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What tips would you give a friend living with axial spondyloarthritis?

Share tips and advice that has helped you get by or live more comfortably with AxSpA.

  1. Hi
    keep moving - but go gently. Seek help when needed. Let others know how you are feeling. Don't try to hide it. Get a good mattress if you can. Rest when you need to. Don't be hard on yourself. Be kind to yourself.
    Go steady
    Steve - Community Advocate

    1. I think the most important thing is to listen to your body. When you need to rest, don't feel ashamed to get some. Sometimes it can be frustrating to put other things we would rather be doing on hold but it is definitely better than over doing it and putting ourselves in more pain!


      I think the most crucial thing is keeping active. Finding a stretch routine to do every morning was a life saver for me and really helps reduce my pain and stiffness and gets me ready for the day!


      Also I think it is important to know that everyone's body is different so just because one thing works for somebody with AS doesn't mean it will necessarily work for somebody else. Experiment with a few different things for managing pain and see what works best for you.


      And most importantly don't put yourself down for what you may not be able to do but give yourself credit for the things that you have done. It is so important to keep a positive frame of mind when it comes to battling chronic illness!


      Best wishes,
      James (Community Member)

      1. Hi Matt,
        I think you always learn something new with every flare you go through. Sometimes for me I can do everything and still go into a flare or even have increased pains. What helps me get through is my magic sac warmed up and I can use it anywhere on then body, wherever I am in pain. Taking warm showers in the morning or if I have somewhere i need to go I make sure to take one before as hot water helps my muscles relax and move more easier. Sometimes I end up taking more than one shower if needed. My pain medication of coarse. I make sure to take it especially when I feel more pain coming.

        Rest rest and rest is what gets me through. On really bad days, my favorite comfy soft blanket, lay in bed and put on Netflix to distract me from the pain. What helps also is taking a walk in the evening, instead of in the day. It helps me get my body moving a little. I take my time slowly, even if it is just a 5 minute walk.
        When I am having a hard time, I try to come on here and read other members articles, go on pinterest read some motivational quotes or talk to an AS friend. I remind myself to take one day at at time and tomorrow will be a new better day. I remind myself I have done this before and I can do this again.

        Take care,

        Nicky

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