Tips on Keeping Up With Replies With a Chronic IllnessI wrote an article a while back about my struggles with responding to friends’ messages - one of the many consequences of living with a chronic illness. It probably isn’t the most pressing issue...Reactions0reactionsComments0 comments
How I Use NSAIDs to Manage AS SymptomsLike most people, the first medication I was prescribed when first diagnosed with AS was a course of anti-inflammatories. Non-steroidal anti-inflammatory drugs (or NSAIDs) have been the first stage medication...Reactions0reactionsComments1 comments
Chilling Out With AS: Winter Workouts That Won't Freeze You UpHey there, winter warriors! As the chilly season continues, you may find yourself wondering how to keep your joints happy and mobile while braving the cold with ankylosing spondylitis (AS)...Reactions0reactionsComments3 comments
Navigating Winter Walks: A Guide for Dog Parents With AxSpaWalking my dog outside during the wintertime is a form of torture I don't wish upon anyone. As walking her is something that I have to do, rather than something...Reactions0reactionsComments4 comments
Ten Years With AxSpa - My Longest Relationship!Ten years with my dark passenger (for those who watched Dexter 😉), my longest relationship! Oh...we had some big fights, some crises, and some resentment along the way. I cried...Reactions0reactionsComments1 comments
Reflecting on Life When My AS Was UndiagnosedAs a lot of us do around new year, I was reflecting on 2023, which got me thinking about life now compared to before I was diagnosed. I was diagnosed...Reactions0reactionsComments1 comments
Navigating AxSpa Research and New DiscoveriesDid you know that researchers discovered the connection between HLA-B27 and AxSpa in the early 70s? And that biologics were introduced in the late 90s and early 2000s? I didn’t...Reactions0reactionsComments1 comments
Building a Firm Self-Care FoundationSelf care is about getting the most important parts of our lives going in the right direction instead of fighting each other. Think about things like work-life balance, diet and...Reactions0reactionsComments1 comments
Navigating the Maze: Inconclusive Tests and Life Beyond Axial SpondyloarthritisYour results came back inconclusive. When I heard those words, I couldn't help but feel disappointed and a twinge of anger. After months of waiting to hear about the results...Reactions0reactionsComments4 comments
Re-Thinking a Career That Works for ASFinding a job that works for AS can be hard. I recently had a coaching client who realized the job he once loved was making life with AS worse. It...Reactions0reactionsComments5 comments
Tips For Surviving The Winter With ASI’ve never been the biggest fan of winter. Deep down I’m a massive child who just wants to wear shorts and a football shirt. All this freezing outside in a big coat...Reactions0reactionsComments9 comments
The Art of Unwinding: Taking a Solo Trip to a Cabin to DestressBeing a stay-at-home parent, living with AxSpa, and dealing with fibromyalgia isn’t just enough for someone’s plate, but makes one’s plate overflowing. Keegan, my husband with AxSpa, recently celebrated his...Reactions0reactionsComments2 comments
How I Have Improved My Sleep With AxSpaTo kick this blog off, I’ll mention that this journey to improve my sleep came from having a lot of fatigue. Although I could sleep well and still feel fatigue...Reactions0reactionsComments1 comments
Keeping A ScheduleI'm a teacher. When I was on summer break this year, I missed a few things. My students, my co-workers, a steady salary.. But what I miss the most is...Reactions0reactionsComments2 comments
The Combo of Getting Sick and Having AxSpaWhen I try to tell my friends and family that I'm vulnerable to getting sick, they act like I'm whining and complaining again. Sometimes they say: "Everyone gets sick in...Reactions0reactionsComments2 comments
Winter Weather Survival Tips for Those With Chronic Joint Pain“Winter is coming. We know what is coming with it.” -Jon Snow As Mr. Snow says, winter is coming, and with it, a lot of challenges for individuals living with...Reactions0reactionsComments1 comments
Finally Growing Used to My Bi-Weekly InjectionsIt has taken over two years, but I am finally growing comfortable with my self-administered injections. In June 2020, I began using adalimumab as my primary treatment. It was the...Reactions0reactionsComments1 comments
AxSpa and Sicca SyndromeIn the common sides effects of Humira, you can find a long list of things. I think I have Sicca syndrome, including dry eyes and dry mouth. In fact, when...Reactions0reactionsComments9 comments
Doing Better With ASDoing things can be difficult when you’ve got axial spondyloarthritis and fibromyalgia. Motivation is nothing compared to pain and fatigue. No matter how much I wanted to do things and...Reactions0reactionsComments1 comments
When Friendships Don’t Survive Your Chronic IllnessLil and I met at work in our early 20s. She was hilarious and outrageous and we clicked instantly. Going anywhere with her was an adventure. Something spontaneous would always...Reactions0reactionsComments6 comments