Hi there
My name is Liliana and I work for Globant as an Account Director. I am writing you because we are organizing an event about AxSpa for one of our clients who are investigating a new treatment for people living with AxSpA and we are considering the opportunity to open up the meeting with a patient story.
This would not require you to travel but only to connect on May 21st to a virtual call at around 9:00am - the story could also be pre-recorded if the timing does not work. What the "patient story" would entail is a couple of minutes of your story from signs and symptoms to today and hearing the real challenges the disease entail. Is this something you would be interested in?
This contribution would be very beneficial to inform the communication work we will do in the meeting and to bring forward the real needs of people living with AxSpA.
Looking forward to hearing from you.
BestLiliana