Learning to Live Again with My IllnessA while back I started becoming overwhelmed with my health. It felt like I was being controlled by it day in, day out and left me feeling like I had... By Sarah Lee2 min readBookmark for laterReactions 0 reactions Comments3 comments
Festive Flare UpsFlare ups of my axial spondyloarthritis don’t come with too much of a warning. My disease does not believe in timely invitations, likely because it knows there is no way... By Jill King3 min readBookmark for laterReactions 0 reactions Comments2 comments
What Is the Social Health Network Community?Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health. It also aims to expand opportunities for health... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
What Is the Social Health Network Community?Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health. It also aims to expand opportunities for health... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments4 comments
4 Ways Self-Care Is Like KnittingI’m learning to knit. This was entirely unexpected after 15 years of crochet and a lifetime of being surrounded by crochet. My mother crocheted. I crochet. My (imaginary) daughter Dawn... By Dawn Gibson2 min readBookmark for laterReactions 0 reactions Comments4 comments
Don't Be a Pain in My AS!When you become ill it seems like everyone around you all of a sudden becomes a "doctor." They want to tell you what you should be eating, how you should... By Nadine Cruz3 min readBookmark for laterReactions 0 reactions Comments4 comments
Reminders For Days When I Haven’t SleptTyped into the notes section of my phone are a collection of messages that no one sees but me. I think of them as my AS first-aid kits. Some of... By Anne-Marie Raymond2 min readBookmark for laterReactions 0 reactions Comments5 comments
My First (And Only) Experience With HumiraIn late 2017, I was prescribed Humira, an immunosuppressant delivered to my home in a Styrofoam crate accompanied by many colorful pamphlets. To learn how to inject myself, I went... By Ali Cornish2 min readBookmark for laterReactions 0 reactions Comments5 comments
Where Is My Energy When I Need it the Most?Energy is what we need to keep going. Energy is what we need to feel good. Energy is what we need for our day to be productive. Energy is what... By Nicky-Flikas-aks4 min readBookmark for laterReactions 0 reactions Comments9 comments
How to Cope With a New DiagnosisBeing newly diagnosed can be a daunting and overwhelming experience. While a new diagnosis is never easy, I share some steps that helped me cope with the mental impacts of... By Tomesha Campbell2 min readBookmark for laterReactions 0 reactions Comments4 comments
How I Cope With AS and FibromyalgiaEveryone deals with pain and fatigue differently. Those are my main symptoms from AS and fibromyalgia. My fibro diagnosis came a few months after my AS diagnosis. At first, I... By Nadine Cruz3 min readBookmark for laterReactions 0 reactions Comments20 comments
The Long DriveEvery year my wife and I drive down to the family cabin in Georgia. This trip is significant to me because it is my annual week to recharge before the... By Jed Finley3 min readBookmark for laterReactions 0 reactions Comments3 comments
My New Food and Movement in Managing Ankylosing SpondylitisContent warning: Eating behaviors and nutrition. There are usually three camps when it comes to managing ankylosing spondylitis (AS) and other chronic inflammatory conditions. The first is the pharmaceutical camp... By Lisa Marie Basile3 min readBookmark for laterReactions 0 reactions Comments19 comments
The Weight of FatigueOf all the ankylosing spondylitis and fibromyalgia symptoms I experience daily, fatigue is one of the worst. For me, it’s just as bad as the chronic pain. I’m just always... By Anna Samson3 min readBookmark for laterReactions 0 reactions Comments14 comments
The Negative Impact of Positivity CultureI once worked for a company where the notion of positivity was prized above all else. Falling short of your sales target? Stop finding excuses! Current system not working? Stop... By Anne-Marie Raymond2 min readBookmark for laterReactions 0 reactions Comments6 comments
The Moment I Stopped FightingThe AS warrior! I was a fully fledged soldier on the battle to fight this disease. I threw everything at it and with aggression. Phrases such as "my body hates... By Jamie Boder1 min readBookmark for laterReactions 0 reactions Comments3 comments
The Big Ride With Ankylosing SpondylitisI did “the big ride of the season,” at least for me. It is the big bicycle ride in downtown Indianapolis; it is called the Indy N.I.T.E. Ride. It started... By Lawrence Rick Phillips4 min readBookmark for laterReactions 0 reactions Comments9 comments
The Waiting GameThis chapter of my journey has been a waiting game. Something I’m sure many of you know all too well. It’s like a “coming of age” thing as a chronically... By Sarah Lee2 min readBookmark for laterReactions 0 reactions Comments3 comments
Another Sleepless NightAnother night waking up in tears. In tears from not knowing what to do because of the continuous excruciating pain that I have been feeling again for a few nights... By Nicky-Flikas-aks2 min readBookmark for laterReactions 0 reactions Comments23 comments
I Had a Busy Summer - How I’m Doing Now!The summer of 2022 was a wild ride for me. It started with being sick for 8 straight weeks, with 2 hospital visits in the mix. After that, I was... By Steff Di Pardo2 min readBookmark for laterReactions 0 reactions Comments1 comments