Hi, I’m “Just The Immunocompromised”As the COVID-19 pandemic drudges on, so does my frustration, as I watch people I once thought to be intelligent make brainless decisions that contribute to the spread. These poor...reactions3comments
Beyond Medication: Managing Axial Spondyloarthritis HolisticallyWhen I first was diagnosed with ankylosing spondylitis, I didn’t see or read a lot about stress management. In fact, all of that seemed strangely disregarded, as though our minds...reactions3comments
My Challenge to Adapt to the Unpredictable AxSpaI used to live a full-on life, enjoying planning many things such as dinner with friends, holidays, weekends away, various activities, and gatherings in my house. I would get very...reactions4comments
Our Winding Journey to Finding RheumatologistsSince I've started writing and moderating for AnkylosingSpondylitis.net, I read countless stories about how difficult it is for AS patients to find rheumatologists. This was definitely the case for my...reactions4comments
I Don’t Like Long Walks on the Beach: Dating and Chronic PainFor anyone, dating can be scary — putting yourself out there, being vulnerable, and hoping that the other person accepts you. Having a chronic illness adds another dimension to that...reactions3comments
Balancing School While Managing ASStarting school while living with the often-times debilitating symptoms of AS can be nerve-wracking. About six months ago I began my first semester of journalism, and despite how ready I...reactions1comment
Sharing the Good Days When You Have AxSpAAt the beginning of the holiday season, I was struggling through the start of a flare up. I knew that the holidays had been very difficult in the past and...reactions2comments
I Decided to Reclaim my BodySomething that I’m sure is common with many of us ASers is that we aren’t happy with our bodies. It’s reasonable…I mean, our bodies do actively work against us every...reactions1comment
How Connecting to Nature Helps Chronic PainKeegan, my husband with AS, always has loved being outside. When I first met Keegan, I was surprised at the 30-minute ride in the hills of southeastern Ohio resulting in...reactions5comments
Support Group DoomscrollingWhen I was first diagnosis with nr-AxSpA, I was relieved. I finally knew what was “wrong” with me. There was an actual diagnosis to learn about. I had a ton...reactions3comments
Yes, I'm DisabledI think this topic is something that people with AS struggle with. I know I do, so I wanted to write about it in case anyone else was too. Are...reactions4comments
Adding Injury to AxSpA Pain: Thinking About Acute vs. Chronic PainMost of the pain I feel these days--well, for the past two decades--is chronic pain related to AxSpA. As I’ve previously mentioned, pain is difficult to describe and I struggle...reactions4comments
How I Cope with PainBeing in nearly constant pain is a very difficult concept for anyone to come to terms with. It can feel so isolating, and can really disrupt your life, and at...reactions2comments
Stretching for Costochondritis PainCostochondritis is a condition that causes pain in the chest area. It usually happens when the cartilage around your ribs gets inflamed and swollen. Your rib cage is made up...reactions16comments
9 Tangible Ways AS Has Helped MeI can tell you 10,000 ways AS has limited me, annoyed me, pained me, frustrated me, and made me feel just awful. I know you can, too. In fact, I...reactions2comments
City Living With Chronic Illness, Part 2Read part 1 here (where I go over how city life affects me, and how it's affected others). In this part, I'll go over what people go through when they...reactionscomments
A Weekend Hike and the Painful AftermathI thoroughly enjoy hiking--it’s one of my favorite weekend and after-work activities. Hiking means my joints get some much-needed movement, my body some low-impact exercise, and my mind a bit...reactions3comments
Why We Don't Need 2021 ResolutionsWith the start of the new year, plenty of us are thinking about or attempting to tackle resolutions. Perhaps after the long haul that was 2020, we want to be...reactions1comment
When Our Loved Ones Don’t Get ItI feel like more often than not, our loved ones don’t tend to understand our illnesses. It might take conversation and time for some, but for others, it may never...reactions2comments
City Living With A Chronic Illness, Part 1I’ve been thinking a lot about accessibility and disability as I work on my third non-fiction book, City Witches. The book is an exploration of how we can embrace the...reactions2comments