Tips For Surviving The Winter With ASI’ve never been the biggest fan of winter. Deep down I’m a massive child who just wants to wear shorts and a football shirt. All this freezing outside in a big coat...reactions9comments
The Art of Unwinding: Taking a Solo Trip to a Cabin to DestressBeing a stay-at-home parent, living with AxSpa, and dealing with fibromyalgia isn’t just enough for someone’s plate, but makes one’s plate overflowing. Keegan, my husband with AxSpa, recently celebrated his...reactions2comments
How I Have Improved My Sleep With AxSpaTo kick this blog off, I’ll mention that this journey to improve my sleep came from having a lot of fatigue. Although I could sleep well and still feel fatigue...reactions1comment
Keeping A ScheduleI'm a teacher. When I was on summer break this year, I missed a few things. My students, my co-workers, a steady salary.. But what I miss the most is...reactions2comments
The Combo of Getting Sick and Having AxSpaWhen I try to tell my friends and family that I'm vulnerable to getting sick, they act like I'm whining and complaining again. Sometimes they say: "Everyone gets sick in...reactions2comments
Winter Weather Survival Tips for Those With Chronic Joint Pain“Winter is coming. We know what is coming with it.” -Jon Snow As Mr. Snow says, winter is coming, and with it, a lot of challenges for individuals living with...reactions1comment
Finally Growing Used to My Bi-Weekly InjectionsIt has taken over two years, but I am finally growing comfortable with my self-administered injections. In June 2020, I began using adalimumab as my primary treatment. It was the...reactions1comment
AxSpa and Sicca SyndromeIn the common sides effects of Humira, you can find a long list of things. I think I have Sicca syndrome, including dry eyes and dry mouth. In fact, when...reactions9comments
Doing Better With ASDoing things can be difficult when you’ve got axial spondyloarthritis and fibromyalgia. Motivation is nothing compared to pain and fatigue. No matter how much I wanted to do things and...reactions1comment
When Friendships Don’t Survive Your Chronic IllnessLil and I met at work in our early 20s. She was hilarious and outrageous and we clicked instantly. Going anywhere with her was an adventure. Something spontaneous would always...reactions6comments
Another Year Older With AxSpaAnother year has passed and I made it through. Turning 36 years old, another year of AxSpa by my side. I thought by now things would have been a bit...reactions4comments
Sex and AS: Position Pain Ratings and Tips for Pain Free PassionNewsflash - people with chronic illnesses and disabilities enjoy sex too! You wouldn’t think it as a lot of the time we are desexualised by society – but we get...reactions8comments
The Healing Power of SillinessAny parent of a 4-year-old and 2-year old will admit that things tend to get pretty silly in their house. Add in an AxSpa diagnosis, and silliness becomes a core...reactions1comment
When the Cost of Care Makes Access an IssueWhen I was growing up, my family reserved hospital visits for emergencies that couldn't wait until the doctor's office opened in the morning. During that first year of my diagnosis...reactions4comments
Dealing With the Lack of Knowledge of AS in HealthcareBefore I was diagnosed with ankylosis spondylitis, I’d never heard of it. I spent a lot of time researching my condition, then explaining to friends and family what AS is...reactions4comments
My 4 Arthritis Self-Care BasicsSelf-care makes up a substantial portion of our quality of life, but like good food, safe shelter, and a healthy environment it often gets less attention than our social life...reactions4comments
Why I’m Not on a BiologicThere’s a conversation my rheumatologist and I have on replay at every appointment I attend. It starts with my doctor sharing the results of my blood tests and imaging reports...reactions5comments
Reducing Medication Intake Is My Agenda Whilst Living With AxSpaAfter my diagnosis I visited doctors to seek advice, discuss treatment recommendations, and find ways to cope with AxSpa symptoms. From the start, I have always had in mind to...reactions13comments
My Journey as an Athlete Living With ASI have been an athlete most of my life. I discovered the sport of tennis when I lived in France at the age of 7. The beginning of a beautiful...reactions5comments
My Experience Getting Infliximab InfusionsI get inflixmab infusions (under the brand name Inflectra) every four weeks. Inflectra is a biosimilar of Remicade. I get 6 vials of 100mg infused and have been at this...reactions3comments