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Living With AxSpa and Peripheral Spondyloarthritis

anthony.carrone

When symptoms occur mostly in places other than the spine, the condition is called peripheral spondyloarthritis. There are several types of pSpA, including:

-Psoriatic arthritis (PsA)
-Reactive arthritis
-Arthritis with inflammatory bowel disease (IBD)
-Undifferentiated spondyloarthritis

Is anyone here also diagnosed with peripheral spondyloarthritis?

CommunityMember28abe6 Member
Peripheral spondylo arthritis
1. Doreen H Community Admin
  ,
  Thank you for the update.
  Your kinds words of support are truly appreciated.
  I am sending tons of positive thoughts your way for some much-needed relief.
  ~Doreen (Team Member)
2. Rebecca C Moderator & Contributor
  So pleasant reading your positive thoughts this morning! Thanks for being here, in our community. I found a wonderful massage therapist but have moved and haven't been able to find another. It was such a GREAT help with the pain. I regained some mobility and just felt better. Unfortunately, our insurance doesn't cover it, and affording this weekly or even monthly is a strain on finances currently. Maybe soon. I also used acupuncture but found little relief. I hope it helps you ease the discomfort of spondyloarthritis. As you say, I am doing the best with what I have.
  
  Your guidance about engaging our physicians is wonderful. Never be afraid to ask. I've heard stories where they, as the patient, have been rushed through appts, gaslit, refused treatment, etc. It is truly challenging. If one feels they aren't getting the treatment they deserve, remember it is important to search out another who will take the steps to ease the discomfort and pain of this disease. A second opinion is also a great idea.
  
  Today, my goal is to finish work and head outdoors to look for the hummingbirds. Thanks for sharing your thoughts with us. Wishing everyone well this week. Rebecca (Team member)
sho50 Member
I don't know. My doctors won't do any tests for it because they say knowing would make no difference in my treatment for AxSpa and Psoriasis. There's no cure; treatments are totally to relieve symptoms (all spinal treatments I've had have failed).
1. Rebecca C Moderator & Contributor
  - Hello! It's fantastic that you're discovering different supportive therapies to add to current treatments. It's truly important to consider all potential options that could help improve health and well-being. I do like your proactive approach to managing this health condition. Anything that could help ease the pain, right? Thanks for sharing this information. Thoughtfully, Rebecca (team member)
2. Doreen H Community Admin
  ,
  We're glad you found something that has made a difference for you.
  We always recommend checking in with one's healthcare team before adding this or any new treatment/supplement. ~Doreen (Team Member)
WillB Member
Yes
1. Rebecca C Moderator & Contributor
  Hello there! Thanks for stopping by and responding. Having a chronic illness can be quite defining, terrifying, and isolated. But having a community to support you through it can make all the difference. We wish you better days ahead as you manage this debilitating disease. Thoughtfully, Rebecca (team member)
CommunityMember537510 Member
Yes
1. Rebecca C Moderator & Contributor
  Hello - thanks for sharing. I'm truly sorry to hear about your diagnosis of peripheral spondyloarthritis. It's truly challenging to navigate the uncertainties and adjustments associated with this disease. How are you managing currently? With warm regards, Rebecca (team member)