The Question that Keeps Me Up at Night...There's a question that keeps me up at night. Could my husband, Keegan, be suffering from more than just AS? What if his fatigue is chronic fatigue syndrome? What if...Reactions0reactionsComments5 comments
Walking Along With Ankylosing Spondylitis...I used to worry if I was not worried. Setting a dedicated worry time never worked, either. So, what helped?...Reactions0reactionsComments1 comments
COVID-19 Is In My House...But it is a huge worry of mine. Getting sick at all is a huge worry of mine....Reactions0reactionsComments2 comments
Ask the nr-AxSpA Advocates: Diagnosis and Progression Worries...I do worry about the progression of nr-AxSpA, but I am more focused on improving my overall quality of life than allowing the feelings of worry to take...Reactions0reactionsComments1 comments
Always Being "On" With Chronic Illness...I was keeping myself in a state of worry and panic, always primed and ready to jump. To worry. To keep me in a chronic illness spiral....Reactions0reactionsComments3 comments
Living Well With AxSpa: My Best Tips...Please don't stress yourself about the future, don't worry about the next year, don't worry about next month or even next week....Reactions0reactionsComments1 comments
My Family Doctor Gaslit Me...This situation bothers me so much because I deal with this worry so often....Reactions0reactionsComments5 comments
A Holiday Season Like No Other...medications pumping through my veins, I also worry about the safety of my family and friends....Reactions0reactionsComments0 comments
The Coronavirus Just Hit NYC, And I'm Feeling Frightened...But none of this negates or invalidates our worry. Stay safe out there....Reactions0reactionsComments1 comments
An Invitation to an Event Full of Emotions...One thing I miss about the beginning of the pandemic is not having to worry about events. Not having to worry of how I will get myself there....Reactions0reactionsComments4 comments
Reflecting on Life When My AS Was Undiagnosed...After the relief I felt when I was diagnosed, I started to worry that all my symptoms would get gradually worse as my AS progressed....Reactions0reactionsComments1 comments
My Illness Through My Children's Eyes: An Interview...When I was first diagnosed with AS, my number one worry was how my illness was going to impact the lives of my children....Reactions0reactionsComments2 comments
If I Can Turn Back Time...The times where I didn't have to worry about making another doctor appointment. ...Reactions0reactionsComments0 comments
Allowing New Medications Adjust to Your Body...I always worry about side effects the most when starting something new. I’m sure we can all relate to that....Reactions0reactionsComments3 comments
Is It Just Me? My Struggles With Poor Body Image...I am sure other people worry about body image. It’s normal to worry just a little bit, right? But I wonder if others worry as much as...Reactions0reactionsComments4 comments
Everyday Thoughts and My Chronic Illness...When we visit family or gather with friends, that near-flooding feeling of worry and grief reappears....Reactions0reactionsComments5 comments
Blessings of My Disease...I no longer worry about the little things as much. I now realise that no one knows what another person is going through....Reactions0reactionsComments1 comments
I'm At Risk, Too: Sharing Our Diagnoses During COVID-19...In every conversation I hear, people tell me “you don’t have to worry, you're young and healthy. Viruses like this only affect old people.”...Reactions0reactionsComments0 comments
Taking Risks as a Chronically Ill Person...There’s always worry when leaving your house with a chronic illness....Reactions0reactionsComments3 comments
First Event Going Out With AxSpa...One less thing to worry about. But that also took so much energy from me....Reactions0reactionsComments2 comments