caregiving Look Like for an AS Patient?I never considered myself a caregiver to my husband, Keegan, until a couple of years ago. After all, the picture of caregiving...reactions3comments
I'm Not High Maintenance, I'm Chronically IllEveryone likes a “low-maintenance” girl — the girl who can tag along with friends at a moment’s notice, without worrying about the...reactions1comment
Being Around People Who Get ItI’ve had quite a few people come and go from my life ever since I got sick. I try my best to...reactions2comments
Getting out of Bed with Spondyloarthritis, Part IIMotivation to begin exercising is a major problem for me. I'm just tired - mentally and physically - from family drama, a...reactions3comments
Our AxialSpondyloarthritis.net Community is on Instagram!Did you know that you can find our AxialSpondyloarthritis.net community on Instagram? Give us a follow so you can engage in great...reactionscomments
Thinking About Food I can’t imagine another time when food played a more central role in our society. We can watch cooking shows at any...reactionscomments
I’m On A DietMy doctor and I had The Talk, you know the one. We talked about the dreaded BMI, exercise, and carbs. She asked...reactions2comments
Why Working from Home is Best for my Ankylosing SpondylitisEver since I developed ankylosing spondylitis (AS), work has been a source of worry for me. Most jobs, from customer service to...reactions3comments
