Do you have additional health issues?
What are other health issues you face besides your AxSpA/AS diagnosis?
I have crohnes disease along with AS
,
That must be difficult to juggle.
How are things going lately?
Sending my best, Doreen (Team Member)
Lyme Disease is my other life partner. It has its ups and downs, and honestly I never really know which one is affecting me, the AS or the Lyme. They unfortunately have very different treatments. I used to treat my Lyme with heavy antibiotics, but in the end I either won victoriously, or it managed to mutate and better mimic my AS. I stopped treating my Lyme and am hoping treatment for AS is all I need.
I was only diagnosed with A SpA 4 months ago after years of discomfort one way or the other. I have had pain in hips and sacroiliac joint for years. A small amount of psoriasis behind one ear started around 1 year ago, plantar fasciitis a few years ago and Uveitis about 18 months ago.
I quite often keep new pains to myself as I don’t want to sound like I’m moaning and complaining all the time. Today’s delight is that the area between my ribs hurt. It was fine yesterday! I have just come on to this forum for the first time today and wasn’t previously aware of ‘flares’ and that other people also suddenly get pain in an area of the body for no apparent reason. Chest pain can be annoying as I had a heart attack 1 year ago tomorrow and it can be a bit disconcerting getting pain in that area. I am very positive person I think and consider myself fortunate not to have what I would call chronic pain as some of you seem to suffer. My heart goes out to you.
Interesting to learn that a lot of people recommend to keep moving rather than rest when pain strikes. I shall endeavour to do this myself.
Seems like you have very few options for treating your AS disease process. You and your rheumy may need to think outside the box and find an unconventional treatment option that does not put you and your heart and stomach at risk for more troublesome issues. I wish you well as you go about finding a healthy path on this journey. Again, if you find you need any other info, do not hesitate to log on and post a question in the Forum section or contact an advocate directly to see if we can offer up some valuable information pertaining to spondyloarthritis. Warmly ~ Rebecca (comm advc) Thanks Rebecca.
I have fibromyalgia and sometimes I am confused as to who to blame for the pain: fibro or as
YES ,
Have you been diagnosed with AS and Fibro as well?
It certainly can be difficult to decipher (and manage) both.
~Doreen (Team Member)
