What I Have Learned From Working With Hundreds of People With AxSpaAs you may or may not know, I am the Co-Founder of Yoga for AS. We are an organization who specialize in teaching people with AxSpa the tools of yoga... By Jamie Boder2 min readBookmark for laterReactions 0 reactions Comments1 comments
Reasons To Date A SpoonieLet’s be honest - dating with a chronic illness is tough. A quick glance at my tragic love life would more than confirm this fact. We are already in a toxic relationship with... By James Hollens3 min readBookmark for laterReactions 0 reactions Comments0 comments
Food is Medicine: What I Eat In A DayI’ve now followed an integrative lifestyle approach to manage my AS for several years. Nutrition, movement, exercise, stress management, mindset, mindfulness and connection (with myself, nature, others) are all essential... By Lana Buettner3 min readBookmark for laterReactions 0 reactions Comments1 comments
How to Organize Your Medical RecordsOne aspect of self-management we don’t often hear about is how to store and organize the information we receive in relation to our health. Lab tests, x-rays, prescription paperwork, referral... By Anne-Marie Raymond2 min readBookmark for laterReactions 0 reactions Comments1 comments
Becoming My Own Healthcare AdvocateOne of my earliest memories is of the doctor's visits my mother used to attend with my grandmother. I remember my mother taking notes and asking the doctors many questions... By Tomesha Campbell2 min readBookmark for laterReactions 0 reactions Comments2 comments
The Sleepless Nights ContinueThe sleepless nights have been going on now for a couple weeks again. They just keep getting harder and harder to get through. The sleepless nights have been not only... By Nicky Flikas2 min readBookmark for laterReactions 0 reactions Comments15 comments
Applying for Disability BenefitsI've had axial spondyloarthritis and fibromyalgia for about four years now. Well, that's when I was diagnosed. In truth, I've probably had it for closer to a decade. I first... By Anna Samson4 min readBookmark for laterReactions 0 reactions Comments1 comments
What You Don’t See: Living With an Invisible IllnessLiving with an invisible illness has taught me a couple of things: (1) people make assumptions about my condition based on what their eyes see; and (2) that I need... By Jessica Gama2 min readBookmark for laterReactions 0 reactions Comments9 comments
Walking Along With Ankylosing SpondylitisDo you worry a lot? Are you distracted often by ankylosing spondylitis (AS)? Are you caught up in medical issues and miss other, more essential things? Well, I do. I... By Lawrence Rick Phillips3 min readBookmark for laterReactions 0 reactions Comments1 comments
I Am Giving Acupuncture a Shot for My Chronic Pain and FatigueI recall meeting people with chronic pain telling me that they benefited from acupuncture treatment. I am naturally curious and always keen to try something new, particularly if it can... By Julie Vallortigara3 min readBookmark for laterReactions 0 reactions Comments4 comments
My First Time Attending an AS Support GroupThis month I attended an online meet-up of my local AS support group. It was the first time I’ve ever done something like this, even though I’ve known these groups... By Anne-Marie Raymond3 min readBookmark for laterReactions 0 reactions Comments1 comments
Finding Balance in Pushing Yourself and Resting with WorkOver the last 6 months, I have been diligent in getting myself back into a consistent work schedule. I work from home, so it can be a challenge to stick... By Sarah Lee3 min readBookmark for laterReactions 0 reactions Comments2 comments
I’ve Been Doing BetterI realized I haven’t written an article in months. There are multiple reasons for that. I haven’t really had any new ideas for writing, nor have I felt motivated to... By Steff Di Pardo2 min readBookmark for laterReactions 0 reactions Comments1 comments
Flares Still Happen, and I Accept Them as MessengersI have now been living with AS for the past 11 years. At the beginning, flares came very frequently, and in an intense way. It felt like anything could trigger... By Lana Buettner2 min readBookmark for laterReactions 0 reactions Comments4 comments
How I Manage Wildfire Season With "Pre-Existing Health Conditions"It is the worst wildfire season in history. That’s the rhetoric I keep hearing from the media. In all fairness, it may be so on a national or continental scale... By Jamie Shinkewski4 min readBookmark for laterReactions 0 reactions Comments1 comments
The Good, Bad, and Ugly of Specialty PharmaciesFor the last 6 months, I’ve been navigating the special pharmacy world extensively. For a variety of reasons, my health insurance benefits changed 3 times in that span of time... By Auldyn Matthews2 min readBookmark for laterReactions 0 reactions Comments1 comments
A Stop on the Long RoadI finally found my stride. Everything is great (or as great as it could be). My body is holding up, my joints aren’t screaming, my energy is good, and I’m... By Jed Finley4 min readBookmark for laterReactions 0 reactions Comments5 comments
Sleepless Nights Continue ContinuouslySleepless nights are something I been writing a lot about. It's part of the biggest struggle I've been having. I know I am not alone on this one. As going... By Nicky Flikas3 min readBookmark for laterReactions 0 reactions Comments3 comments
The Four Minute Mile: Setting AxSpa GoalsThe four minute mile--many people know how the story goes. No one was able to run a sub 4-minute mile and it was deemed impossible, until one day somebody named... By Jamie Boder2 min readBookmark for laterReactions 0 reactions Comments2 comments
3 Ways Ankylosing Spondylitis Has My Life MUCH BetterWhen we think about our lives with ankylosing spondylitis (AS), it can sometimes feel like we're battling eternity. An eternity of chronic pain, stiffness, fatigue, all of the comorbidities, doctors... By Lisa Marie Basile3 min readBookmark for laterReactions 0 reactions Comments2 comments