FeaturedActive 8 days ago How do you respond when someone unfamiliar with AxSpa questions your change of plans?Sometimes we might respond calmly; other times may be more defensive. Do you have a go-to response? Do you use it as a time to educate? Let's vent!...Reactions0reactionsComments15 repliesFriends & FamilyMisunderstood Tips & Advice
Pain LevelWhen asked, “On a scale of one to ten…” We have all heard that many times. However, that’s hard to answer. I was diagnosed in 1978 and have lived with...Reactions0reactionsComments2 repliesTips & AdviceCopingMisunderstood
"But You Don't Look Sick?!"Axial spondyloarthritis, though often invisible to the naked eye, can significantly impact daily life. This forum provides a space to share your encounters with this well-intentioned yet sometimes perplexing inquiry...Reactions0reactionsComments21 repliesFriends & FamilyMisunderstood Tips & Advice
Hope is dwindling away…I have had LBP (now realising very much in keeping with AS symptoms) for the last 5 or 6 years, I’ve been to see countless physios that have given me...Reactions0reactionsComments3 repliesDiagnosisNon-Radiographic Axial SpondyloarthritisMisunderstood
Does anyone having extremely bad tendonitis, in elbows, wrists, anklesMy family have no idea what pain Im in. Cant see it, does it exist. What is AS anyway ? Nobody has heard of it and I don't think anyone...Reactions0reactionsComments2 repliesMisunderstood
Gaslighting by Medical Professionalsdoctors wanting you to think it's all inside your head!...Reactions0reactionsComments2 repliesAwarenessMental HealthMisunderstood
Does anyone else wish they couldDoes anyone else have a physician, a supervisor or a spouse that you wish you could let them each take about 2 weeks with your physical health (walk a mile...Reactions0reactionsComments1 repliesMisunderstood Awareness
FeaturedTell us you have AS without saying you have AS....Alright, let's try out this trend. Tell me you have AS without saying you have AS....Reactions0reactionsComments75 repliesCopingMisunderstood Awareness
How do you tell the difference?I found out this past year, after suffering for 30+ years, that I was autoimmune and had Sjorgen's and psoriatic arthritis. My rheumatologist said that because I had been surgically...Reactions0reactionsComments3 repliesNewly Diagnosed Misunderstood Axial Spondyloarthritis
What was it like prediagnosis?I am a 33 year old male. Over the past few years I’ve acquired chronic low back pain, hip pain, mid-pain pain in my vertebrae, neck pain, shoulder pain, and...Reactions0reactionsComments20 repliesTips & AdviceMisunderstood Diagnosis