Going To A Disability Job FairSince being diagnosed with AS, I have had real difficulties when it comes to finding employment. Prior to my diagnosis, I was working in education, but sacked on account of...reactions8comments
Tips for Going to Live Music With a Chronic IllnessLast week was my first time since becoming this ill that I had gone back to my happy place: live music. When I was in remission concerts used to be...reactions2comments
Ankylosing Spondylitis and a Proposed Rule in FloridaI am furious, outraged, and all the other negative, angry words one can think of regarding a recent decision of the Florida High School Athletic Association (FHSAA). The sports medicine...reactions2comments
Living With AxSpa Has Helped Me Build Resilience Facing IllnessI have lived with AxSpa for many years; along the way I got diagnosed with fibromyalgia as well. I came to a realization last year that living with chronic conditions...reactions6comments
Does Ankylosing Spondylitis Related Fatigue Impact Your Daily Life?Does AS-related fatigue impact your daily life? If so, you're NOT the only one. Answer the questions below, check out the recording of our discussion with Lisa and Tomesha, and...reactions1comment
My Lowest Point With AxSpa Was a GiftShortly after diagnosis when I was about 18, I remember going to the theater where my sister was working at the time. Me, my mum, and sister saw a show...reactions1comment
4 Things That Make Me Happy2021 is a year that I’d love to forget. It just wouldn’t quit. The worst parts were losing a dear friend by suicide, while my family and I dealt with...reactions6comments
Developing A Movement RoutineI've always been one of the "move it or lose it" types. Why? Because it's served me, and because movement is one of the main therapies experts recommend for this...reactions2comments
Going Natural: My Decision To Stop Taking BiologicsIt's been a long 5 years of trying different treatments that have unfortunately not been successful for me. The medications have caused issues for me. Of course with my luck...reactions18comments
Finding Balance in Managing My ASWhen it comes to life lessons, it would seem I prefer to learn them the hard way! This was certainly the case when I decided to try lifestyle strategies to...reactions3comments
A Cold FishA Cold Fish: Someone who lacks empathy and emotion I feel like I am taking a big risk coming out like this, but I feel I am taking one for...reactions4comments
Making Online Friends Changed My LifeAfter becoming incredibly ill and home bound, I not only lost my social life but also some friends along the way. This was devastating and heartbreaking because these were the...reactions2comments
Gene Testing My Children for ASLike the majority of people with ankylosing spondylitis, I tested positive for the gene HLA-B27. Following my diagnosis I often wondered about this genetic marker and the line it traced...reactions3comments
Women With Non-Radiographic Axial SpondyloarthritisAnkylosing spondylitis and non-radiographic axial spondyloarthritis are two types of the same disease. Diagnosis with one or the other depends on a person's symptoms. It also depends on how much...reactions7comments
4 Questions To Jumpstart Your Self-CareYou couldn’t pay me to relive 2021. It was the year that just wouldn’t quit. The worst parts were losing a dear friend by suicide, while my family and I...reactions2comments
Housework Hacks With Ankylosing SpondylitisOne of the things I really dislike when I’m in an AxSpa flare is how messy my house can get. I’m definitely one of those “tidy house, tidy mind” people...reactions12comments
Bursts of Denial: When AS Hits SuddenlyThe thing about ankylosing spondylitis, like many immune-mediated diseases, is that no matter how much we've figured out how to manage/control/collaborate with/understand it, it is still a disease with a...reactions10comments
3 Tips for Managing Anxiety If You Have ASIt's no secret that living with a chronic illness can be challenging—mentally and emotionally, as well as physically. I remember when I was first diagnosed, there was the mental stress...reactions12comments
My AxSpA AssistersI have read some wonderful posts on here about items our community members use to help them cope with their AxSpA symptoms. They inspired me to share a trio of...reactions2comments
Switching Biologics (Again)I have once again switched my biologic medication! I’ve been on Inflectra, Humira, Cosentyx, and now, drumroll, please...Remicade! Remicade is chemically very similar to Inflectra, which is actually a biosimilar...reactions9comments