Blessings of My DiseaseAlthough being diagnosed with ankylosing spondylitis was a scary and uncertain experience, there are a lot of positives to come out of it. I began fundraising, something I had never...Reactions0reactionsComments1 comments
Diet Changes That Helped My ASLiving with condition like AS is not as simple as taking medicine and getting on with it. Medication can only do so much. I'm very grateful for how well my...Reactions0reactionsComments28 comments
My AxSpa JourneyI have lived with this condition for 30 years now. And I can say it has been a true rollercoaster ride for me filled with many ups and downs. Unfortunately...Reactions0reactionsComments1 comments
The Importance of Sunlight With ASI've lived in New York City for nearly 20 years — and for most of it, nature was just not a priority to me. I relished the cement jungle and...Reactions0reactionsComments12 comments
How To Be Heard With AxSpa: Doctor EditionHave you had a doctor make you feel like your pain wasn’t real? Or maybe they simplified your treatment by saying something like “this is going to be easily managed...Reactions0reactionsComments0 comments
My 5 Things For a Better DayI’ve changed so much during my 20 years with spondyloarthritis that my 24-year-old self probably wouldn’t know me. She lived a life mostly in denial of her disability. That Dawn...Reactions0reactionsComments2 comments
I'm So Sick of Brain FogDo you know what brain fog is? Maybe you have it, you just don’t know the term. Brain fog is characterized by forgetfulness, confusion, and a general lack of mental...Reactions0reactionsComments3 comments
Learning to Cope With Illness Isn’t A Straight PathIt’s a misconstrued assumption that those who have spent years with an illness eventually unlock some secret in managing it. I’m here to say that simply just isn’t true. There...Reactions0reactionsComments6 comments
Hold for Infections: My Recent Experience with Biologics and ImmunosuppressionMy life with biologics stretches back six years now. I was diagnosed nearly 15 years after initial symptoms appeared, and since I had been self-medicating with NSAIDs for years (without...Reactions0reactionsComments7 comments
When the Rain CameSummer 1999. I am working and earning good money as a self-employed carpenter. The kids are doing well in school and Teresa, my wife, has signed up at our local...Reactions0reactionsComments4 comments
Hiking and DiscoveringLiving on a tropical island can surely be of great benefit during summer time. All the heat and high temperature makes you want to spend the day on the beach...Reactions0reactionsComments4 comments
Questions I Ask Myself When Seeing a New DoctorLet’s talk specialty physicians. If you grimaced at the thought of having this conversation, you probably have had the same experience that it seems like almost everyone in the AS...Reactions0reactionsComments7 comments
Dealing With FOMOKeeping up with the boundaries and limitations can often be challenging. When everyone we know is out with friends and family, or going for long walks in the trails of...Reactions0reactionsComments4 comments
The Hidden Costs of AxSpACost (noun): something that is given, needed or lost in order to get a particular thing. Living with AxSpA comes at a cost. The explicit costs of living with AxSpA...Reactions0reactionsComments3 comments
Advocates Sharing With Advocates: René Interviews JamesOne thing that became extremely clear to me since I have joined the community is the difference in how everybody experiences AS. No journey is the same and everybody has...Reactions0reactionsComments4 comments
The 5 Blessings of My DiseaseThe first blessing is the community. This disease can definitely make you feel lonely, crazy, and misunderstood. But finding a community, a group related to your disease, becomes the place...Reactions0reactionsComments4 comments
Dogs With PurposeAs I have been walking this summer, I have encountered two great new friends, and while neither of them has arthritis (at least that I know of), they provide some...Reactions0reactionsComments9 comments
Am I Really Disabled?I am in my early twenties and people are often skeptical when I tell them that I am disabled. In their eyes, I am a young person and therefore deemed...Reactions0reactionsComments6 comments
Casey, A Supportive Person in My LifeWhen I first got diagnosed with AS, I felt distraught. But I was very lucky to have someone in my life who is not only a medical professional but a total support to me...Reactions0reactionsComments5 comments
Managing Everyday Tasks with AxSpaAs many of you already know, AS makes our lives a lot more difficult. Simple everyday tasks, that we once took for granted, become things that exhaust us. Since you are part...Reactions0reactionsComments11 comments