Grief and Chronic IllnessWe most commonly associate the term grief with death. It’s used to describe the emotional state we experience when someone close to us passes away. In its simplest form, though...Reactions0reactionsComments3 comments
4 Reasons Why I'm (Kind Of) A PrepperMy mother and I lived with her parents throughout my childhood, which exposed me to lots of stories about The Great Depression, World War Two, and the evils of unnecessary...Reactions0reactionsComments3 comments
Deciding to Have Children With Ankylosing SpondylitisI was diagnosed with ankylosing spondylitis the year before I became pregnant. At the time, I was living in the Chicago area and had access to excellent medical care. I...Reactions0reactionsComments4 comments
Expectations of Treatment: RheumatologyHaving managed axial spondyloarthritis (AxSpA) for the past few years, I have not always had great results when dealing with treating physicians. Nevertheless, 99% of the time I have been...Reactions0reactionsComments4 comments
Differentiating Inflammatory Back Pain from OsteoarthritisInflammatory back pain refers to pain and stiffness that comes along with an autoimmune condition such as ankylosing spondylitis. Wear-and-tear osteoarthritis and degenerative disc disease usually occurs over time with...Reactions0reactionsComments9 comments
Prepare To Share: Learning How to Tell AS StoriesWe all have a story to tell. Some open people's eyes, excite the mind, or take your listeners to another world. On the other hand, some people’s stories are boring...Reactions0reactionsComments8 comments
Navigating the Online World of Axial SpondyloarthritisLike so many other places online, the axial spondyloarthritis community has become an increasingly polarized place to inhabit in recent years. I was so thankful to discover an assortment of...Reactions0reactionsComments3 comments
How to Navigate a Diagnosis Without a Good Support SystemA diagnosis can change everything. Suddenly, we’re thrust into a new world of doctors' appointments, treatments, and lifestyle changes. And while having a sound support system, in general, is essential...Reactions0reactionsComments9 comments
I Survived Hurricane Ian With ASI moved to Orlando, Florida from NY about a year ago. I wanted a better environment for my children as well as for myself, the bitter cold weather of NY...Reactions0reactionsComments6 comments
Healing Is A ProcessA few articles from my peers has made me reflect on the stage I am at with AxSpa. I have learned to live with it, manage some symptoms, cope with...Reactions0reactionsComments16 comments
Biologics: To Take or Not to Take? That is the Question!When I was first diagnosed, I asked: "Is there a cure?" I was told there was no cure, but advanced treatments that can manage and slow the progression of AS...Reactions0reactionsComments3 comments
Going on My First Trip Post Diagnosis and PandemicOf course I was very excited to explore Mexico and the USA, but I had no idea how things were going to pan out. I had planned as much as...Reactions0reactionsComments2 comments
My Tug of Spondyloarthritis WarDo you ever get the idea that your joints and you have a distinct difference of opinion about which way to go? This morning when I woke up and was...Reactions0reactionsComments2 comments
An Invitation to an Event Full of EmotionsOne thing I miss about the beginning of the pandemic is not having to worry about events. Not having to worry of how I will get myself there. I been...Reactions0reactionsComments4 comments
Is It Time To Turn The Page?Things have changed so much during my 21 years with arthritis. I was 24 when my symptoms began. My mother, her parents, and even my childhood dog were all alive...Reactions0reactionsComments1 comments
Using a Wheelchair in Public for the First TimeI’ve been using mobility aids for a while. My main two have been my rollator walker and my cane. If you’ve seen me on Instagram, I’m the girl with the...Reactions0reactionsComments7 comments
Flying With AS: Tips and TricksI remember the good ol' days of flying to a new city or country and spending the entire flight in a mindset of enchantment and excitement. I’d order a glass...Reactions0reactionsComments10 comments
Accessibility is Not For When You Can'tAccessibility has been a hot topic lately. People have been speaking out about inaccessible buildings, damaged wheelchairs, illegally parked cars in blue spaces, and other serious topics of interest. But...Reactions0reactionsComments16 comments
My Failed Attempt at Reintroducing MassageGetting a massage used to be one of my favorite things. Heading to the spa a few times a year felt like the ultimate way to indulge myself and escape...Reactions0reactionsComments4 comments
Showering With Ankylosing SpondylitisOne of the things I struggle most with due to ankylosing spondylitis and fibromyalgia is taking a shower. What used to be a refreshing and calming part of my daily...Reactions0reactionsComments33 comments