Teaching abroad with Ank Spond and need for medicne (Humira)...Does anyone have experience in doing or know of someone who has successfully taught abroad ESL style with ankylosing spondylitis? I take Humira for it. It is available in some...Reactions0reactionsComments2 replies
6 Reasons You Should Journal Through Chronic Illness...I've always been a writer. It comes naturally to me to create worlds, to express my feelings and ideas through words, and to use language to sort through and capture...Reactions0reactionsComments2 comments
What To Do When NSAIDs Are Causing More Harm Than Good...NSAIDs (nonsteroidal anti-inflammatory drug) pain relievers are a class of medications utilized by many with arthritic conditions like axial spondyloarthritis. They can help reduce both pain and inflammation, however, they...Reactions0reactionsComments0 comments
Juggling AS, Pain, Fatigue, and a Family in a Pandemic...I've written about my family on the site before, but that was pre-pandemic and pre-second child. My husband, Keegan, managed his pain much differently in the "before times" when it...Reactions0reactionsComments0 comments
How to Define Your Own Vision of Success in Life...Recently, I was asked a very interesting question as part of my work as a life coach: Do you think that success is determined by external factors or internally through...Reactions0reactionsComments0 comments
Time Slowed Down When I Became Chronically Ill...My birthday was a couple of days ago and it got me thinking about the passage of time. Specifically, how it has slowed down for me ever since I got...Reactions0reactionsComments0 comments
How I “Celebrated” My 4 Year Painiversary...February 11, 2017, was the first day my AS pain started. It was the day that started an entirely new chapter of my life that changed everything. I was only...Reactions0reactionsComments2 comments
Do you have additional health issues?...What are other health issues you face besides your AxSpA/AS diagnosis?...Reactions0reactionsComments24 repliesComorbiditiesDiagnosis
What foods make you flare?...It seems like everyone has certain food(s) they avoid because it can trigger symptom flares. What foods or drinks have you removed from your diet to reduce inflammation and pain?...Reactions0reactionsComments9 repliesDiet & NutritionFlare Management
A Huge Positive Change...I realize that what I’m about to share won’t resonate with everybody. But if there are only a few people with whom my story resonates, my mission is a success...Reactions0reactionsComments9 comments
Did My Covid Vaccine Put Me Into A Flare?...If you read my article How I Felt After My First Covid Vaccine, you'll know that I was very sick afterwards. I was sick for about 5 days. This is ok...Reactions0reactionsComments9 comments
6 Things That Make Fatigue The Worst...In my opinion, fatigue is the worst symptom of spondyloarthritis. Don’t get me wrong, the others deserve respect fitting the ruthless wrecking balls that they are. Pain excels at agony...Reactions0reactionsComments2 comments
Health Resources...Living with a chronic health condition can be challenging, frustrating, and tiring. You might feel like your life is on hold. Frequent hospital stays, difficult or noticeable symptoms, and constant...
Take the Person Before Patient Survey...The Person Before Patient Survey is now closed. Thank you for your interest! What makes us the people we are? Living with a serious health condition like axial spondyloarthritis can...Reactions0reactionsComments0 comments
Managing Healthcare Expenses...Managing a chronic health condition can take a financial toll on you and your family. Costs add up quickly from medicines, testing, copays, travel, and more. But help is available...
What Are Biosimilars?...Biosimilars are highly similar to an already-approved biologic medication. Biologic medications (including biosimilars) are typically made from living organisms. Biologic medications may be generated from various sources, including human, animal...Reactions0reactionsComments0 comments
Nicky Flikas...Hello! My name is Nicky, I am 34 years old married with 3 beautiful children. I am from the city of Montreal born and raised. It's been a long journey...
Muscle pain...I read a lot about back pain, but being newly diagnosed I'm confused about the tendon, ligament and muscle involvement. I haven't been started on meds yet and my primary...Reactions0reactionsComments11 repliesCoping
"Trapped" – A Poem by Sarah Lee...Our advocate Sarah Lee lives with ankylosing spondylitis and used her experience with a chronic invisible illness as inspiration for her poem, "Trapped." Listen to her spoken word performance in...Reactions0reactionsComments1 comments
An Open Letter to My Body...I don’t think either of us remembers what it’s like not to be in pain. The days of waking up feeling rested, refreshed, full of energy, with infinite possibilities in...Reactions0reactionsComments3 comments