Ways I Didn't Expect AS to Affect Our LivesLooking back on my life, it's always strange to think about what it was like in college. Keegan, my husband with AS, was just beginning to show symptoms. We studied...Reactions0reactionsComments6 comments
Periods and Ankylosing Spondylitis: How I ManageWhenever my period is on its way, I know the true (monthly) battle is beginning. Not only do I contend with the fatigue and pain from ankylosing spondylitis (or radiographic...Reactions0reactionsComments14 comments
The Frustrations Of Arthritis AdvocacyOutsiders could be forgiven for mistaking the constant parade of advertisements for treatments for arthritis, psoriasis, Crohn's disease, and ulcerative colitis for proof that the war is over. Taken together...Reactions0reactionsComments1 comments
Like Mother, Like Sons: Part 2Editors note: This is part 2 of Jed's interview, and part 1 can be found here. If you didn’t read “Part 1” yet, Brenda (32) is diagnosed with RA, while...Reactions0reactionsComments1 comments
A Holiday Season Like No OtherThe holidays are a time for family, for gathering and catching-up and enjoying the company of our loved ones. Living away from family, the holidays are one of the few...Reactions0reactionsComments0 comments
Women Don’t Get AxSpA?! This Old Story Needs to Go!I have recently changed rheumatologists. I have been living with AxSpA for seven years, if we don’t count the years I had symptoms but was not diagnosed with a particular...Reactions0reactionsComments2 comments
Reflecting On My Past Year With ASI turned 35 on November 3 (yes, election day, and no — that wasn't ideal at all, ha!). The night before — before midnight — I got into the bath...Reactions0reactionsComments1 comments
Stepping Back From the Community When It Becomes Too MuchI've said it a million times, and I'll probably say it a million more; the chronic illness community is one like no other. There is so much love and support...Reactions0reactionsComments1 comments
Spondylitis, Spondylosis, Spondylolisthesis: What Is the Difference?The names of 3 health conditions that affect your spine sound very similar. However, spondylitis, spondylosis, and spondylolisthesis have some key differences. Here is a guide to each one. As...Reactions0reactionsComments2 comments
Cultivating Resilience In Hard Times 103: Celebration & BeautyI’m writing this in October, the 70th month of 2020, in the year of our Despotic Overlord COVID-19. The pandemic has shoved 2020 into the record books as a year...Reactions0reactionsComments2 comments
What Next?: Feeling Lost Immediately After DiagnosisI remember the moment when the doctor's office called Keegan, my husband, to tell him of his AxSpA diagnosis. I remember it was rainy that day, and I had just...Reactions0reactionsComments1 comments
When It Comes to Treatment, When Do You Leave Well Enough Alone?Finding an effective medication for any chronic disease can be a challenge for both patient and doctor. Before I got sick myself, it seemed simple enough: Just match up the...Reactions0reactionsComments3 comments
How AS Affects the People Around Us: An InterviewI wanted to interview my two closest friends to see how my AS affects them. How do they feel when I’m in a flare-up? I know how I feel, but...Reactions0reactionsComments1 comments
Finding a New Normal with AS2020 has been an interesting year, to say the least. The COVID-19 pandemic prompted a global response and altered the day-to-day lives of people across the world. One thing I’ve...Reactions0reactionsComments1 comments
Exercise is Medicine!This saying is not from me. I heard it during the presentation of a rheumatologist specialised in AxSpa. I thought this was a strong message delivered by a specialist. I...Reactions0reactionsComments5 comments
Cultivating Resilience In Hard Times 102: Structure, Commitments, And OpportunitiesThe iconic Hills Are Alive scene from The Sound of Music has been reborn a thousand times over in memes. Generally, a picture of Maria, arms outstretched, with the Alps...Reactions0reactionsComments1 comments
The Second Wave of COVID-19 is HereIt’s not a huge surprise. We all knew it was coming. School has started back up and here we are. I live in Canada, so the numbers aren’t as staggering...Reactions0reactionsComments1 comments
My Spine is Like a Roller CoasterI like roller coasters. I have not been on one for several years as my arthritis issues generally do not allow me to stand and walk freely around a large park...Reactions0reactionsComments2 comments
Doing Halloween Safely At Home!Celebrating Halloween with AxSpa can be difficult. Some of us can't trick-or-trick due to mobility issues, don't feel comfortable going out because we're immunocompromised, are in a flare, or any...Reactions0reactionsComments1 comments
What My Rheumatologist Suggested For FatigueFatigue is my worst enemy. I almost never stop talking about how tired I am, and I’m sorry if you’ve ever had to experience it. It’s not my fault, though!...Reactions0reactionsComments4 comments