How I Sleep Better With ArthritisMy best days go full circle, with a natural flow from activity, rest, more activity, relaxation, and then sleep. I begin and end the day with a quiet spiritual practice...Reactions0reactionsComments5 comments
My nr-AxSpa Biologic Journey: Part OneSince being diagnosed with non-radiographic axial spondyloarthritis in 2018, I have tried four separate biologics at various times. I am telling you about my experience with these biologics not to...Reactions0reactionsComments5 comments
A Brutally Honest Shingles FAQI've learned that a lot of people in the ankylosing spondylitis community have experienced the incredibly disgusting, horribly painful, grossly unattractive plague that is shingles. So have I. And so...Reactions0reactionsComments2 comments
My Achilles Heel Is Literally My Achilles HeelAn aspect of AS that is often overlooked is foot pain. AS can cause a lot of pain in the foot, especially the heel. One of the symptoms I did...Reactions0reactionsComments19 comments
Grief, Arthritis, and Applying for DisabilityI grieve for myself. I should say my former self. I no longer grieve the event that caused the grief (that ship has sailed). Instead, I grieve my suffering. What...Reactions0reactionsComments23 comments
Switching Biologics for Ankylosing SpondylitisAlong your treatment journey, you may switch the biologics you take for ankylosing spondylitis. There is much to consider before swapping your meds. Weighing the benefits and costs listed below...Reactions0reactionsComments3 comments
Preparing For a New School Year With AxSpaLiving with a chronic illness and being a mother doesn’t come easy. I am learning new ways every day to make it a little easier. I think you can never...Reactions0reactionsComments5 comments
Take the Managing Treatment and Medication SurveyThe Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a chronic (long-term) health condition like axial spondyloarthritis (AxSpA)...Reactions0reactionsComments0 comments
Take the Managing Treatment and Medication SurveyThe Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a chronic (long-term) health condition like ankylosing spondylitis (AS)...Reactions0reactionsComments0 comments
Chronic Illness: A Life Sentence or A Lifeline?A chronic illness diagnosis can be a very confusing and terrifying experience. Being told that I had a medical condition that will never go away was a huge shock for...Reactions0reactionsComments5 comments
The Many Doctors Who Manage My Axial SpondyloarthritisOne question I get often is "who treats axial spondyloarthritis?" Typically, this question arises from individuals with some of the symptoms of AxSpA but no diagnosis, so I figured why...Reactions0reactionsComments11 comments
Alcohol and AS: What I've RealizedLast year I wrote a few articles about how I cut alcohol out entirely for a few months. At that point, I was recalibrating my relationship with alcohol after spending...Reactions0reactionsComments11 comments
A Look At The Mythology of the SpineI read an interesting bit of mythology around the spine the other day, as I delved into one of my many "Wikipedia holes" — I have a tendency toward late-night...Reactions0reactionsComments2 comments
How's Your Pandemic FOMO?The epic film Love Actually tells us that Christmas is an enchanted time for magical moments and taking stock of our lives. In between making dreams come true, we’re meant...Reactions0reactionsComments2 comments
How Fundraising Helped MeLuckily, I have never suffered with my mental health (touch wood). After my diagnosis, it was the worst I had ever felt in my life. For months I got into...Reactions0reactionsComments5 comments
7 Years in No Diagnosis Land, Part 2In part 1 of No Diagnosis Land, I told you how I started to have symptoms in different parts of my body. During these years, between 2007 and 2013, I...Reactions0reactionsComments7 comments
Keeping Busy During a Flare-UpI think I speak for everyone when I say AS flare-ups are the bain of our existence. There is no worse feeling than waking up in the morning and instantly...Reactions0reactionsComments10 comments
My Experience With BiologicsI have been using biologics for 14 years now. Never really getting used to injecting myself. Not because it’s painful but, in the back of my head, there always is...Reactions0reactionsComments9 comments
Things I No Longer Do With AxSpaIt has been almost two years since my axial spondyloarthritis diagnosis and this year has brought about many new and scary treatments. But, I can finally say I am happy...Reactions0reactionsComments3 comments
I Tried Tai Chi and Qi Gong For Ankylosing SpondylitisI'm always looking for ways to deepen communication with my body, increase my mobility, and quiet my mind. Enter Tai chi and Qi gong. Tai Chi (also known as T'ai...Reactions0reactionsComments5 comments