Healing Is A ProcessA few articles from my peers has made me reflect on the stage I am at with AxSpa. I have learned to live with it, manage some symptoms, cope with... By Julie Vallortigara3 min readBookmark for laterReactions 0 reactions Comments16 comments
Biologics: To Take or Not to Take? That is the Question!When I was first diagnosed, I asked: "Is there a cure?" I was told there was no cure, but advanced treatments that can manage and slow the progression of AS... By Nadine Cruz3 min readBookmark for laterReactions 0 reactions Comments3 comments
Going on My First Trip Post Diagnosis and PandemicOf course I was very excited to explore Mexico and the USA, but I had no idea how things were going to pan out. I had planned as much as... By James Hollens7 min readBookmark for laterReactions 0 reactions Comments2 comments
My Tug of Spondyloarthritis WarDo you ever get the idea that your joints and you have a distinct difference of opinion about which way to go? This morning when I woke up and was... By Lawrence Rick Phillips3 min readBookmark for laterReactions 0 reactions Comments2 comments
An Invitation to an Event Full of EmotionsOne thing I miss about the beginning of the pandemic is not having to worry about events. Not having to worry of how I will get myself there. I been... By Nicky Flikas3 min readBookmark for laterReactions 0 reactions Comments4 comments
Is It Time To Turn The Page?Things have changed so much during my 21 years with arthritis. I was 24 when my symptoms began. My mother, her parents, and even my childhood dog were all alive... By Dawn Gibson2 min readBookmark for laterReactions 0 reactions Comments1 comments
Using a Wheelchair in Public for the First TimeI’ve been using mobility aids for a while. My main two have been my rollator walker and my cane. If you’ve seen me on Instagram, I’m the girl with the... By Steff Di Pardo2 min readBookmark for laterReactions 0 reactions Comments7 comments
Flying With AS: Tips and TricksI remember the good ol' days of flying to a new city or country and spending the entire flight in a mindset of enchantment and excitement. I’d order a glass... By Lisa Marie Basile4 min readBookmark for laterReactions 0 reactions Comments10 comments
Accessibility is Not For When You Can'tAccessibility has been a hot topic lately. People have been speaking out about inaccessible buildings, damaged wheelchairs, illegally parked cars in blue spaces, and other serious topics of interest. But... By Jed Finley3 min readBookmark for laterReactions 0 reactions Comments16 comments
My Failed Attempt at Reintroducing MassageGetting a massage used to be one of my favorite things. Heading to the spa a few times a year felt like the ultimate way to indulge myself and escape... By Anne-Marie Raymond3 min readBookmark for laterReactions 0 reactions Comments4 comments
Showering With Ankylosing SpondylitisOne of the things I struggle most with due to ankylosing spondylitis and fibromyalgia is taking a shower. What used to be a refreshing and calming part of my daily... By Anna Samson2 min readBookmark for laterReactions 0 reactions Comments33 comments
"But You Don't Look Sick"If I had a dollar for every time I've been told "but you don't look sick" I would be rich by now! I mean, what does a sick person look... By Nadine Cruz4 min readBookmark for laterReactions 0 reactions Comments21 comments
My Experience With an Ankylosing Spondylitis Self-Management CourseBack in the freedom of our pre-Covid world I was lucky enough to attend a specialist self-management course for ankylosing spondylitis at a community hospital here in Melbourne. The course... By Anne-Marie Raymond2 min readBookmark for laterReactions 0 reactions Comments2 comments
Journal: Now More Than EverAugust 9, 2022 Woke up early today - my eyes just popped open. Looked at the clock - 5:32 am staring at me. My pelvis is aching a bit; the... By Rebecca C5 min readBookmark for laterReactions 0 reactions Comments7 comments
I Had a Beach Weekend - Here’s How it Went!Traveling has looked very different for a lot of us over the past 2 years. For me, I haven’t gone anywhere that requires a flight. I’m just not ready for... By Steff Di Pardo2 min readBookmark for laterReactions 0 reactions Comments2 comments
Remission is Reversing My Acceptance of My Chronic IllnessChronic illness doesn’t come into a person’s life in a convenient, ready-made package. It arrives in a series of disjointed boxes that appear on your doorstep on separate days, without... By Cassia Pelton2 min readBookmark for laterReactions 0 reactions Comments2 comments
Patient Experiences: Applying for Disability BenefitsAre you in the process of applying for disability? Maybe you have some experience with the process? In the recording below, team member Bridget sits down with patient leaders Rick... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments1 comments
Self-Care In Stressful TimesWe’re probably living in a time of peak opinion, opining, emoting, and hot takes. The feelings seem to fly out of our fingers and mouths faster than we can say... By Dawn Gibson2 min readBookmark for laterReactions 0 reactions Comments2 comments
It's Been One Year on CosentyxIt's been one year on Cosentyx. How does time just fly by? It feels like yesterday that I got my diagnosis with AxSpa--but it almost been 3 years. Cosentyx has... By Nicky Flikas4 min readBookmark for laterReactions 0 reactions Comments6 comments
Getting Back in the Driver’s Seat With Axial SpondyloarthritisLike many people my age, I grew up with parents and grandparents who saw doctors as the ultimate authority. It never entered their heads to question anything a medical professional... By Anne-Marie Raymond3 min readBookmark for laterReactions 0 reactions Comments1 comments