Luggage, Long Lines, and Jet-LagWhen my daughter received notice of acceptance into the University of Edinburgh for her Master's degree, she asked, "Will you go with me to get me settled?" Of course, I...Reactions0reactionsComments6 comments
Remission From Ankylosing Spondylitis: The Search for a UnicornIn something of a weird coincidence, my step-father also had ankylosing spondylitis. Russ died tragically in a car accident several years before I was diagnosed, and most of my knowledge...Reactions0reactionsComments8 comments
Sticking With My Healthy Habits Through the HolidaysThe holidays are approaching fast! I will go home to see my family in the south of France for two weeks! What happens to my daily healthy habits which have proven...Reactions0reactionsComments3 comments
My Medication Temperature TroublesAS is certainly a condition full of challenges. Medications like the Enbrel that I take, are supposed to help, although sometimes they can bring a whole lot of challenges themselves. Enbrel is a very...Reactions0reactionsComments12 comments
Chronic Help For Chronic Pain: Trying Marijuana For Pain For The First TimeOn my recent trip to Mexico and the USA, I was unable to bring my Enbrel injections with me. As I would be traveling around during the 2 weeks I was...Reactions0reactionsComments13 comments
Redefining My Identity With AxSpaI’ve told my personal story with AxSpa many times over. Following my diagnosis I decided to help create awareness by creating a blog called Living Well With AS. In it...Reactions0reactionsComments7 comments
My New Diagnosis of ColitisI wrote about my new digestive issues back in the summer. Back then I didn’t know what would come of these new issues, but I’m here to say I now...Reactions0reactionsComments4 comments
Having a Parent Care for MeI was 21 years old when my AS started getting bad. It's been almost two years since my condition has worsened. I've found some treatments that keep my condition more...Reactions0reactionsComments6 comments
Learning to Live Again with My IllnessA while back I started becoming overwhelmed with my health. It felt like I was being controlled by it day in, day out and left me feeling like I had...Reactions0reactionsComments3 comments
Festive Flare UpsFlare ups of my axial spondyloarthritis don’t come with too much of a warning. My disease does not believe in timely invitations, likely because it knows there is no way...Reactions0reactionsComments2 comments
What Is the Social Health Network Community?Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health. It also aims to expand opportunities for health...Reactions0reactionsComments0 comments
What Is the Social Health Network Community?Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health. It also aims to expand opportunities for health...Reactions0reactionsComments4 comments
4 Ways Self-Care Is Like KnittingI’m learning to knit. This was entirely unexpected after 15 years of crochet and a lifetime of being surrounded by crochet. My mother crocheted. I crochet. My (imaginary) daughter Dawn...Reactions0reactionsComments4 comments
Don't Be a Pain in My AS!When you become ill it seems like everyone around you all of a sudden becomes a "doctor." They want to tell you what you should be eating, how you should...Reactions0reactionsComments4 comments
Reminders For Days When I Haven’t SleptTyped into the notes section of my phone are a collection of messages that no one sees but me. I think of them as my AS first-aid kits. Some of...Reactions0reactionsComments5 comments
My First (And Only) Experience With HumiraIn late 2017, I was prescribed Humira, an immunosuppressant delivered to my home in a Styrofoam crate accompanied by many colorful pamphlets. To learn how to inject myself, I went...Reactions0reactionsComments4 comments
Where Is My Energy When I Need it the Most?Energy is what we need to keep going. Energy is what we need to feel good. Energy is what we need for our day to be productive. Energy is what...Reactions0reactionsComments9 comments
How to Cope With a New DiagnosisBeing newly diagnosed can be a daunting and overwhelming experience. While a new diagnosis is never easy, I share some steps that helped me cope with the mental impacts of...Reactions0reactionsComments4 comments
How I Cope With AS and FibromyalgiaEveryone deals with pain and fatigue differently. Those are my main symptoms from AS and fibromyalgia. My fibro diagnosis came a few months after my AS diagnosis. At first, I...Reactions0reactionsComments20 comments
The Long DriveEvery year my wife and I drive down to the family cabin in Georgia. This trip is significant to me because it is my annual week to recharge before the...Reactions0reactionsComments3 comments