Beyond Medication: Managing Axial Spondyloarthritis HolisticallyWhen I first was diagnosed with ankylosing spondylitis, I didn’t see or read a lot about stress management. In fact, all of that seemed strangely disregarded, as though our minds...Reactions0reactionsComments3 comments
My Challenge to Adapt to the Unpredictable AxSpaI used to live a full-on life, enjoying planning many things such as dinner with friends, holidays, weekends away, various activities, and gatherings in my house. I would get very...Reactions0reactionsComments4 comments
Our Winding Journey to Finding RheumatologistsSince I've started writing and moderating for AnkylosingSpondylitis.net, I read countless stories about how difficult it is for AS patients to find rheumatologists. This was definitely the case for my...Reactions0reactionsComments4 comments
I Don’t Like Long Walks on the Beach: Dating and Chronic PainFor anyone, dating can be scary — putting yourself out there, being vulnerable, and hoping that the other person accepts you. Having a chronic illness adds another dimension to that...Reactions0reactionsComments3 comments
Balancing School While Managing ASStarting school while living with the often-times debilitating symptoms of AS can be nerve-wracking. About six months ago I began my first semester of journalism, and despite how ready I...Reactions0reactionsComments1 comments
Sharing the Good Days When You Have AxSpAAt the beginning of the holiday season, I was struggling through the start of a flare up. I knew that the holidays had been very difficult in the past and...Reactions0reactionsComments2 comments
I Decided to Reclaim my BodySomething that I’m sure is common with many of us ASers is that we aren’t happy with our bodies. It’s reasonable…I mean, our bodies do actively work against us every...Reactions0reactionsComments1 comments
How Connecting to Nature Helps Chronic PainKeegan, my husband with AS, always has loved being outside. When I first met Keegan, I was surprised at the 30-minute ride in the hills of southeastern Ohio resulting in...Reactions0reactionsComments5 comments
Support Group DoomscrollingWhen I was first diagnosis with nr-AxSpA, I was relieved. I finally knew what was “wrong” with me. There was an actual diagnosis to learn about. I had a ton...Reactions0reactionsComments3 comments
Yes, I'm DisabledI think this topic is something that people with AS struggle with. I know I do, so I wanted to write about it in case anyone else was too. Are...Reactions0reactionsComments4 comments
Adding Injury to AxSpA Pain: Thinking About Acute vs. Chronic PainMost of the pain I feel these days--well, for the past two decades--is chronic pain related to AxSpA. As I’ve previously mentioned, pain is difficult to describe and I struggle...Reactions0reactionsComments4 comments
How I Cope with PainBeing in nearly constant pain is a very difficult concept for anyone to come to terms with. It can feel so isolating, and can really disrupt your life, and at...Reactions0reactionsComments2 comments
Stretching for Costochondritis PainCostochondritis is a condition that causes pain in the chest area. It usually happens when the cartilage around your ribs gets inflamed and swollen. Your rib cage is made up...Reactions0reactionsComments16 comments
9 Tangible Ways AS Has Helped MeI can tell you 10,000 ways AS has limited me, annoyed me, pained me, frustrated me, and made me feel just awful. I know you can, too. In fact, I...Reactions0reactionsComments2 comments
City Living With Chronic Illness, Part 2Read part 1 here (where I go over how city life affects me, and how it's affected others). In this part, I'll go over what people go through when they...Reactions0reactionsComments0 comments
A Weekend Hike and the Painful AftermathI thoroughly enjoy hiking--it’s one of my favorite weekend and after-work activities. Hiking means my joints get some much-needed movement, my body some low-impact exercise, and my mind a bit...Reactions0reactionsComments3 comments
Why We Don't Need 2021 ResolutionsWith the start of the new year, plenty of us are thinking about or attempting to tackle resolutions. Perhaps after the long haul that was 2020, we want to be...Reactions0reactionsComments1 comments
When Our Loved Ones Don’t Get ItI feel like more often than not, our loved ones don’t tend to understand our illnesses. It might take conversation and time for some, but for others, it may never...Reactions0reactionsComments2 comments
City Living With A Chronic Illness, Part 1I’ve been thinking a lot about accessibility and disability as I work on my third non-fiction book, City Witches. The book is an exploration of how we can embrace the...Reactions0reactionsComments2 comments
Removing the Scary Stigma of BiologicsI went into my first rheumatology appointment of the year last week with one thought on my mind: I think I might need to go on biologics again. I'll be...Reactions0reactionsComments10 comments