Long Ago I Recieved A Wrong Diagnosis...Diagnosed with RA at 17. Changed to "psoriatic arthritis" at 25. Had X-ray bombardment at 18. Could have caused leukemia, but didn't. It helped the lower spine. I'm 76 now...Reactions0reactionsComments2 comments
Where to Go?...I have been diagnosed with Ehlers Danlos syndrome, since my Sister died in 1996, and with it ankylosing spondylitis, among many, many other medical issues. In the beginning, we saw...Reactions0reactionsComments2 comments
How To Manage The "Fat" Talk...If your BMI is 25+ you know all about The "Fat" Talk. Obesity heroes and villains morph over time, but the sentiment is relatively consistent. People gain weight by indulging...Reactions0reactionsComments2 comments
My Traveling Survival Guide: What I'm Packing and Why...This month, I will be going on my first long-distance road trip since I was diagnosed with AS. While I am completely overjoyed at the prospect of getting a much-needed...Reactions0reactionsComments1 comments
Don't Compare Your Disease Experience to Celebs'...When a celebrity is diagnosed with a chronic illness, there are usually articles splashed across every magazine and tabloid. Often, their diagnosis is used as clickbait, a cheap and careless...Reactions0reactionsComments2 comments
Effects of Heteronormativity in Healthcare on LGBTQ+ Patients...From the start, I want to be clear that I do not intend to paint with a broad brush here. There are many wonderful, empathetic practitioners out there in the...Reactions0reactionsComments1 comments
Driving Difficulties With Ankylosing Spondylitis...Ever since I was a teenager, I had one goal, which was to learn how to drive and get my license as soon as possible. I’m sure you can relate...Reactions0reactionsComments6 comments
Grief, Ankylosing Spondylitis, and a Tragedy in Indianapolis...Editor's note: this article has a mention of gun violence. As I write this, in Indianapolis, about 15 miles south of me, a mass shooting has occurred at a FedEx...Reactions0reactionsComments2 comments
A Letter to My Past Self...Dear past Ali, You will never believe how much you have grown. You are so strong. You’ve been through a lot. This past year has been a tough one for you. You were bed...Reactions0reactionsComments1 comments
To Biologic or Not to Biologic?..."I'd recommend starting a biologic," Keegan's rheumatologist suggested at our first appointment. Keegan, my husband, and I were still wrapping our heads around the diagnosis he received only 6 months...Reactions0reactionsComments3 comments
Thank you!...Today was one of those days when I inject twice.. early in the morning my daily injection of Forteo for the severe osteoporosis. Then sometime mid-afternoon, Humira. I have to...Reactions0reactionsComments6 replies
My Mobility Aids...During my thirty years so far of living with ankylosing spondylitis I had to make use of multiple aids. Glad that I could make use of them, though at the...Reactions0reactionsComments9 comments
Coming Out of Remission After 8 Years...It wasn’t very often, if I even did at all, that I thought about what it would be like if I came out of remission. Transitioning into this new way...Reactions0reactionsComments1 comments
Build Your Own Flare Toolkit...There's no other way to say it: axial spondyloarthritis flare-ups are the worst. You might be having a good few days, and then seemingly out of nowhere, your muscles and...Reactions0reactionsComments3 comments
Diagnosis ...What's in a name? I was diagnosed with Ankylosing Spondylitis in 2007. Scine then various Rheumatologists and Dr's, have offered up other Diagnosis'. Some have suggested Psoriatic Arthritis, as I...Reactions0reactionsComments3 repliesDiagnosisTreatmentInsurance & Disability
Reflecting on my University Experience with Chronic Pain...Many hours in the library later, the day is finally here — I have completed my undergraduate degree, a Bachelor of Arts, Honours Specialization in Psychology. If there is any...Reactions0reactionsComments2 comments
Hacking Arthritis Self-Care...Have you noticed how much content is devoted to what seems like normal things people should already know how to do? I'm not talking about the trumped up lists with...Reactions0reactionsComments1 comments
I’m Tired of Being Judged for my COVID Views...I’m sure many of us in the chronic illness community can relate to what I’m about to say. It’s gotten to a point in the pandemic where everything is divided...Reactions0reactionsComments0 comments
Anna Samson...Anna Samson (they/she) is a queer, desi person in their twenties from Canada, living just outside of Toronto. They have a Bachelor of Arts in English & Cultural Studies and...
Pamela White...Pamela was previously a health leader on AxialSpondyloarthritis.net. Pamela is a former Division I athlete and current J.D. Candidate who was diagnosed with non-radiographic axial spondyloarthritis in 2018. She also...
