Articles

I knew — in some intuitive way — that I had ankylosing spondylitis (or something similar) about a decade before I got my diagnosis. I knew it when my eyes...

You know about that soul-crushing, relentless, haunting fatigue — the kind of fatigue that makes the walk to the kitchen feel like a marathon? It's the kind of fatigue that...

I'm sitting here at lunch on a Friday thinking about how I'm going to get through the next 12 hours. I know what's coming. Dinner needs to happen. Kids need...

Disabled individuals endure many challenges throughout life. Living with an illness is exhausting both physically and mentally from a range of symptoms, attending a handful of appointments, and reoccurring flare-ups...

When the Pandemic hit, we were all sent home from our jobs and schools. For a while things were pretty easy breezy. Wake up when you want, eat when you...

Editor's note: Read part one of Pamela's journey here. The next step in my biologic journey was Cimzia. First, the bad news: the only approved version of this medication for...

My household was caught in the midwestern regional blackout of 2021. The greater Detroit area-where we live-was especially hard hit. The day started out like any other. Meds, coffee, breakfast...

I have previously written about a few of the things that I decided to stop doing with my AxSpa diagnosis, so I thought I would flip that idea on its...

You can mask if you want to, even if you need to leave your friends behind. For me, and several other teachers out there, school has started up again. Our...

My journey through living with chronic fatigue started about a year and a half ago. I can’t remember the exact day—everything seems to blend together these days. It truly felt...

I remember when I found out I had an autoimmune disease. Learning my body had begun to attack itself was a strange moment for me. I couldn’t get a particular...

Months have passed since the July 4th celebrations here in the U.S.A. Fireworks, camping trips, and picnics resumed by more than a million-fold this year. Life restored; the flow and...

Just to set the stage-—I’m not the one with AS. My husband, Keegan, is. And I’m his caregiver. We both are at home all day. I work from my garage...

I read recently that the longer it takes to get a diagnosis for AS the bleaker the long-term outcome for the sufferer. Teresa and I have talked a lot about...

Getting my diagnosis, has been a bumpy ride for me. I had to see numerous doctors. Some that saying my mental health was the reason that everything that was happening...

Up until recently, I’d been pretty lucky with my doctors. My family doctor was the first doctor I told about my pain 4 years ago. She believed me right away...

In part 1, I told you how I experienced various symptoms for years without getting some answers. In part 2, I finally made progress once I decided to get involved...

Many people use mobility aids. These include canes, crutches, walkers/rollators, wheelchairs, etc. They are common things you can come across every day. I use my cane a lot when I...

Picture this: I'm seven years old, and there are several large adults holding me down to a hospital bed so that a nurse could inject me with a needle. At...

I need to stretch every day. Without fault, my hips are always stiff and the only way to keep adequate mobility is to constantly stretch. Particularly, I’m almost always stiff...