Are you feeling fatigued? How do you manage it?
Unfortunately, fatigue is a part of living with AS. Learning ways to manage your fatigue can be a game-changer and help you live a happier, more rested life.
My mom had. A stroke and is paralyzed from the waist down me and my dad are
Taking care of her he can now see how I’m barely hanging on I help for a few days and then I sleep for another dayI am sorry that your family is experiencing this. Caregiving is difficult. And for you, is doubly difficult when you probably need support yourself. You and your dad will both need to make caring for yourselves a priority, along with caring for your mother. You may wish to talk to the social worker at your mother's hospital who should know what resources exist in your community to help your family. All the best, Kathy (Team member)
I'm so glad I belonged to this forum. Thank you for Providing the opportunity to express ourselves here, since our friends and family don't seem to quite understand. I've described fatigue and flares to my friends and my son and they don't seem to quite understand. Sometimes I can do stuff like play with my four year old grandson and other times I just wanna sit at home with my heat pad on in my recliner and rest and maybe a nap will come.
Sometimes I express how I'm feeling to my friends and they say , "oh , it's probably just the medications that you take that are affecting you." WTHECK!
YOU ASKED HOW I'M DOING, I TELL YOU, THEN YOU DON'T GRASP THE SITUATION. WHAT IS WRONG WITH PEOPLE. UGH..
Thank you for allowing me to express myself. Wishing everyone a good Today and a better tomorrow 😊 ☮️❣️We are glad you are here! You are not alone in having trouble getting friends or family to understand what you are going through. Having an invisible illness like AS means that what people see does not match all of what you are feeling. It is so hard to have them understand. One of our health leaders wrote an open letter to his friends when he was going through the same thing. I'm glad you found our community. We understand. All the best, Kathy (Team member)
Give myself permission to rest or take a nap.
Yes! Sometimes you really do have to give yourself permission to stop and recharge. Do you usually plan time to rest, or do you wait until you really need it? -Latoya (Team Member) Thanks for sharing Naps can be an important way to fight off fatigue. One of our health leaders writes about her need for hibernation in this article. All the best, Kathy (Team member)
I just push through and take a nap whenever I can. I watch my 3 year old grandson 4 days a week. My husband helps at times.
I’m sure your grandson keeps you busy! It’s nice that you have your husband there to lend a hand when you need to take some time for yourself and get some rest. -Latoya (Team Member)
