What do you feel is the biggest misconception about axSpa?
JessicaLipkin
AxSpa is an invisible illness, which means others never really get the full picture of what’s actually happening. What do you feel is the biggest misconception about axSpa?
It's just arthritis. I have everything (illness) associated to it plus many more from medication side effects.
Motherprednisone Member
We look ok. There aren’t spines growing out our back. I do use a cane now so it’s more conspicuous yet I look ok. And I’ve learned to put on that I’m ok face even if I cried for 30 minutes before running errands due to pain, fatigue, etc.
Doreen H Community Admin
, I'm saddened to hear your story. Unfortunately, AS is considered an invisible illness and most (not affected) just don't understand. Hugs, Doreen (Team Member)
CommunityMemberb52484 Member
Scoliosis is the same thing
Doreen H Community Admin
, That is frustrating. Even though they both affect the spine, they differ significantly. Scoliosis is a curvature of the spine, while AS is a progressive, inflammatory condition that affects the joints (and bones) in the spine as well as other parts of the body. ~Doreen (Team Member)