Axial Spondyloarthritis: A Lesson in Traveling With IntentionI’ve never been a massive fan of “traveling,” but I appreciate arriving at my destination. Before 2020, I used to travel quite often for work, but nowadays, I appreciate the...reactions7comments
Ankylosing Spondylitis: Navigating Fear and ResilienceI've been on a weighty journey—a journey characterized by declining health and disability. It is undeniably cumbersome. Chronic illness has disrupted the life I once treasured, reshaping it in unexpected...reactions6comments
Acceptance and Transition After an AxSpa DiagnosisI am facilitating a course on lifestyle management for people living with long term conditions, with difficult life circumstances, and in need of support from peers and health coaches to...reactions5comments
Reflections After Three Years of Being on CosentyxWe are going three years on Cosentyx. Cosentyx is the fourth biologic that I have been on, and also the one I've been on for the longest time. Before Cosentyx...reactions6comments
Finding Acceptance, Belonging, and Embracing Your JourneyLiving with a chronic inflammatory condition like axial spondyloarthritis (AxSpA) can often make us feel like outsiders in a world that doesn't fully understand our experiences. One of the unique...reactions6comments
Comparison and Ankylosing SpondylitisWe’ve probably all heard the phrase "comparison is the thief of joy." People usually say this to mean that you should stop comparing yourself to other people. The idea is...reactions2comments
Get Grounded GiveawayThe Giveaway is now closed. Thank you for your interest! Managing axial spondyloarthritis (AxSpa) is like growing a delicate plant. Just as the plant needs the right conditions to be...reactionscomments
How I Spend My Self-Care DaysLiving with a condition like AS is extremely draining, both mentally and physically. While medication can help manage the physical side of things (although it is not that easy and...reactionscomments
Investing in Tools That Help Make Life Easier With ASSomeone once told me to never skimp when buying the tools you’ll use the most. This has taken on a new meaning for me thanks to my axial spondyloarthritis. I’ve...reactions16comments
Histamines, Autoimmune Conditions, and Axial SpondyloarthritisHistamine is a chemical that plays a key role in allergies. It is also involved in inflammation and autoimmune conditions. When it is released from immune cells, histamine triggers events...reactions1comment
My Most Valuable AxSpa Strategy Is PacingAfter my diagnosis with AxSpa one doctor told me that I needed to pace myself to manage chronic pain and chronic fatigue. I had no clue what pacing was and...reactions8comments
Ask This to Your Loved One With AxSpa"How are you feeling today?" "How are you really feeling today?" The question I wish someone would reach out and ask me more often. So many of us with this...reactions1comment
Finding a New Biologic After the First FailsJust when things felt like they were getting steady with Keegan’s treatment plan, that all went out the window. We’ve been through a long diagnosis, multiple treatment plans, and a...reactions1comment
Recognizing When I’m Having a Flare UpLiving with AS means dealing with flare ups. I am not symptom free, so the level of symptoms I am used to day to day is what I refer to...reactions3comments
My Mystery Skin IssuesSometimes I think my immune system thinks it’s a Pokemon trainer – when it comes to health conditions it feels like it’s gotta catch ‘em all! Until recently, the only...reactions2comments
Balancing Understanding and Boundaries With Friends and FamilyLiving with an autoimmune condition like axial spondyloarthritis (axSpA) can be a challenging journey, filled with physical and emotional hurdles. Sometimes, the well-intentioned advice from friends and family members doesn't...reactions5comments
Living Well With AxSpa: My Best TipsI've been living with this chronic illness now for many years. I believe it started when I was young. Going through high pain days on a daily basis and not...reactions1comment
Making a Difference After Someone's New DiagnosisThis summer, my dad introduced me to an acquaintance he made while playing "pétanque," the famous French boules game. He asked me if I could help that man who recently...reactions2comments
Finding My First Job Since My AS DiagnosisHaving AS has certainly had a very detrimental impact on my career. I was sacked by my employers once they learned my new medical status and spent the next year re-learning how to walk...reactions11comments
When the Caregiver Hits Rock BottomAlmost every morning, I wake up at 5am to get ready for work. I pack a lunch for my daughter and hope to get ready and not wake anyone else...reactions1comment