How to Advocate for Someone With AS...At 23, I became a caregiver when my husband Keegan was bedridden from nonstop pain and immobility. Immediately finding oneself in the caregiver role, it's hard to know the skills...Reactions0reactionsComments1 comments
Mysterious Chronic Pain Throughout My Teens...My name is Étáin, I am a 22-year-old woman from Ireland. I have been living with symptoms of AS for well over 10 years and was only diagnosed at the...Reactions0reactionsComments1 comments
Lupus Patient...Hi, I'm Cilla, I have Lupus and a bunch of other autoimmune diseases. I'm glad to join your group and am learning more about all these diseases. Hope you all...Reactions0reactionsComments3 comments
My Flare Essentials...I’m currently going through a hip flare-up, so I decided to write this post about my flare go-to’s, or my essentials for getting through a flare. These essential items help...Reactions0reactionsComments10 comments
Nightmares and Their Link to Inflammatory Arthritis...Authors of a study published in Brain and Behavior in March 2019 reported an unexpected discovery. Researchers were originally investigating the link between inflammatory arthritis, like ankylosing spondylitis, and an...Reactions0reactionsComments5 comments
10 Things You Should Know About Clinical Trials...Each year thousands of clinical trials occur. Learning about clinical trials can feel like you are learning a new language. The good news is that there are lots of resources...Reactions0reactionsComments0 comments
Why I Have A Wheelchair: The Game Of "What If's"...I am a proud wheelchair owner. I am not, as of yet, a wheelchair user. Why is this? Well, I have my reasons. Living with AS is unpredictable. Good days...Reactions0reactionsComments9 comments
My Long and Continuing Journey...Hi. I'm 45 years old and I have been dealing with lower back pain since I was 14 or so. I remember going to the chiropractor as a teenager several...Reactions0reactionsComments2 comments
Has anyone had nerve ablation and did it help?...I have an appointment tomorrow to be tested to see if nerve ablation will help with my pain....Reactions0reactionsComments1 replies
How important is it to have a rheumatologist?...I only have a PM. What can a rheumy do for you?...Reactions0reactionsComments3 replies
Seven Ways To Stay Safer With Spondylitis...Sometimes living with spondylitis feels like I'm on a bizarre game show. Where I'm the host and the medical community are contestants. We understand the topics and questions, but the...Reactions0reactionsComments2 comments
Leia's Story...Well, I've had sciatic nerve problems since 96, after I delivered my son. I went to see my doctor and was told I had this disease. I was tested and...Reactions0reactionsComments3 comments
Hi There - This is My Story...Wow. I am not sure where to even begin. I’ve been “lurking” on here for some time. Gaining confidence to post & make my story public knowledge. So I’ll just...Reactions0reactionsComments2 comments
AS and the Military...Been living with AS since my time in the USArmy. It started with a sharp pain in my left ankle. I hobbled around and went on sick call with them...Reactions0reactionsComments5 comments
Brain Fog: More Than Forgetfulness...Do you know what it’s like when your brain is exhausted? We all have been there. You stay up late to work on a project and you start hearing voices...Reactions0reactionsComments11 comments
Clinical Trials as a Treatment Option...When you’re dealing with a major health issue or condition, it’s helpful to know that in addition to standard treatment, complementary or alternative medicine, clinical trials may provide another treatment...Reactions0reactionsComments0 comments
Breathing Exercises...Focusing on the breath is a technique used to help calm the mind and reduce stress and anxiety. There are many forms of breathing exercises. In this video, renowned naturopath...Reactions0reactionsComments0 comments
Planning For Self-Care Success: Time Management...I live in the same house my mother was raised in. It's had a few minor modifications, but we still use my grandmother's pots and pans, and her pictures are...Reactions0reactionsComments0 comments
Ask the Advocates: Receiving a Diagnosis...When were you diagnosed with AS and how did it initially present itself? I was diagnosed with AS in February of 2018. I initially had symptoms in February of 2017...Reactions0reactionsComments3 comments
Lost and Looking for Support...I had a rough childhood. I married very young, just to escape my unhappy life. Things just got worse. My young husband died, leaving me with a 6-month-old son, forcing...Reactions0reactionsComments3 comments