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AS/AxSpa Treatment Experiences

We invite you to discuss and share your personal journey with Ankylosing Spondylitis (AS) or Axial Spondyloarthritis (AxSpa) treatments. Whether you've tried medications, physical therapy, lifestyle changes, or other therapies, your insights can provide valuable support and information to others. Share your experiences, tips, and any lessons learned to help our community better understand the options available for managing AS/AxSpa symptoms. Your stories can make a difference!

  1. Methatrexate, prednisone 5mg, xiljam, Humaria, and a couple others. Starting a new one soon. No relief except a slight improvement with Prednisone.

    1. - this process can be incredibly exhausting. Finding the right combination of medications that effectively manage your symptoms is a long and challenging process. It's positive to hear that you've experienced some improvement with Prednisone, even if it's slight. However, I understand how disheartening it can be when you're still searching for more significant relief. Hoping this next biologic is the right one, to help reduce symptoms and ease your pain from SpA. With regard, Rebecca (team member)

    2. Thank you for sharing. I hope your journey on your new biologics will bring you less pain and will help you find some relief. Sending you all the positive vibes your way,

      Nicky (Team Member)

  2. Nothing has been given i dont have an as dr i take a biologic for crohns so as dr wont see me

    1. I am sorry to hear this news. It sounds like you're facing some challenges with getting specialized care for ankylosing spondylitis, especially if you're currently being treated for Crohn's disease.

      If you haven't already, consider discussing your ankylosing spondylitis symptoms with your current healthcare provider, who is managing your Crohn's disease. They may be able to coordinate with a specialist or refer you to a rheumatologist who can address your ankylosing spondylitis concerns.

      Additionally, connecting with others who have similar experiences through support groups or online communities can be valuable. Sharing experiences and insights with others who understand what you're going through can provide a sense of community and support.

      Sending support and strength your way. Rebecca (community moderator)

  3. AS is a late comer to my autoimmune journey. I was diagnosed with MS first. But I think I have always had AS from a young age. First thing, after I learned about the AS, was to research it on the internet. Totally stressed me out. Finding support was second. Having MS for so long, I knew getting support would help me emotionally and psychologically, as well give me access to help with figuring out symptoms I may need to know about and what types of treatments people have tried. Thanks for hosting this forum.

    1. What a complex journey you've had! I hope you've begun to find a balance and your health is getting much better to manage. It's understandable that researching a chronic illness like ankylosing spondylitis (AS) on the internet can be overwhelming. There's a lot of information out there, and not all of it is accurate or relevant to your specific situation. It's great to hear that your second step was seeking support. Finding a supportive community and connecting with others who have AS can provide such valuable emotional and practical support. We appreciate you sharing this information here in our forum. Feel free to start a new one with a question or concern at any time. Warmly - Rebecca (community moderator)

    2. We're so glad you found this community!
      Always know we're here for you.
      Kindly, Doreen (Team Member)

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