What do you feel is the biggest misconception about axSpa?
AxSpa is an invisible illness, which means others never really get the full picture of what’s actually happening. What do you feel is the biggest misconception about axSpa?
Randomness of pain
I get it. One of the hardest parts of AxSpA is how unpredictable the pain and stiffness can be. Does your pain or stiffness tend to be pretty consistent, or does it fluctuate from day to day? -Latoya (Team Member) My pain flexuates constantly. Very responsive to the weather and change of the barometric pressure.
I've yet to come across anyone outside of orthopedics and rheumatology who has even heard of this condition, yet alone who knows anything about it. Even many docs are clueless beyond that it is an arthritic condition. My odd variant is mostly unknown except to some specialists. It's truly a "rare disease"!
Thank you for sharing your experience. I agree that there is a lot of advocacy work that needs to be done. Perhaps then people wouldn't have to wait so long for a diagnosis and proper treatment. All the best, Kathy (Team member)
Just a backache...
That it s just a choice. It's just slovenly laziness.
It must have been so frustrating to hear that. How did you respond? Here's an article about one of our health leaders' experience. All the best, kathy (Team member)
