Trouble Falling AS-leepI have always been a bit of a night owl, but since AS forced its way into my life, it has taken things to...reactions27comments
There Is No Universal AS ExperienceOne of the things that really helped me understand and move through some of the grief and confusion of my AS diagnosis...reactions4comments
The Mind-Body-Spirit Axis: Holistic Flare TipsI’ve noticed that my flare ups are 100 times worse when my mind, body, and spirit are not aligned. More pain. More...reactions5comments
Getting Rejected for Disability AidAt the end of my article "Too Disabled to Employ, Not Disabled Enough to Help", I was about to apply a second...reactions36comments
7 Years in No Diagnosis Land, Part 2In part 1 of No Diagnosis Land, I told you how I started to have symptoms in different parts of my body...reactions7comments
When the Rain CameSummer 1999. I am working and earning good money as a self-employed carpenter. The kids are doing well in school and Teresa...reactions4comments
The Easing of COVID Restrictions and My Fourth VaccineAs Covid restrictions ease here in Ireland, my anxiety levels are doing the opposite. I understand that we can’t live forever in...reactions3comments
3 Tips for Caregivers When They’re Not NeededSometimes Keegan, my husband with AxSpa, doesn’t need me. Sometimes, Keegan is back at 80% or 90% or 99%, and I am...reactions4comments
Coming Out of the "Chronic Closet"To be frank - when I was first diagnosed with AS I was embarrassed. I didn’t know a single person with an...reactions14comments
A Piece of My HeartI woke this morning around 4:30 a.m. thinking of my father. When I was a child, he was up at the crack...reactions3comments
March Is the Worst Month (and the Best Month)I’m sitting here after a long day of work along with Keegan, my husband with AS, talking about how the weather wrecks...reactions1comment
Self-Care For Spoonies: More Than A BuzzwordThe National Institute on Mental Health says that self-care “means taking the time to do things that help you live well and...reactions4comments
Eye Irritation: My Journey With IritisHave you ever felt like you had a piece of dirt stuck in your eye, and no matter how many times you...reactions13comments
Chronic Illness And Sensory OverstimulationInspired by a post by The Unchargeables, an Instagram account dedicated to those of us with chronic illness, I was thinking about...reactions2comments
Creating Routines With Unpredictable SymptomsCultivating and sticking to a strict routine when your symptoms can change, worsen or arise quite suddenly can be challenging to say...reactions3comments
Finding a Hobby That Works With Your LimitationsIt’s heartbreaking watching your body slowly deteriorate and transform into something you don’t even recognize anymore. Many of us used to be...reactions6comments
3 Years Of AS: Reflecting On My Journey So FarThis January marks the third anniversary of my AS diagnosis. However, I can’t tell you the exact date. The previous January, a close...reactions2comments
Becoming ButterfliesThe idea of raising butterflies never crossed my mind until I spotted two mature Eastern Black Swallowtail caterpillars lazily munching away on...reactions4comments
Getting Ready for My Hip SurgerySoon I will undergo right hip surgery. After a more than a year of hip pain, trying every conservative measure possible (physio...reactions5comments
The Fear of My Symptoms Getting Bad AgainIf you live with AS or any chronic illness, I’m sure you know the feeling of what I’m about to talk about...reactions5comments
