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Do you have additional health issues?

What are other health issues you face besides your AxSpA/AS diagnosis?

  1. I have Psoriatic arthritis that has affected most of my joints and tendons...plus uveitis, profound hearing loss, psoriasis, incontinence, and a paralyzed diaphragm of the right lung...with ongoing breathing problems.
    I have been on Humira for 1 1/2 years but only thing it is helping are with my eyes.
    Has 6 steroid injections in mid spine 5 weeks ago and helped a lot with the excruciating pain....but 6 weeks since the pain is creeping back!
    Also very painful hips and pelvic area.

    1. @CommunityMember626 I am sorry to hear what you are going through. I can imagine all the pain your in. I am sending you strength your way and wishing your for better days a head.

      Sending you warm hugs,

      Nicky (Team Member)

  2. well, I have fibromyalgia alongside AxSpa and this has taken sometime to manage as I first focused in AxSpa. The fibro came after and was not easy to address but I feel in control with it now. I also have a trend toward hypertension, but I am not treating it with drugs for now. I am trying to lower it down with lifestyle changes, and I am self monitoring my blood pressure at home.

    1. A long with Axspa, I got diagnosed at the same time with Fibromyalgia. I am glad I came across this post and seeing am not alone. I am still trying to figure it all out. It seems to get harder when I flare up with both. One day at a time. I was finally given pain medication, which has been helping me move a little more than usual.

    2. Hi, yes indeed you are not alone. I hear you about the fibro management, it's not an easy one to figure out I find. I wrote an article about my own journey with fibro if you're interested. https://axialspondyloarthritis.net/living/fibromyalgia-symptoms
      I am here if you need to talk about it.
      Take care,
      Julie.

  3. Along with AS, I also have fibromyalgia, depression, anxiety, ADHD, carpal tunnel syndrome, and body-focused repetitive behaviours (BFRB). While depression and anxiety used to be bigger issues in my life, the biggest concerns in my life are now AS and fibromyalgia.

    1. Hi ,
      I am sorry you are struggling with your fibromyalgia. I have it as well and it took me some time to find what works for me to manage it better. It seems there are quite few of us with fibro in this chat and hopefully we can support each other in this.
      I just shared above my article on fibro if that can help you: https://axialspondyloarthritis.net/living/fibromyalgia-symptoms
      Let me know if you have any questions.
      Take care,
      Julie.



  4. oh my goodness where to start... I also have celiac disease, psoriasis, migraines, gastroparisis and GERD, fatty liver disease, burning mouth syndrome, anxiety wih major depressive disorder, adhd, insomnia and some sort of ideopathic ibd, possible sjrgrens disease hypothiroidism, hypertension. I swear I am a walking encyclopedia of autoimmune diseases as well as non autoimmune diseases.

    1. Ditto, JoMax plus other ailments...I have been suffering with dry mouth and dry throat for a year plus... Dr. did a biopsy of a white bubbly bump in my mouth to see if it was Sjogren's...it came back negative but still no answer for the mouth sores and terrible dryness of throat...it is painful if I cannot get something to drink or a lozenge.
      I have a lot of gastric problems and gerd also.

    2. Hi @JoMax72 how are you feeling today? I am sorry you didn’t get the answers you where looking for with the test that was done. I would not give up and would ask your doctor more questions if there can be more tests to be done. Sending you some positive vibes your way and hope you get some better days a head.
      Nicky (Team Member)

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