Awake in the Dark: Navigating Nighttime Pain With Axial SpondyloarthritisBroken sleep and nighttime pain are challenging aspects of living with AS. Over time I’ve developed some strategies that help me manage when these symptoms crop up. It’s usually the...Reactions0reactionsComments24 comments
Axial Spondyloarthritis: A Lesson in Traveling With IntentionI’ve never been a massive fan of “traveling,” but I appreciate arriving at my destination. Before 2020, I used to travel quite often for work, but nowadays, I appreciate the...Reactions0reactionsComments5 comments
Finding Your Ideal RheumatologistEveryone should have a rheumatologist, a pivotal medical expert specializing in axial spondyloarthritis (AxSpa). They're the ones who master the complexities of the condition. However, the truth is, the quality...Reactions0reactionsComments1 comments
Ankylosing Spondylitis: Navigating Fear and ResilienceI've been on a weighty journey—a journey characterized by declining health and disability. It is undeniably cumbersome. Chronic illness has disrupted the life I once treasured, reshaping it in unexpected...Reactions0reactionsComments6 comments
Acceptance and Transition After an AxSpa DiagnosisI am facilitating a course on lifestyle management for people living with long term conditions, with difficult life circumstances, and in need of support from peers and health coaches to...Reactions0reactionsComments5 comments
Reflections After Three Years of Being on CosentyxWe are going three years on Cosentyx. Cosentyx is the fourth biologic that I have been on, and also the one I've been on for the longest time. Before Cosentyx...Reactions0reactionsComments6 comments
Finding Acceptance, Belonging, and Embracing Your JourneyLiving with a chronic inflammatory condition like axial spondyloarthritis (AxSpA) can often make us feel like outsiders in a world that doesn't fully understand our experiences. One of the unique...Reactions0reactionsComments6 comments
Comparison and Ankylosing SpondylitisWe’ve probably all heard the phrase "comparison is the thief of joy." People usually say this to mean that you should stop comparing yourself to other people. The idea is...Reactions0reactionsComments2 comments
Why I Trust Biologics to Treat My Ankylosing SpondylitisAnkylosing spondylitis/axial spondyloarthritis (AS/AxSpA) is a chronic inflammatory disease that primarily affects the spine. It can cause severe pain and stiffness in the joints, leading to a significant decrease in...Reactions0reactionsComments2 comments
Get Grounded GiveawayThe Giveaway is now closed. Thank you for your interest! Managing axial spondyloarthritis (AxSpa) is like growing a delicate plant. Just as the plant needs the right conditions to be...Reactions0reactionsComments0 comments
How I Spend My Self-Care DaysLiving with a condition like AS is extremely draining, both mentally and physically. While medication can help manage the physical side of things (although it is not that easy and...Reactions0reactionsComments0 comments
Investing in Tools That Help Make Life Easier With ASSomeone once told me to never skimp when buying the tools you’ll use the most. This has taken on a new meaning for me thanks to my axial spondyloarthritis. I’ve...Reactions0reactionsComments16 comments
Histamines, Autoimmune Conditions, and Axial SpondyloarthritisHistamine is a chemical that plays a key role in allergies. It is also involved in inflammation and autoimmune conditions. When it is released from immune cells, histamine triggers events...Reactions0reactionsComments1 comments
My Most Valuable AxSpa Strategy Is PacingAfter my diagnosis with AxSpa one doctor told me that I needed to pace myself to manage chronic pain and chronic fatigue. I had no clue what pacing was and...Reactions0reactionsComments8 comments
Ask This to Your Loved One With AxSpa"How are you feeling today?" "How are you really feeling today?" The question I wish someone would reach out and ask me more often. So many of us with this...Reactions0reactionsComments1 comments
Finding a New Biologic After the First FailsJust when things felt like they were getting steady with Keegan’s treatment plan, that all went out the window. We’ve been through a long diagnosis, multiple treatment plans, and a...Reactions0reactionsComments1 comments
Recognizing When I’m Having a Flare UpLiving with AS means dealing with flare ups. I am not symptom free, so the level of symptoms I am used to day to day is what I refer to...Reactions0reactionsComments3 comments
My Mystery Skin IssuesSometimes I think my immune system thinks it’s a Pokemon trainer – when it comes to health conditions it feels like it’s gotta catch ‘em all! Until recently, the only...Reactions0reactionsComments1 comments
Balancing Understanding and Boundaries With Friends and FamilyLiving with an autoimmune condition like axial spondyloarthritis (axSpA) can be a challenging journey, filled with physical and emotional hurdles. Sometimes, the well-intentioned advice from friends and family members doesn't...Reactions0reactionsComments5 comments
4 Surprising Ways to Combat Brain FogThe most challenging aspect of living with axial spondyloarthritis (AxSpA) for me is dealing with brain fog, especially as a middle school teacher who values intellect. To mitigate the effects...Reactions0reactionsComments1 comments