My Tug of Spondyloarthritis WarDo you ever get the idea that your joints and you have a distinct difference of opinion about which way to go? This morning when I woke up and was...Reactions0reactionsComments2 comments
An Invitation to an Event Full of EmotionsOne thing I miss about the beginning of the pandemic is not having to worry about events. Not having to worry of how I will get myself there. I been...Reactions0reactionsComments4 comments
Is It Time To Turn The Page?Things have changed so much during my 21 years with arthritis. I was 24 when my symptoms began. My mother, her parents, and even my childhood dog were all alive...Reactions0reactionsComments1 comments
Using a Wheelchair in Public for the First TimeI’ve been using mobility aids for a while. My main two have been my rollator walker and my cane. If you’ve seen me on Instagram, I’m the girl with the...Reactions0reactionsComments7 comments
Flying With AS: Tips and TricksI remember the good ol' days of flying to a new city or country and spending the entire flight in a mindset of enchantment and excitement. I’d order a glass...Reactions0reactionsComments10 comments
Accessibility is Not For When You Can'tAccessibility has been a hot topic lately. People have been speaking out about inaccessible buildings, damaged wheelchairs, illegally parked cars in blue spaces, and other serious topics of interest. But...Reactions0reactionsComments16 comments
My Failed Attempt at Reintroducing MassageGetting a massage used to be one of my favorite things. Heading to the spa a few times a year felt like the ultimate way to indulge myself and escape...Reactions0reactionsComments4 comments
Showering With Ankylosing SpondylitisOne of the things I struggle most with due to ankylosing spondylitis and fibromyalgia is taking a shower. What used to be a refreshing and calming part of my daily...Reactions0reactionsComments33 comments
"But You Don't Look Sick"If I had a dollar for every time I've been told "but you don't look sick" I would be rich by now! I mean, what does a sick person look...Reactions0reactionsComments21 comments
My Experience With an Ankylosing Spondylitis Self-Management CourseBack in the freedom of our pre-Covid world I was lucky enough to attend a specialist self-management course for ankylosing spondylitis at a community hospital here in Melbourne. The course...Reactions0reactionsComments2 comments
Journal: Now More Than EverAugust 9, 2022 Woke up early today - my eyes just popped open. Looked at the clock - 5:32 am staring at me. My pelvis is aching a bit; the...Reactions0reactionsComments7 comments
I Had a Beach Weekend - Here’s How it Went!Traveling has looked very different for a lot of us over the past 2 years. For me, I haven’t gone anywhere that requires a flight. I’m just not ready for...Reactions0reactionsComments2 comments
Remission is Reversing My Acceptance of My Chronic IllnessChronic illness doesn’t come into a person’s life in a convenient, ready-made package. It arrives in a series of disjointed boxes that appear on your doorstep on separate days, without...Reactions0reactionsComments2 comments
Patient Experiences: Applying for Disability BenefitsAre you in the process of applying for disability? Maybe you have some experience with the process? In the recording below, team member Bridget sits down with patient leaders Rick...Reactions0reactionsComments1 comments
Self-Care In Stressful TimesWe’re probably living in a time of peak opinion, opining, emoting, and hot takes. The feelings seem to fly out of our fingers and mouths faster than we can say...Reactions0reactionsComments2 comments
It's Been One Year on CosentyxIt's been one year on Cosentyx. How does time just fly by? It feels like yesterday that I got my diagnosis with AxSpa--but it almost been 3 years. Cosentyx has...Reactions0reactionsComments6 comments
Getting Back in the Driver’s Seat With Axial SpondyloarthritisLike many people my age, I grew up with parents and grandparents who saw doctors as the ultimate authority. It never entered their heads to question anything a medical professional...Reactions0reactionsComments1 comments
Keegan’s Experience With the Mediterranean DietMy husband Keegan finally hit the point where his AS was stable. The last few years brought lots of challenges that impacted his AS: 2 babies, 2 total hip replacements...Reactions0reactionsComments3 comments
Inflammatory Arthritis and Intermittent FastingDisclaimer: I am not a doctor, so you should not take health advice from me. I am a chronic illness advocate and a health journalist, which means I turn to...Reactions0reactionsComments2 comments
I’m Experiencing Writer’s Block and Brain Fog CombinedI’m going through a lot this year, and that means my work ethic has sort of gone out the window. I’m experiencing some of the most brain fog I ever...Reactions0reactionsComments2 comments