AS pain not in my back
I was diagnosed with AS about 3-4 yrs ago showing markers but not significant pain in my neck or spine. I do have horrific foot pain in the metatarsal area that I've received shots for for several years. It has really amped up and no affects my shoulders, hands, ankles, still not really in my back. Anyone else showing symptoms this way? I would love to know how to manage this foot pain better.
Hi Nicky. Not sure if i replied earlier. For the pain which is mostly in late day and evening after busy day i take Celebrex and cbd gummied with thc on them also. Helps me to relax and close out the day.
Hi Jeff
Thank you for sharing with me. Hope your having a great weekend.
Nicky (Team Member)
An update on my original post about the foot pain I have and treatment. I did get the cortisone shots for both feet two weeks ago. It has helped some but unfortunately I don't get the relief I used to that lasted for a few months. The radiologist who does these injections said my joints are extremely close and finding space to inject was difficult. I was lucky to get them though because the very next day I saw my podiatrist who said the hospital system that I have always used will no longer do these types of injections because it is not cost effective. I almost cried thinking this was no longer going to be an easy fix for various reasons.
It may be that I'm going to have to have joint fusion again which is a long recovery and would eventually be for both feet due to all the joints involved. I am using a CBD cream he recommended which isn't really working.
I would like to know if anyone has addressed menopause and estrogen levels that could affect joint pain and inflammation. It's a discussion I'm planning next week with my rheumatologist and later with my gynecologist.
Thanks for all the insights and sharing from this group. Blessings!thank you! This was very informative and I will definitely discuss with both Drs soon. Have a great day! I am glad this was very helpful. Hope you are doing well.
Hugs,
Nicky (Team Member)
Well I have the symptoms all over my body. The spine is the worst, wrist(s), finger(s), ankle(s), right elbow cope able.
I remember my very first symptoms... The first was at around age 10 - in my right knee. Then the more or less longer periods in my right hip joint at age 15. Then when I went voluntarily military service at age 17 - the symptoms started to climb up in my spine. I was diagnosed at age 21. Around 30 I was in very bad shape but the symptoms was still pretty much in my hip joint and spine. Then I started to exercise intensively and I got myself in pretty much cope able shape. Then at +40 the symptoms spread rapidly. Now it's pure hell. I haven't been able to do my daily 8km walkings for almost a year now - my right knee hurts so bad. Even pedaling feels uncomfortable. But I can do it - still.
I would like to go King's trail hike through, that's my dream and just before I got renewed /updated my equipments the knee expired - so to speak.
My advice to everyone who suffers from this (or any condition) - live your live to its fullest potential while you can. I'm glad that I did. I prioritized everything before currency and titles... I conquered mountains, spent so much time outdoors. So now I know I did the right thing, good memories 😀
so sorry to hear about that knee holding you back. For me it's my hip that likes to protest whenever I walk uphill, but so far I can still get through it as long as I stretch before and after.
Is anything that helps you maintain movement, any meds or lifestyle tips that bring the inflammation down enough to get you out of pain? Do you think you'll need a surgery on the knee? I'm always so eager to know what others do to self-manage.
All the best,
Anne-Marie (Patient Leader)haha, you hit the nail - or scratching quite sensitive area 😉
My whole journey of the pain began from hip - or Tha was what I constantly thought. But in my case it was/is probably more of a si joint issue... It is getting worser cause I only lie down nowadays.
The knee symptoms started soon a year ago. Had symptoms during my rough hikes tho. But yeah, my tights were so tight that as a spunky person I searched some good - effective stretch instructions - and found. And by doing that stretch it started. At some point it seemed to get better, but no. And my CFS has gotten so bad... That I'm done - I mean I just can't take it anymore, just can not.
The knee has just been x-rayed but there's nothing. So I am all on my own. But I hope the cannabis will help - first mentally then physically - after I get going. If I get.
I was so active, as you probably have red already. Movement is the best medicine for ankylosing spondylitis, in fibromyalgia I don't know. I actually know very little about my conditions, probably cause I just can't dive into it - since I'm in them to my eyes already 😏 And I have ADD... I have always just tried to live my life in its full extent.
What about your hip, does it bother you in any other situations, rest pain? Don't know your age but hip operation is something, right?
I miss so much outdoors... Hiking, camping, exploring... And I just updated from shitty gear to almost pro gear and then my life stopped. Didn't afford car anymore, knee stopped even walking... So I'm sad - gotta admit you that. But while others worked I topped mountains etc. Was worth it. It's all in me 😍⛰️
Hope you a wonderful day and that you can conquer hills with a smile a your face 😃
Hello
- so sorry to hear your major issue is your feet. I too have had issues for many years - several surgeries, with injections, and medications. I find that on days I have significant problems, I need to use my cane and more appropriate footwear (recommended by my foot surgeon). I have used medicated rubs, CBD and THC ointments, and anti-inflammatories, as well as soaks, wraps, ice, and heat for my feet. Stretching three times daily has helped though it takes time with this modality to ease the pain. Rolling them on a ball or rod eases up the pain as well. There have been many days where I've had to get off my feet literally and put them up just to heal the pain and swelling, and this can last days. I've learned to not overdo it on days I feel okay, as the next can be excruciating if I've gone and irritated my feet and legs. Here is an informative article that may help https://www.healthcentral.com/slideshow/ankylosing-spondylitis-foot-pain - hoping you have some modalities on hand that can offer you relief. Sending you strength and wisdom so you can get back on your feet. Warmly ~ Rebecca (community moderator)
