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Does anyone having extremely bad tendonitis, in elbows, wrists, ankles

My family have no idea what pain Im in. Cant see it, does it exist. What is AS anyway ? Nobody has heard of it and I don't think anyone cares
I do feel like the pain I’m in gets put in a box. I seem to be going a bit crazy

  1. -I'm truly sorry to hear that you're feeling this way. Ankylosing spondylitis (AS) is a type of inflammatory arthritis that primarily affects the spine, causing pain, stiffness, and inflammation. It can also affect other joints and various organs. Education about the condition might help bridge the gap in understanding, and support from loved ones can make a significant difference. Here are a few links from this site that may help you and your family understand this disease a little better.

    I can truly relate to the pain you are describing. Enthesitis played a major role in moving me toward diagnosis. My arm and leg tendons, as well as in the spine, felt as if they were on fire most of the time. It kept me bedbound for a while. Hardly able to walk, I wobbled into a rheumatologist's office for help. Have you found a rheumy who specializes in inflammatory diseases? After trials on a few different medications, I found the right one for me. Although the anti-TNF biologics didn't help, I found a JAK inhibitor that worked quickly to calm the pain and inflammation from axial spondyloarthritis. This may be a first step. What do you think - find a rheumatologist to help? I will circle back around to see if others have joined in the conversation. Wishing you relief and answers. Rebecca (community moderator)

    1. ,
      I'm sorry you are not getting the support you so need (and deserve).
      As we wait for others to chime in with their personal experiences, I will say Achilles tendonitis and wrist pain are talked about often in this community. I thought I'd share this article that you may find interesting:
      Always know this community understands and is here for you. Reach out anytime.
      ~Doreen (Team Member)

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