Going on My First Trip Post Diagnosis and PandemicOf course I was very excited to explore Mexico and the USA, but I had no idea how things were going to pan out. I had planned as much as...reactions2comments
My Tug of Spondyloarthritis WarDo you ever get the idea that your joints and you have a distinct difference of opinion about which way to go? This morning when I woke up and was...reactions2comments
An Invitation to an Event Full of EmotionsOne thing I miss about the beginning of the pandemic is not having to worry about events. Not having to worry of how I will get myself there. I been...reactions4comments
Is It Time To Turn The Page?Things have changed so much during my 21 years with arthritis. I was 24 when my symptoms began. My mother, her parents, and even my childhood dog were all alive...reactions1comment
Using a Wheelchair in Public for the First TimeI’ve been using mobility aids for a while. My main two have been my rollator walker and my cane. If you’ve seen me on Instagram, I’m the girl with the...reactions7comments
Flying With AS: Tips and TricksI remember the good ol' days of flying to a new city or country and spending the entire flight in a mindset of enchantment and excitement. I’d order a glass...reactions10comments
Accessibility is Not For When You Can'tAccessibility has been a hot topic lately. People have been speaking out about inaccessible buildings, damaged wheelchairs, illegally parked cars in blue spaces, and other serious topics of interest. But...reactions16comments
My Failed Attempt at Reintroducing MassageGetting a massage used to be one of my favorite things. Heading to the spa a few times a year felt like the ultimate way to indulge myself and escape...reactions4comments
Showering With Ankylosing SpondylitisOne of the things I struggle most with due to ankylosing spondylitis and fibromyalgia is taking a shower. What used to be a refreshing and calming part of my daily...reactions33comments
"But You Don't Look Sick"If I had a dollar for every time I've been told "but you don't look sick" I would be rich by now! I mean, what does a sick person look...reactions21comments
My Experience With an Ankylosing Spondylitis Self-Management CourseBack in the freedom of our pre-Covid world I was lucky enough to attend a specialist self-management course for ankylosing spondylitis at a community hospital here in Melbourne. The course...reactions2comments
Journal: Now More Than EverAugust 9, 2022 Woke up early today - my eyes just popped open. Looked at the clock - 5:32 am staring at me. My pelvis is aching a bit; the...reactions7comments
I Had a Beach Weekend - Here’s How it Went!Traveling has looked very different for a lot of us over the past 2 years. For me, I haven’t gone anywhere that requires a flight. I’m just not ready for...reactions2comments
Remission is Reversing My Acceptance of My Chronic IllnessChronic illness doesn’t come into a person’s life in a convenient, ready-made package. It arrives in a series of disjointed boxes that appear on your doorstep on separate days, without...reactions2comments
Patient Experiences: Applying for Disability BenefitsAre you in the process of applying for disability? Maybe you have some experience with the process? In the recording below, team member Bridget sits down with patient leaders Rick...reactions1comment
Self-Care In Stressful TimesWe’re probably living in a time of peak opinion, opining, emoting, and hot takes. The feelings seem to fly out of our fingers and mouths faster than we can say...reactions2comments
It's Been One Year on CosentyxIt's been one year on Cosentyx. How does time just fly by? It feels like yesterday that I got my diagnosis with AxSpa--but it almost been 3 years. Cosentyx has...reactions6comments
Getting Back in the Driver’s Seat With Axial SpondyloarthritisLike many people my age, I grew up with parents and grandparents who saw doctors as the ultimate authority. It never entered their heads to question anything a medical professional...reactions1comment
Keegan’s Experience With the Mediterranean DietMy husband Keegan finally hit the point where his AS was stable. The last few years brought lots of challenges that impacted his AS: 2 babies, 2 total hip replacements...reactions3comments
Inflammatory Arthritis and Intermittent FastingDisclaimer: I am not a doctor, so you should not take health advice from me. I am a chronic illness advocate and a health journalist, which means I turn to...reactions2comments