Juggling AS, Pain, Fatigue, and a Family in a PandemicI've written about my family on the site before, but that was pre-pandemic and pre-second child. My husband, Keegan, managed his pain...reactionscomments
Time Slowed Down When I Became Chronically IllMy birthday was a couple of days ago and it got me thinking about the passage of time. Specifically, how it has...reactionscomments
How I “Celebrated” My 4 Year PainiversaryFebruary 11, 2017, was the first day my AS pain started. It was the day that started an entirely new chapter of...reactions2comments
A Huge Positive ChangeI realize that what I’m about to share won’t resonate with everybody. But if there are only a few people with whom...reactions9comments
6 Things That Make Fatigue The WorstIn my opinion, fatigue is the worst symptom of spondyloarthritis. Don’t get me wrong, the others deserve respect fitting the ruthless wrecking...reactions2comments
An Open Letter to My BodyI don’t think either of us remembers what it’s like not to be in pain. The days of waking up feeling rested...reactions3comments
How To Manage The "Fat" TalkIf your BMI is 25+ you know all about The "Fat" Talk. Obesity heroes and villains morph over time, but the sentiment...reactions2comments
My Traveling Survival Guide: What I'm Packing and WhyThis month, I will be going on my first long-distance road trip since I was diagnosed with AS. While I am completely...reactions3comments
Don't Compare Your Disease Experience to Celebs'When a celebrity is diagnosed with a chronic illness, there are usually articles splashed across every magazine and tabloid. Often, their diagnosis...reactions2comments
Build Your Own Flare ToolkitThere's no other way to say it: axial spondyloarthritis flare-ups are the worst. You might be having a good few days, and...reactions3comments
Grief, Ankylosing Spondylitis, and a Tragedy in IndianapolisEditor's note: this article has a mention of gun violence. As I write this, in Indianapolis, about 15 miles south of me...reactions2comments
The Blame GameI was diagnosed with AS in 2016, but I was managing a vast spectrum of pain since 2011. My symptoms included intermittent...reactions2comments
I'm Not High Maintenance, I'm Chronically IllEveryone likes a “low-maintenance” girl — the girl who can tag along with friends at a moment’s notice, without worrying about the...reactions1comment
Spondylitis, Spondylosis, Spondylolisthesis: What Is the Difference?The names of 3 health conditions that affect your spine sound very similar. However, spondylitis, spondylosis, and spondylolisthesis have some key differences...reactions1comment
Coming Out of Remission After 8 YearsIt wasn’t very often, if I even did at all, that I thought about what it would be like if I came...reactions1comment
How Doctors Dismiss Overweight PatientsIf you go to the doctor for a health issue or concern, or because you are in pain, you would expect a...reactionscomments
3 Tips For Mental Health After DiagnosisI knew — in some intuitive way — that I had ankylosing spondylitis (AS), or something similar about a decade before I...reactions1comment
How My Daily Life Has Changed I would consider myself a hard-working person. I started babysitting when I was 15. I had my first part time job at...reactions3comments
Moving With Axial SpondyloarthritisMy family and I purchased a home this winter, and while a part of me was extremely excited and anxious to make...reactions1comment
My New Coping Strategy: Earn My PainI have developed a new coping strategy over the past few months. I am going to earn my pain. At first glance...reactions2comments
