Reflecting on My 2 Year AS Diagnosis-versary...February 27th, 2020 marked the two year anniversary of the day I was diagnosed with ankylosing spondylitis. I call it my diagnosis-versary...reactions5comments
Other Health Conditions Experienced Alongside Lupus...The journey to receiving a lupus diagnosis can be a long one. The symptoms of lupus can be nonspecific and overlap with...reactionscomments
Understanding Clinical Trials...A clinical trial is a research study that is conducted to determine whether a specific medical intervention, such as a treatment, device...reactionscomments
10 Things You Should Know About Clinical Trials...Each year thousands of clinical trials occur. Learning about clinical trials can feel like you are learning a new language. The good...reactionscomments
Undiagnosed and pain getting worse....I have had serious back and hip pain for several years. My pain management doctor said I have arthritis. The pain is...reactions1comment
AS and Everything Else!...I was diagnosed with ankylosing spondylitis in 1980. I was 18, I had excruciating low back pain to the point I could...reactions1comment
2nd Generation AS...I grew up with a dad who had an extreme case of AS. It was the 60’s and nobody knew what was...reactionscomments
Finally, An Answer To My Pain...I've dealt with back pain all my life. Then it started spreading. A couple of years ago, I finally got a dx...reactions1comment
It’s Taking Forever To Get A Diagnosis!...I’m 50 now. I’ve been having weird pains for about 26 years with random explanations from different doctors. "You’re overweight" (I was...reactionscomments
What Is AS Like? Well......I was diagnosed about 3 years ago, after my pain management doctor couldn't help me with my pain anymore. So he referred...reactions1comment
My Journey and How I've Managed to Cope...The day after Superstorm Sandy, I twisted my knee. A few days later it had gotten worse, so went to the doctor...reactions2comments
This Pain Sucks...My pain started when I hurt my back working at a nursing home. The doctors told me that I have had it...reactions1comment
2019 My Diagnosis...I have always had back problems and had some injuries to my back in my life that my body was telling me...reactions2comments
Osteoporosis and Axial Spondyloarthritis...There are various conditions or diseases that occur at the same time as conditions on the AxSpA spectrum. These are called comorbid...
I Advocated for Myself and I’m Proud...I’ve kind of been in a medical limbo since September. My biologic drug, Inflectra (a Remicade biosimilar) has stopped working at the...reactions1comment
Diagnosed and can’t go back to doctor...I have been diagnosed, but due to loss of insurance I can’t go back to the doctor, I can’t afford the meds...reactions1comment
Misdiagnosed...Started having pain in SI joint early 30s but pain management said it was my lower lumbar even burned nerve in that...reactionscomments
Processing Opinions and Advice 101: Unknowns...It is a truth universally acknowledged that some people in possession of opinions and advice cannot keep these precious "pearls of wisdom" to themselves...reactions2comments
I Was Shocked to Get Another Diagnosis...What in the world is this all about? Hey, I already had T1 diabetes and RA, do I really need something called...reactionscomments
From Super Mom to AS Warrior...It's bad enough that I have fibromyalgia, Lupus and Hashimoto's disease. Then after tons of Xrays and MRIs, I'm told I have...reactions3comments
