Speaking A Shared Language of PainLately, I’ve been in an endless flare-up — one of those flare-ups that change shape every day. It's my neck or my...reactions6comments
Experimenting With CBNHere in Canada, Cannabis is legal. For a while now I have been using cannabis as a way to cope with my...reactions3comments
The Fear of Going Abroad With AxSpaAs I lie here in bed, listening to a Chili Peppers record, thoughts of worries fill my head. Since I became sick...reactions6comments
Stress, Grief, and Ankylosing SpondylitisIt doesn’t feel like a stretch to say that stress has always made my AS symptoms worse. Most medical professionals and the...reactions4comments
Fatigue...What I Wish I Knew When I Was DiagnosedFatigue is tricky, namely because it can impact so much. From your work, to relationships, social life and ability to just function...reactions6comments
Did Stress Lead To My Diagnosis?Eight years ago, I had my first big flare in my feet. It came from nowhere. It was Summer, I was enjoying...reactions6comments
Watching a Loved One Go Through a Flare-UpBefore we knew they were called "flare-ups," I knew my husband, Keegan, was experiencing something like I'd never seen before. Except for...reactions4comments
I Believe In ButterfliesButterflies are one of my favorite things in life. Their particular beauty and grace makes it impossible to look away. And they...reactions2comments
The Hardest Part of This DiseaseHow many of you wish more people around you would understand? How many of you wish living in this world, as a...reactions4comments
What IfsWith something like ankylosing spondylitis, there are so many physical effects of the condition that it’s sometimes easy to overlook the mental...reactions19comments
Even The Nicest People Don't Get ItYou know how living with ankylosing spondylitis can feel like speaking a language that only you understand? It can be really isolating...reactions6comments
3 Frenemy Habits Threatening Your Self-CareI hate finding out that somebody wasn’t actually my friend. It’s painful and embarrassing, especially when the evidence was plain for me...reactions4comments
I Feel Unwelcome in My Own BodyThe other day a friend sent me a poem and one line really stuck out to me. It said, “Growing inside of...reactions6comments
Exploring Fibromyalgia: Is It My AS or Something New?I have been back on Humira for 6 months now, which is the same drug that had put me into remission for...reactions3comments
Fatigue, The Mother of All Calls From Inside The HouseAnybody reading this already knows that arthritis is serious. It hurts. It burns. It stops people in their tracks with brain fog...reactions3comments
7 Questions for Checking in With A PartnerNext month marks 14 years since Keegan and I got together. I remember it very fondly. We were 17-years-old and mutual friends...reactions2comments
Adapting to Work Environment Changes with AxSpAThere’s a huge shift happening right now in on the work scene, with employees demanding more in terms of benefits, pay, and...reactions4comments
The Nutrition ParadoxWhen I was diagnosed with AS, I was also diagnosed with Crohn's Disease. A double whammy. I grew to understand that dietary...reactions4comments
I’m So Over It - Chronic Illness and Healthcare Burnout2021 was fun, tiring, wonderful, complicated, and stressful, among other things. Above all, it was a long, exhausting year full of healthcare...reactions4comments
Mourning My Former AthleticismReceiving an AxSpA diagnosis can come with a flurry of emotions, both good and bad. I received my diagnosis before my senior...reactions4comments
