An Open Letter to Able-Bodied IndividualsDear able-bodied individuals, If you lived in my shoes for just one day, you would understand—the trauma, the sacrifices I have to make, the constant pressure to perform more abled...Reactions0reactionsComments0 comments
Life Lessons from 17 Years of IllnessI’ve had many different chapters in my life—I was diagnosed with AS when I was nine—and I was incredibly ill until I was 16. I spent the next eight years...Reactions0reactionsComments0 comments
An Unrealistic Outlook on ExerciseIn the past year, I have gained unwanted weight. This is due to a lack of mobility and medication. I was pretty much bed-bound for three months, while on steroids for 5 months...Reactions0reactionsComments15 comments
I Was Wrong About ArthritisI was wrong about arthritis before. I was wrong about who arthritis affects. I thought it was an affliction of the elderly, a nuisance I might encounter as I age...Reactions0reactionsComments4 comments
Tuning Into Self-Worth While Chronically IllA lot of the time when I'm speaking to people with AS (and other chronic pain conditions), they mention that their disease has made them feel worthless. This always breaks...Reactions0reactionsComments3 comments
I Tried TENS For PainTENS stands for transcutaneous electrical nerve stimulation. This is a fancy way of describing mild zaps of electricity being sent through the skin to disrupt pain sensations. It's important to discuss...Reactions0reactionsComments6 comments
Everyday Thoughts and My Chronic IllnessWhen it can affect every aspect of your day-to-day life, there’s no forgetting about a chronic illness. After I was first diagnosed with ankylosing spondylitis, I had trouble plugging the...Reactions0reactionsComments5 comments
How I Sleep Better With ArthritisMy best days go full circle, with a natural flow from activity, rest, more activity, relaxation, and then sleep. I begin and end the day with a quiet spiritual practice...Reactions0reactionsComments5 comments
My nr-AxSpa Biologic Journey: Part OneSince being diagnosed with non-radiographic axial spondyloarthritis in 2018, I have tried four separate biologics at various times. I am telling you about my experience with these biologics not to...Reactions0reactionsComments5 comments
A Brutally Honest Shingles FAQI've learned that a lot of people in the ankylosing spondylitis community have experienced the incredibly disgusting, horribly painful, grossly unattractive plague that is shingles. So have I. And so...Reactions0reactionsComments2 comments
My Achilles Heel Is Literally My Achilles HeelAn aspect of AS that is often overlooked is foot pain. AS can cause a lot of pain in the foot, especially the heel. One of the symptoms I did...Reactions0reactionsComments19 comments
Grief, Arthritis, and Applying for DisabilityI grieve for myself. I should say my former self. I no longer grieve the event that caused the grief (that ship has sailed). Instead, I grieve my suffering. What...Reactions0reactionsComments23 comments
Switching Biologics for Ankylosing SpondylitisAlong your treatment journey, you may switch the biologics you take for ankylosing spondylitis. There is much to consider before swapping your meds. Weighing the benefits and costs listed below...Reactions0reactionsComments3 comments
Preparing For a New School Year With AxSpaLiving with a chronic illness and being a mother doesn’t come easy. I am learning new ways every day to make it a little easier. I think you can never...Reactions0reactionsComments5 comments
Take the Managing Treatment and Medication SurveyThe Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a chronic (long-term) health condition like ankylosing spondylitis (AS)...Reactions0reactionsComments0 comments
Chronic Illness: A Life Sentence or A Lifeline?A chronic illness diagnosis can be a very confusing and terrifying experience. Being told that I had a medical condition that will never go away was a huge shock for...Reactions0reactionsComments5 comments
The Many Doctors Who Manage My Axial SpondyloarthritisOne question I get often is "who treats axial spondyloarthritis?" Typically, this question arises from individuals with some of the symptoms of AxSpA but no diagnosis, so I figured why...Reactions0reactionsComments11 comments
Alcohol and AS: What I've RealizedLast year I wrote a few articles about how I cut alcohol out entirely for a few months. At that point, I was recalibrating my relationship with alcohol after spending...Reactions0reactionsComments11 comments
A Look At The Mythology of the SpineI read an interesting bit of mythology around the spine the other day, as I delved into one of my many "Wikipedia holes" — I have a tendency toward late-night...Reactions0reactionsComments2 comments
How's Your Pandemic FOMO?The epic film Love Actually tells us that Christmas is an enchanted time for magical moments and taking stock of our lives. In between making dreams come true, we’re meant...Reactions0reactionsComments2 comments