Using a Wheelchair in Public for the First TimeI’ve been using mobility aids for a while. My main two have been my rollator walker and my cane. If you’ve seen me on Instagram, I’m the girl with the...reactions7comments
Flying With AS: Tips and TricksI remember the good ol' days of flying to a new city or country and spending the entire flight in a mindset of enchantment and excitement. I’d order a glass...reactions10comments
My Failed Attempt at Reintroducing MassageGetting a massage used to be one of my favorite things. Heading to the spa a few times a year felt like the ultimate way to indulge myself and escape...reactions4comments
Showering With Ankylosing SpondylitisOne of the things I struggle most with due to ankylosing spondylitis and fibromyalgia is taking a shower. What used to be a refreshing and calming part of my daily...reactions33comments
"But You Don't Look Sick"If I had a dollar for every time I've been told "but you don't look sick" I would be rich by now! I mean, what does a sick person look...reactions21comments
My Experience With an Ankylosing Spondylitis Self-Management CourseBack in the freedom of our pre-Covid world I was lucky enough to attend a specialist self-management course for ankylosing spondylitis at a community hospital here in Melbourne. The course...reactions2comments
Journal: Now More Than EverAugust 9, 2022 Woke up early today - my eyes just popped open. Looked at the clock - 5:32 am staring at me. My pelvis is aching a bit; the...reactions7comments
I Had a Beach Weekend - Here’s How it Went!Traveling has looked very different for a lot of us over the past 2 years. For me, I haven’t gone anywhere that requires a flight. I’m just not ready for...reactions2comments
Remission is Reversing My Acceptance of My Chronic IllnessChronic illness doesn’t come into a person’s life in a convenient, ready-made package. It arrives in a series of disjointed boxes that appear on your doorstep on separate days, without...reactions2comments
Patient Experiences: Applying for Disability BenefitsAre you in the process of applying for disability? Maybe you have some experience with the process? In the recording below, team member Bridget sits down with patient leaders Rick...reactions1comment
Self-Care In Stressful TimesWe’re probably living in a time of peak opinion, opining, emoting, and hot takes. The feelings seem to fly out of our fingers and mouths faster than we can say...reactions2comments
It's Been One Year on CosentyxIt's been one year on Cosentyx for axSpa. How does time just fly by? It feels like yesterday that I got my diagnosis—but it has been almost 3 years. Cosentyx...reactions6comments
Getting Back in the Driver’s Seat With Axial SpondyloarthritisLike many people my age, I grew up with parents and grandparents who saw doctors as the ultimate authority. It never entered their heads to question anything a medical professional...reactions1comment
Keegan’s Experience With the Mediterranean DietMy husband Keegan finally hit the point where his AS was stable. The last few years brought lots of challenges that impacted his AS: 2 babies, 2 total hip replacements...reactions3comments
Inflammatory Arthritis and Intermittent FastingDisclaimer: I am not a doctor, so you should not take health advice from me. I am a chronic illness advocate and a health journalist, which means I turn to...reactions2comments
I’m Experiencing Writer’s Block and Brain Fog CombinedI’m going through a lot this year, and that means my work ethic has sort of gone out the window. I’m experiencing some of the most brain fog I ever...reactions2comments
Learnings From My Recent Hip SurgerySix months ago I had to undergo hip surgery to fix some long-term issues which caused me a lot of pain and limitations in my movement and exercise routine. You...reactions8comments
How I Prevent Fatigue from Derailing My Exercise RoutineI used to be one who could quickly work out for an hour or more every day and never feel tired. I could also go out on long runs without...reactions11comments
Long COVID: Mental Health EditionThere has been a lot of talk about long Covid and the lasting physical effects of the virus. I really feel for anyone out there experiencing long Covid and it got me wondering if this pandemic...reactions10comments
Flare-Ups and How to CopeFlare-ups are not only common but can be a real pain in the butt. Whether it hits me when I first wake up or later in the day, the swelling...reactions8comments